my son just diagnosed

[aimeejgarman]

My 5 year old son was diagnosed with cf yesturday! i really haven't heard much about the condition and reading up on the internet is very scary! please can you help me to understand the condition and what is going to happen

many thanks
aimee

 

[aimeejgarman]

My 5 year old son was diagnosed with cf yesturday! i really haven't heard much about the condition and reading up on the internet is very scary! please can you help me to understand the condition and what is going to happen

many thanks
aimee

 

[aimeejgarman]

My 5 year old son was diagnosed with cf yesturday! i really haven't heard much about the condition and reading up on the internet is very scary! please can you help me to understand the condition and what is going to happen

many thanks
aimee

 

[aimeejgarman]

My 5 year old son was diagnosed with cf yesturday! i really haven't heard much about the condition and reading up on the internet is very scary! please can you help me to understand the condition and what is going to happen

many thanks
aimee

 

[aimeejgarman]

My 5 year old son was diagnosed with cf yesturday! i really haven't heard much about the condition and reading up on the internet is very scary! please can you help me to understand the condition and what is going to happen
<br />
<br />many thanks
<br />aimee

 

[folione]

Sorry to see another member, but I think you'll find it a good support system. Surf around the threads and you'll find plenty of past discussions of what happens at a typical CF clinic appointment and of the daily routines of lots of folks. But just to get you started with some responses to your question ->

The first thing you can expect after a CF diagnosis is that your child will probably be healthier because he'll get the medicines and treatments he needs. You did not mention the symptom history that led to being tested, but poor digestion and frequent respiratory troubles are the norm so I'll assume you've seen some of that. The digestion issue is going to be handled pretty well with enzyme pills and maybe an antacid type medicine; the respiratory stuff gets nebulizer treatments and antibiotics (as needed).

Every CF case/patient is different so you want to avoid reading about the bad cases and thinking it is a predictor for your boy.

 

[folione]

Sorry to see another member, but I think you'll find it a good support system. Surf around the threads and you'll find plenty of past discussions of what happens at a typical CF clinic appointment and of the daily routines of lots of folks. But just to get you started with some responses to your question ->

The first thing you can expect after a CF diagnosis is that your child will probably be healthier because he'll get the medicines and treatments he needs. You did not mention the symptom history that led to being tested, but poor digestion and frequent respiratory troubles are the norm so I'll assume you've seen some of that. The digestion issue is going to be handled pretty well with enzyme pills and maybe an antacid type medicine; the respiratory stuff gets nebulizer treatments and antibiotics (as needed).

Every CF case/patient is different so you want to avoid reading about the bad cases and thinking it is a predictor for your boy.

 

[folione]

Sorry to see another member, but I think you'll find it a good support system. Surf around the threads and you'll find plenty of past discussions of what happens at a typical CF clinic appointment and of the daily routines of lots of folks. But just to get you started with some responses to your question ->

The first thing you can expect after a CF diagnosis is that your child will probably be healthier because he'll get the medicines and treatments he needs. You did not mention the symptom history that led to being tested, but poor digestion and frequent respiratory troubles are the norm so I'll assume you've seen some of that. The digestion issue is going to be handled pretty well with enzyme pills and maybe an antacid type medicine; the respiratory stuff gets nebulizer treatments and antibiotics (as needed).

Every CF case/patient is different so you want to avoid reading about the bad cases and thinking it is a predictor for your boy.

 

[folione]

Sorry to see another member, but I think you'll find it a good support system. Surf around the threads and you'll find plenty of past discussions of what happens at a typical CF clinic appointment and of the daily routines of lots of folks. But just to get you started with some responses to your question ->

The first thing you can expect after a CF diagnosis is that your child will probably be healthier because he'll get the medicines and treatments he needs. You did not mention the symptom history that led to being tested, but poor digestion and frequent respiratory troubles are the norm so I'll assume you've seen some of that. The digestion issue is going to be handled pretty well with enzyme pills and maybe an antacid type medicine; the respiratory stuff gets nebulizer treatments and antibiotics (as needed).

Every CF case/patient is different so you want to avoid reading about the bad cases and thinking it is a predictor for your boy.

 

[folione]

Sorry to see another member, but I think you'll find it a good support system. Surf around the threads and you'll find plenty of past discussions of what happens at a typical CF clinic appointment and of the daily routines of lots of folks. But just to get you started with some responses to your question ->
<br />
<br />The first thing you can expect after a CF diagnosis is that your child will probably be healthier because he'll get the medicines and treatments he needs. You did not mention the symptom history that led to being tested, but poor digestion and frequent respiratory troubles are the norm so I'll assume you've seen some of that. The digestion issue is going to be handled pretty well with enzyme pills and maybe an antacid type medicine; the respiratory stuff gets nebulizer treatments and antibiotics (as needed).
<br />
<br />Every CF case/patient is different so you want to avoid reading about the bad cases and thinking it is a predictor for your boy.

