Hi randomgirl... I'm uncertain why CFcarebear is moving toward rejection -- the fact that you've got a liver along with your lungs probably complicates things a bit... Here are the symptoms Mayo lists for lung rejection:
[h=3]What are the warning signs of possible rejection?[/h]If you are experiencing any of these symptoms, contact your transplant coordinator immediately:
- Fever over 100°F (38°C)
- "Flu-like" symptoms: chills, aches, headache, dizziness, nausea and/or vomiting
- Chest congestion
- Cough
- Shortness of breath
- New pain or tenderness around the lung
- Fatigue or generally feeling "lousy"
The idea that you currently have 60% lung function and that's as high as it has been (and apparently is not dipping at this point) -- it would seem that exertion with 60% lung function would lead to a much stronger heart rate increase than "normal" people... You probably want to question that with your clinic... The fact that you have a liver could make rejection symptoms different than a lungs-only transplant...
If you're concerned that it might be rejection - and you're not getting far with your nurse coordinator - maybe you should schedule a clinic appointment to speak directly to one of the doctors and find out why they are not concerned...
Thrush is a fungal infection - I believe usually caused by the candida fungus... I don't believe that Levofloxacin would normally be prescribed for that... We usually get some type of mouthwash / gargled medication for cases of thrush I thought... So - if they're prescribing Levofloxacin, they must be agreeing with you, in some way, that you may have some lung / infection involvement going on...
Love, Steve
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