ElizabethlovesChris
New member
Just an update that we are HOME! Thank you guys so much for all your kind words/prayers/thoughts. I know I don't post all that much here, but I just felt especially alone that day in the hospital & needed an outlet where I knew people would understand... so thanks.
He was discharged yesterday (Sun) after 16 days and we made the drive home from Phoenix to Tucson. It was one of those weird feelings with us - we were elated to be going home, but also very deflated because he really is not at ALL close to being back to baseline. His pain level is still high, his cough is horrendous and he lost so much weight. But he has basically been on IV antibiotics for 5 weeks straight (with a one week break) and with his being prone to hemoptysis in the last 2 years, we are always very aware of the fear of 'will this be the bleed they can't stop?' The doctors felt from his last culture that there was more yeast growing, and since the IVs were not helping overall, they stopped the IV antibiotics (Colistin & Azactam) and instead started him on oral Diflucan to try and treat the yeast. I pray this might help to do the trick. We go back for follow-up appts this Friday back to Phoenix so maybe they will have more feedback based on how he did with a week back in the real world.
He has been working full-time since March 07 at his dream job as a Physical Therapist. He worked sooooooooooo damn hard to achieve his Master's degree in Dec. 06 and then landed this great job. This last few weeks we've been through though and the beating his body has taken has caused us to start to doubt whether he should be working full-time though. I know this is a huge blow to Chris, in so many ways. He returned to work this morning feeling SOOOOOOO crappy - I cried as soon as his car pulled out of the driveway. We're toying with the idea that he simply put in his 2 week resignation and then we can evaluate perhaps his working part-time or something.
Bad times like these just remind the 2 of us that life is too freakin' short and that we simply want to spend 24 hrs a day with each other.
My heart hurts for my husband, and for the news of LittleDebbie and her family. People so wonderful don't deserve all this crap, a fact that I suppose I still find hard to accept even after all these years.
Thanks again for your support.
Liz
He was discharged yesterday (Sun) after 16 days and we made the drive home from Phoenix to Tucson. It was one of those weird feelings with us - we were elated to be going home, but also very deflated because he really is not at ALL close to being back to baseline. His pain level is still high, his cough is horrendous and he lost so much weight. But he has basically been on IV antibiotics for 5 weeks straight (with a one week break) and with his being prone to hemoptysis in the last 2 years, we are always very aware of the fear of 'will this be the bleed they can't stop?' The doctors felt from his last culture that there was more yeast growing, and since the IVs were not helping overall, they stopped the IV antibiotics (Colistin & Azactam) and instead started him on oral Diflucan to try and treat the yeast. I pray this might help to do the trick. We go back for follow-up appts this Friday back to Phoenix so maybe they will have more feedback based on how he did with a week back in the real world.
He has been working full-time since March 07 at his dream job as a Physical Therapist. He worked sooooooooooo damn hard to achieve his Master's degree in Dec. 06 and then landed this great job. This last few weeks we've been through though and the beating his body has taken has caused us to start to doubt whether he should be working full-time though. I know this is a huge blow to Chris, in so many ways. He returned to work this morning feeling SOOOOOOO crappy - I cried as soon as his car pulled out of the driveway. We're toying with the idea that he simply put in his 2 week resignation and then we can evaluate perhaps his working part-time or something.
Bad times like these just remind the 2 of us that life is too freakin' short and that we simply want to spend 24 hrs a day with each other.
My heart hurts for my husband, and for the news of LittleDebbie and her family. People so wonderful don't deserve all this crap, a fact that I suppose I still find hard to accept even after all these years.
Thanks again for your support.
Liz