my strangest question yet!

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anonymous

New member
They worked me in at doctors office(my pediatrician of course) on Tuesday and I started looking around, it must have been a scheduled "special" day. Let me tell you, there were some really sad cases in there. I found myself thinking, I'm glad I just have CF. Whiched progressed into, if I could trade any of them would I? There was some deaf kids that I decided I would trade. I will live my life soundless so long as I could live it all.

What body part or sense what you trade to get rid of CF?



Luke 29 /cf, 20 days and counting
 
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Emily65Roses

New member
Deafness is actually not considered a disability or problem by most Deaf people. Not that it matters, but most of the hearing population doesn't know this. Before I started taking Deaf culture classes, I always assumed it was a medical problem too. But after my classes, I've learned that instead, it's rather a linguistic and cultural minority. Not an answer to your question, but I figured I'd make a quick note of it.
 
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cfgirl38

New member
Exactly Mockingbird.... So when everyone wants to get technical maybe they'll think before they type. HeeHee.
 
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jamey

New member
ya that sounds good, i would trade cf to be deaf. then i would just have to learn sign lnguage and read lips real good. but i dont know that i would want to be blind and deaf--that wouldnt be to fun. how would you ever know what was going on or where you were at
 
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vickysmommy

New member
I dont know what I would trade for CF. This is hard. I guess if I had to choose, it would be the use of my legs. Why? Because then I would have an excuse as to why Im lazy at times. I could have people wait on me, hand and foot. It would be a lot better then wondering if Im going to die soon.
 
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anonymous

New member
I would not trade CF for anything. CF has always been a challenge for me but I am a better and stronger person for having it and dealing with it. For me CF has and continues to be a learning experience and for that I would never trade it for anything else. Although, it is life threatening it is something that I will overcome!
 
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NoDayButToday

New member
I would definitely trade in CF for something (I'll get to what later LOL) if I could. I think CF has made me a very strong person, and a good person, but I can't erase the fact that at almost 16, by CF standards, I am practically middle aged. I wouldn't mind being deaf (but I do LOVE music). I would trade my sense of smell for CF, or sight, no question. Taste I would probably trade, and touch I could live without.

One thing I've always wondered is, how do blind and deaf (meaning they have both) know when they have died. Actually, I never wondered this until a girl in an English class of mine wrote a story about this where two deaf/blind people were in the ocean during a storm and they lost hold of each other and it ended "Had they died, or just lost each other?" It made me think...
 
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Emily65Roses

New member
Not a clue, Coll. They may have to assume that if they never felt that person again, that they had died. But you don't know. However, Deafblind people are actually quite aware of where they are and what's going on. They do need help from a guide, often, but they're great people. The Deaf organization I volunteer at has a DBCAN (DeafBlind Community Access Network) and the lady who runs it is Deafblind. She needs a guide a lot of the time (basically anywhere outside our building -- but she knows our building well and uses a cane) but she's generally very aware (especially considering) of what's going on. That's not to say anyone was saying anything bad about the Deafblind, but since I know some, I figured I'd comment. Heh.
 
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anonymous

New member
I am more than partially deaf and although I can hear most of the time with the use of a hearing aid I still feel the loss of being "disabled"
To the second poster, you are absolutely correct. In the deaf world, they do not consider it a disability because by all means how can you consider a loss, when you've never experienced it? Meaning that those who were born deaf do not know any difference unless or until they can get the cochlear implant or some other "miracle" procedure.
I recently broke up with my fiancee' who has CF and I truly feel that he gave me the ability to see past my own disability.
 
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Emily65Roses

New member
Not that it matters, but a cochlear implant is hardly a miracle procedure. Just didn't want people getting the wrong idea. Heh. <img src="i/expressions/rose.gif" border="0">
 
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Zacarus

New member
<blockquote>Quote<br><hr>What body part or sense would you trade to get rid of CF?<hr></blockquote>

None, of course. Unlike many others on this board, I do not really care whether I live to be sixty, seventy, eighty, or even ninety years old. Quality matters, not quantity; to experience everything human (to feel, to taste, to smell, to hear, and to see) I would suffer any disability. I could not even imagine someone trading in their senses for longevity. Rather would I suffer unbearable pain than remove any part of me. The opposite, to blind or deafen oneself for the sake of wretched contentment, is pure cowardice.

Besides, it's only C.F. It really could be much worse.
 
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Emily65Roses

New member
And again, I feel the need to point out that being deaf isn't the end of the world either. If you're born with hearing and then go deaf, I imagine there's a sense of loss. However, if you're born deaf (especially if you've got Deaf parents), you're not going to have hearing (but you also never know what you're missing, either), but you're going to be raised in a very rich and close-knit culture. I know I keep repeating this type of information. But until I was introduced to Deaf culture, I thought it was a disability too. People within the Deaf community don't see it as a medical problem. They see it as a cultural and linguistic minority, nothing more. <img src="i/expressions/rose.gif" border="0">
 
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