my son diagnosed today

[JORDYSMOM]

Welcome to the site. I too am sorry you have to be here, but I feel there is no better place to gain education and support.

My son went misdiagnosed until he was 15 yrs old. The call from the pulmo was gut wrenching, but now that we are providing proper care, my child is healthier than he's ever been. I still have days that I cry, and I'm sure I always will. For the most part though, I have hope of newer and better treatments that will provide my child with a better quality of life.

You will go through so many different emotions, and it won't be easy, but you will find the strength. It will become routine after a while. It's hard to believe now, but you will find the good things that CF brings. Yes, there are good things. Hang in there. We will help you however we can.

Stacey

 

[JORDYSMOM]

Welcome to the site. I too am sorry you have to be here, but I feel there is no better place to gain education and support.

My son went misdiagnosed until he was 15 yrs old. The call from the pulmo was gut wrenching, but now that we are providing proper care, my child is healthier than he's ever been. I still have days that I cry, and I'm sure I always will. For the most part though, I have hope of newer and better treatments that will provide my child with a better quality of life.

You will go through so many different emotions, and it won't be easy, but you will find the strength. It will become routine after a while. It's hard to believe now, but you will find the good things that CF brings. Yes, there are good things. Hang in there. We will help you however we can.

Stacey

 

[JORDYSMOM]

Welcome to the site. I too am sorry you have to be here, but I feel there is no better place to gain education and support.

My son went misdiagnosed until he was 15 yrs old. The call from the pulmo was gut wrenching, but now that we are providing proper care, my child is healthier than he's ever been. I still have days that I cry, and I'm sure I always will. For the most part though, I have hope of newer and better treatments that will provide my child with a better quality of life.

You will go through so many different emotions, and it won't be easy, but you will find the strength. It will become routine after a while. It's hard to believe now, but you will find the good things that CF brings. Yes, there are good things. Hang in there. We will help you however we can.

Stacey

 

[JORDYSMOM]

Welcome to the site. I too am sorry you have to be here, but I feel there is no better place to gain education and support.

My son went misdiagnosed until he was 15 yrs old. The call from the pulmo was gut wrenching, but now that we are providing proper care, my child is healthier than he's ever been. I still have days that I cry, and I'm sure I always will. For the most part though, I have hope of newer and better treatments that will provide my child with a better quality of life.

You will go through so many different emotions, and it won't be easy, but you will find the strength. It will become routine after a while. It's hard to believe now, but you will find the good things that CF brings. Yes, there are good things. Hang in there. We will help you however we can.

Stacey

 

[JORDYSMOM]

Welcome to the site. I too am sorry you have to be here, but I feel there is no better place to gain education and support.
<br />
<br />My son went misdiagnosed until he was 15 yrs old. The call from the pulmo was gut wrenching, but now that we are providing proper care, my child is healthier than he's ever been. I still have days that I cry, and I'm sure I always will. For the most part though, I have hope of newer and better treatments that will provide my child with a better quality of life.
<br />
<br />You will go through so many different emotions, and it won't be easy, but you will find the strength. It will become routine after a while. It's hard to believe now, but you will find the good things that CF brings. Yes, there are good things. Hang in there. We will help you however we can.
<br />
<br />Stacey

 

[Alyssa]

Welcome to the site -- it takes a while for everything to sink in and to learn all this stuff and deal with the diagnosis... hang in there, we are here if you need anything.

 

[Alyssa]

Welcome to the site -- it takes a while for everything to sink in and to learn all this stuff and deal with the diagnosis... hang in there, we are here if you need anything.

 

[Alyssa]

Welcome to the site -- it takes a while for everything to sink in and to learn all this stuff and deal with the diagnosis... hang in there, we are here if you need anything.

 

[Alyssa]

Welcome to the site -- it takes a while for everything to sink in and to learn all this stuff and deal with the diagnosis... hang in there, we are here if you need anything.

 

[Alyssa]

Welcome to the site -- it takes a while for everything to sink in and to learn all this stuff and deal with the diagnosis... hang in there, we are here if you need anything.

 

[Cherylwithone]

This a great site! What everybody else said is correct. Cry and hang in there. I remember going to Children's doing all the test, the ride home....We pulled into the driveway and my phone range. They had the results and I hear Iam sorry to tell you....I cried like a baby and Malora said it's OK mom. It means Iam not crazy. I really am sick. You will be amazed at what your child can teach you through this diease. JUst reading what other moms and dads are going through will help. I have my now 15 yr old daughter on this site. She goes to the teeen page. It halps her to know that there is all these kids out there feeling just like her. Hang in there. Everything will become habit and routine. You learn to fit everything in and you get to watch your child be a child.

It's OK to cry...I still cry sometimes. Talking helps. Let us know if you need anything.
Cheryl daughter with CF

 

[Cherylwithone]

This a great site! What everybody else said is correct. Cry and hang in there. I remember going to Children's doing all the test, the ride home....We pulled into the driveway and my phone range. They had the results and I hear Iam sorry to tell you....I cried like a baby and Malora said it's OK mom. It means Iam not crazy. I really am sick. You will be amazed at what your child can teach you through this diease. JUst reading what other moms and dads are going through will help. I have my now 15 yr old daughter on this site. She goes to the teeen page. It halps her to know that there is all these kids out there feeling just like her. Hang in there. Everything will become habit and routine. You learn to fit everything in and you get to watch your child be a child.

