Congratulations on your expanded family and kudos to you for not being scared away by CF.<br><br>We have an 8 month old with CF, so we're still very new to this. My experience is that every child is different and the way this disease presents itself in every child is different - regardless of the mutations. <br><br>The greatest advice I've received since becoming a CF mom is to not let CF take over your life. Don't let you child or yourself/family become defined by it. I fell into that trap in the early months of his diagnosis, but in the last 2 months or so, we've really started to live our lives again, instead of CF driving everything we do.<br><br>The CF community is wonderfully forthcoming and everyone is happy to help out. I encourage you to go with her to her clinic appointments so you can have a better understanding of the hows/whys of her particular treatment plan. Take your girls too, if you can, as many of the clinics have age specific information to help siblings understand what's going on & why.<br><br>I'm sure you already know this, but hand-sanitizer & good hand washing are now your best friends. It will be especially important for your girls to understand how important it is for them to wash their hands. Little kids are germ factories and what doesn't make them sick can really do a number on CFers.<br><br>Good luck & given your interest, she's a lucky little girl to have you as a step-mom!<br>
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My soon-to-be step-child has CF
- Thread starter SunnyK
- Start date
froggymama
New member
Liza,
Although some girls are VERY proud of their flatulance and poop. I think we both know who I'm talking about. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sunny: I think all the advice you received was great! Good luck with your new kiddo!
Although some girls are VERY proud of their flatulance and poop. I think we both know who I'm talking about. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sunny: I think all the advice you received was great! Good luck with your new kiddo!
froggymama
New member
Liza,
Although some girls are VERY proud of their flatulance and poop. I think we both know who I'm talking about. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sunny: I think all the advice you received was great! Good luck with your new kiddo!
Although some girls are VERY proud of their flatulance and poop. I think we both know who I'm talking about. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sunny: I think all the advice you received was great! Good luck with your new kiddo!
froggymama
New member
Liza,
<br />
<br />Although some girls are VERY proud of their flatulance and poop. I think we both know who I'm talking about. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Sunny: I think all the advice you received was great! Good luck with your new kiddo!
<br />
<br />Although some girls are VERY proud of their flatulance and poop. I think we both know who I'm talking about. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Sunny: I think all the advice you received was great! Good luck with your new kiddo!
We are dealing w/ the flatulance and poop also but my 2 girls w/o CF are pretty stinky on their own so I think this has helped her because they try to guess who was in the bathroom last! She is with us 1/2 of the time so I am catching on fast! The idea about going to the Dr. visits with her is a good one! (if her Mom will go along with it). I have noticed she is an extremly slow eater, is this something that is CF related? Also I am not sure at all about her mutations...I am checking into this also, I know nothing about them but I do know she was diagnosed at 18 months. Thank you all again! This is really good input!
We are dealing w/ the flatulance and poop also but my 2 girls w/o CF are pretty stinky on their own so I think this has helped her because they try to guess who was in the bathroom last! She is with us 1/2 of the time so I am catching on fast! The idea about going to the Dr. visits with her is a good one! (if her Mom will go along with it). I have noticed she is an extremly slow eater, is this something that is CF related? Also I am not sure at all about her mutations...I am checking into this also, I know nothing about them but I do know she was diagnosed at 18 months. Thank you all again! This is really good input!
We are dealing w/ the flatulance and poop also but my 2 girls w/o CF are pretty stinky on their own so I think this has helped her because they try to guess who was in the bathroom last! She is with us 1/2 of the time so I am catching on fast! The idea about going to the Dr. visits with her is a good one! (if her Mom will go along with it). I have noticed she is an extremly slow eater, is this something that is CF related? Also I am not sure at all about her mutations...I am checking into this also, I know nothing about them but I do know she was diagnosed at 18 months. Thank you all again! This is really good input!
Yea, Froggy! But have you been asked to photograph a particularly large deposit yet or determine what letter of the alphabet the poop may be shaped like? <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sunny, DS is a very slowwwww eater as well.
Sunny, DS is a very slowwwww eater as well.
Yea, Froggy! But have you been asked to photograph a particularly large deposit yet or determine what letter of the alphabet the poop may be shaped like? <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sunny, DS is a very slowwwww eater as well.
Sunny, DS is a very slowwwww eater as well.
Yea, Froggy! But have you been asked to photograph a particularly large deposit yet or determine what letter of the alphabet the poop may be shaped like? <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Sunny, DS is a very slowwwww eater as well.
<br />
<br />Sunny, DS is a very slowwwww eater as well.