<P>When my grandson was dx his daddy sat right there and said " there is no way he got it from me i tested negative". Well the pediatrician made a mistake in telliing us he was negative. Our Case Worker told him not only does he have the mutation she will find it. At our first clinic visit we were told he had not one but two!</P>
<P>He is not married to my dtr and seldom see's his son, he has never been to a clinic visit after his first initial hospitalzation a year and a half ago. He never asks what happens at his visits and never contributes to his life. (My husband and I spent over $10,000.00 in attorney's fees to secure child support but he still doesnt pay).</P>
<P>I guess what I'm trying to say is I FEEL your fustrations. There is nothing like having a sick child that others THINK may or not be sick but are the first to be telling you what to do how to act and where to go. Having a bum for the Dad does NOT help these matters at all. Especially when they won't take the time to speak with one physician but raise hell anytime they do see Jaden that my dtr is an unfit parent. </P>
<P>If I was you I would let him take you to court to get medical information or let him call the appointment lines himself. Perhaps forcing him legally to get tested. (As far as I know it takes two to make a CF baby). Or changing visitation since there is a change in circumstances. </P>
<P>Probably not helping but just reading your blog got my blood boiling, good luck, take care and God Bless!</P>
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<P>He is not married to my dtr and seldom see's his son, he has never been to a clinic visit after his first initial hospitalzation a year and a half ago. He never asks what happens at his visits and never contributes to his life. (My husband and I spent over $10,000.00 in attorney's fees to secure child support but he still doesnt pay).</P>
<P>I guess what I'm trying to say is I FEEL your fustrations. There is nothing like having a sick child that others THINK may or not be sick but are the first to be telling you what to do how to act and where to go. Having a bum for the Dad does NOT help these matters at all. Especially when they won't take the time to speak with one physician but raise hell anytime they do see Jaden that my dtr is an unfit parent. </P>
<P>If I was you I would let him take you to court to get medical information or let him call the appointment lines himself. Perhaps forcing him legally to get tested. (As far as I know it takes two to make a CF baby). Or changing visitation since there is a change in circumstances. </P>
<P>Probably not helping but just reading your blog got my blood boiling, good luck, take care and God Bless!</P>
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