It's OK to cry...I still cry sometimes. Talking helps. Let us know if you need anything.
Cheryl daughter with CF

 

[Cherylwithone]

This a great site! What everybody else said is correct. Cry and hang in there. I remember going to Children's doing all the test, the ride home....We pulled into the driveway and my phone range. They had the results and I hear Iam sorry to tell you....I cried like a baby and Malora said it's OK mom. It means Iam not crazy. I really am sick. You will be amazed at what your child can teach you through this diease. JUst reading what other moms and dads are going through will help. I have my now 15 yr old daughter on this site. She goes to the teeen page. It halps her to know that there is all these kids out there feeling just like her. Hang in there. Everything will become habit and routine. You learn to fit everything in and you get to watch your child be a child.

It's OK to cry...I still cry sometimes. Talking helps. Let us know if you need anything.
Cheryl daughter with CF

 

[Cherylwithone]

This a great site! What everybody else said is correct. Cry and hang in there. I remember going to Children's doing all the test, the ride home....We pulled into the driveway and my phone range. They had the results and I hear Iam sorry to tell you....I cried like a baby and Malora said it's OK mom. It means Iam not crazy. I really am sick. You will be amazed at what your child can teach you through this diease. JUst reading what other moms and dads are going through will help. I have my now 15 yr old daughter on this site. She goes to the teeen page. It halps her to know that there is all these kids out there feeling just like her. Hang in there. Everything will become habit and routine. You learn to fit everything in and you get to watch your child be a child.

It's OK to cry...I still cry sometimes. Talking helps. Let us know if you need anything.
Cheryl daughter with CF

 

[Cherylwithone]

This a great site! What everybody else said is correct. Cry and hang in there. I remember going to Children's doing all the test, the ride home....We pulled into the driveway and my phone range. They had the results and I hear Iam sorry to tell you....I cried like a baby and Malora said it's OK mom. It means Iam not crazy. I really am sick. You will be amazed at what your child can teach you through this diease. JUst reading what other moms and dads are going through will help. I have my now 15 yr old daughter on this site. She goes to the teeen page. It halps her to know that there is all these kids out there feeling just like her. Hang in there. Everything will become habit and routine. You learn to fit everything in and you get to watch your child be a child.
<br />
<br />It's OK to cry...I still cry sometimes. Talking helps. Let us know if you need anything.
<br />Cheryl daughter with CF

 

[BabyBeauty]

I am sorry.

I found out my newborn has CF 4 weeks ago. It has been the hardest thing I have ever dealt with. My words of advice are...#1 keep your loved ones close. My family and friends have been very helpful. They listen when I cry and they talk when I can't.

I have also started a caring bridge website. It has been helping to write down my feelings and what is going on with my little one.

Try and also distract yourself. You cannot obsess about what is going on. Get out of the house and go to the park or go shopping. Thinking about it 24 hours a day wears you out - it is hard not to though.

Also someone on this site suggested taking an hour a day to cry. I haven't really kept with that, but I try. It gives me a release.

I don't know if this helps, but it has only been a few weeks for me, and it gets better each day.

 

[BabyBeauty]

I am sorry.

I found out my newborn has CF 4 weeks ago. It has been the hardest thing I have ever dealt with. My words of advice are...#1 keep your loved ones close. My family and friends have been very helpful. They listen when I cry and they talk when I can't.

I have also started a caring bridge website. It has been helping to write down my feelings and what is going on with my little one.

Try and also distract yourself. You cannot obsess about what is going on. Get out of the house and go to the park or go shopping. Thinking about it 24 hours a day wears you out - it is hard not to though.

Also someone on this site suggested taking an hour a day to cry. I haven't really kept with that, but I try. It gives me a release.

I don't know if this helps, but it has only been a few weeks for me, and it gets better each day.

 

[BabyBeauty]

I am sorry.

I found out my newborn has CF 4 weeks ago. It has been the hardest thing I have ever dealt with. My words of advice are...#1 keep your loved ones close. My family and friends have been very helpful. They listen when I cry and they talk when I can't.

I have also started a caring bridge website. It has been helping to write down my feelings and what is going on with my little one.

Try and also distract yourself. You cannot obsess about what is going on. Get out of the house and go to the park or go shopping. Thinking about it 24 hours a day wears you out - it is hard not to though.

Also someone on this site suggested taking an hour a day to cry. I haven't really kept with that, but I try. It gives me a release.

I don't know if this helps, but it has only been a few weeks for me, and it gets better each day.

 

[BabyBeauty]

I am sorry.

I found out my newborn has CF 4 weeks ago. It has been the hardest thing I have ever dealt with. My words of advice are...#1 keep your loved ones close. My family and friends have been very helpful. They listen when I cry and they talk when I can't.

I have also started a caring bridge website. It has been helping to write down my feelings and what is going on with my little one.

Try and also distract yourself. You cannot obsess about what is going on. Get out of the house and go to the park or go shopping. Thinking about it 24 hours a day wears you out - it is hard not to though.

Also someone on this site suggested taking an hour a day to cry. I haven't really kept with that, but I try. It gives me a release.

I don't know if this helps, but it has only been a few weeks for me, and it gets better each day.

 

[BabyBeauty]

I am sorry.
<br />
<br />I found out my newborn has CF 4 weeks ago. It has been the hardest thing I have ever dealt with. My words of advice are...#1 keep your loved ones close. My family and friends have been very helpful. They listen when I cry and they talk when I can't.
<br />
<br />I have also started a caring bridge website. It has been helping to write down my feelings and what is going on with my little one.
<br />
<br />Try and also distract yourself. You cannot obsess about what is going on. Get out of the house and go to the park or go shopping. Thinking about it 24 hours a day wears you out - it is hard not to though.
<br />
<br />Also someone on this site suggested taking an hour a day to cry. I haven't really kept with that, but I try. It gives me a release.
<br />
<br />I don't know if this helps, but it has only been a few weeks for me, and it gets better each day.