 

[aimeejgarman]

thankyou very much for that!! we had noticed problems ever since he was young last year he got phnemonia twice the first case was almost fatal however they didn't suggest that cf could be the cause!! He was under the consultant in Banbury and he was adament that cf wasn't the case. They referred us over to the john radcliffe in oxford and within two weeks they have given this diagnosis. We have also had problems with him stealing fatty foods and being constantly hungry and thirsty. He also looks very pale and constantely tired infact in 5yrs ive never known him look well!! He struggles to do many activities eg sports etc

many thanks for your response

aimee
x

 

[aimeejgarman]

thankyou very much for that!! we had noticed problems ever since he was young last year he got phnemonia twice the first case was almost fatal however they didn't suggest that cf could be the cause!! He was under the consultant in Banbury and he was adament that cf wasn't the case. They referred us over to the john radcliffe in oxford and within two weeks they have given this diagnosis. We have also had problems with him stealing fatty foods and being constantly hungry and thirsty. He also looks very pale and constantely tired infact in 5yrs ive never known him look well!! He struggles to do many activities eg sports etc

many thanks for your response

aimee
x

 

[aimeejgarman]

thankyou very much for that!! we had noticed problems ever since he was young last year he got phnemonia twice the first case was almost fatal however they didn't suggest that cf could be the cause!! He was under the consultant in Banbury and he was adament that cf wasn't the case. They referred us over to the john radcliffe in oxford and within two weeks they have given this diagnosis. We have also had problems with him stealing fatty foods and being constantly hungry and thirsty. He also looks very pale and constantely tired infact in 5yrs ive never known him look well!! He struggles to do many activities eg sports etc

many thanks for your response

aimee
x

 

[aimeejgarman]

thankyou very much for that!! we had noticed problems ever since he was young last year he got phnemonia twice the first case was almost fatal however they didn't suggest that cf could be the cause!! He was under the consultant in Banbury and he was adament that cf wasn't the case. They referred us over to the john radcliffe in oxford and within two weeks they have given this diagnosis. We have also had problems with him stealing fatty foods and being constantly hungry and thirsty. He also looks very pale and constantely tired infact in 5yrs ive never known him look well!! He struggles to do many activities eg sports etc

many thanks for your response

aimee
x

 

[aimeejgarman]

thankyou very much for that!! we had noticed problems ever since he was young last year he got phnemonia twice the first case was almost fatal however they didn't suggest that cf could be the cause!! He was under the consultant in Banbury and he was adament that cf wasn't the case. They referred us over to the john radcliffe in oxford and within two weeks they have given this diagnosis. We have also had problems with him stealing fatty foods and being constantly hungry and thirsty. He also looks very pale and constantely tired infact in 5yrs ive never known him look well!! He struggles to do many activities eg sports etc
<br />
<br />many thanks for your response
<br />
<br />aimee
<br />x

 

[busyscmom]

I know you're scared because I remember how I felt when my daughter was diagnosed. She was in the hospital for pneumonia and we were told to take her home and enjoy her because she wouldn't live long. WOW! Today, she's a beautiful, blond, tanned 16 year old cheerleader!!! She has played the piano, soccer, been in theater productions at school, has a boyfriend, went to the prom, and been on a competition cheer team, as well as the varsity team at her school. She has only been in the hospital 4 times in her entire life. Her lung function is usually 100%.

Your son does have a serious illness, but he can many years of a normal, healthy life! Just listen to your doctor (assuming he/she is a good one) and take very good care of him! Best of luck!!!

My email is revamelton@hotmail.com if you feel like you need someone to talk to!

 

[busyscmom]

I know you're scared because I remember how I felt when my daughter was diagnosed. She was in the hospital for pneumonia and we were told to take her home and enjoy her because she wouldn't live long. WOW! Today, she's a beautiful, blond, tanned 16 year old cheerleader!!! She has played the piano, soccer, been in theater productions at school, has a boyfriend, went to the prom, and been on a competition cheer team, as well as the varsity team at her school. She has only been in the hospital 4 times in her entire life. Her lung function is usually 100%.

Your son does have a serious illness, but he can many years of a normal, healthy life! Just listen to your doctor (assuming he/she is a good one) and take very good care of him! Best of luck!!!

My email is revamelton@hotmail.com if you feel like you need someone to talk to!

 

[busyscmom]

I know you're scared because I remember how I felt when my daughter was diagnosed. She was in the hospital for pneumonia and we were told to take her home and enjoy her because she wouldn't live long. WOW! Today, she's a beautiful, blond, tanned 16 year old cheerleader!!! She has played the piano, soccer, been in theater productions at school, has a boyfriend, went to the prom, and been on a competition cheer team, as well as the varsity team at her school. She has only been in the hospital 4 times in her entire life. Her lung function is usually 100%.

Your son does have a serious illness, but he can many years of a normal, healthy life! Just listen to your doctor (assuming he/she is a good one) and take very good care of him! Best of luck!!!

My email is revamelton@hotmail.com if you feel like you need someone to talk to!

 

[busyscmom]

I know you're scared because I remember how I felt when my daughter was diagnosed. She was in the hospital for pneumonia and we were told to take her home and enjoy her because she wouldn't live long. WOW! Today, she's a beautiful, blond, tanned 16 year old cheerleader!!! She has played the piano, soccer, been in theater productions at school, has a boyfriend, went to the prom, and been on a competition cheer team, as well as the varsity team at her school. She has only been in the hospital 4 times in her entire life. Her lung function is usually 100%.

Your son does have a serious illness, but he can many years of a normal, healthy life! Just listen to your doctor (assuming he/she is a good one) and take very good care of him! Best of luck!!!

My email is revamelton@hotmail.com if you feel like you need someone to talk to!

 

[busyscmom]

I know you're scared because I remember how I felt when my daughter was diagnosed. She was in the hospital for pneumonia and we were told to take her home and enjoy her because she wouldn't live long. WOW! Today, she's a beautiful, blond, tanned 16 year old cheerleader!!! She has played the piano, soccer, been in theater productions at school, has a boyfriend, went to the prom, and been on a competition cheer team, as well as the varsity team at her school. She has only been in the hospital 4 times in her entire life. Her lung function is usually 100%.
<br />
<br />Your son does have a serious illness, but he can many years of a normal, healthy life! Just listen to your doctor (assuming he/she is a good one) and take very good care of him! Best of luck!!!
<br />
<br />My email is revamelton@hotmail.com if you feel like you need someone to talk to!