theLostMiler
New member
So b/c my response ended up being incredible long, I went ahead and sent you a PM.
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Mycobacterium abscessus
- Thread starter serendipity730
- Start date
theLostMiler
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>marla</b></i>
This certainly has not been the end of the world for us, it just sucks as so many things about cf do. The long courses of IVs really do become part of your daily routine and you don't give much thought to it after a while. I wish you success in whatever treatment you and your doctors decide on. If you don't mind updating the site on what your doctors advise, I would appreciate it. I'm always interested in how others are treating this.
Lisa</end quote></div>
I agree with this as well.
Especially posting what your doctors recommend. I love being able to compare and contrast and come up with questions for my doctors so I can fully understand their decisions in my treatment.
This certainly has not been the end of the world for us, it just sucks as so many things about cf do. The long courses of IVs really do become part of your daily routine and you don't give much thought to it after a while. I wish you success in whatever treatment you and your doctors decide on. If you don't mind updating the site on what your doctors advise, I would appreciate it. I'm always interested in how others are treating this.
Lisa</end quote></div>
I agree with this as well.
Especially posting what your doctors recommend. I love being able to compare and contrast and come up with questions for my doctors so I can fully understand their decisions in my treatment.
theLostMiler
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>marla</b></i>
This certainly has not been the end of the world for us, it just sucks as so many things about cf do. The long courses of IVs really do become part of your daily routine and you don't give much thought to it after a while. I wish you success in whatever treatment you and your doctors decide on. If you don't mind updating the site on what your doctors advise, I would appreciate it. I'm always interested in how others are treating this.
Lisa</end quote>
I agree with this as well.
Especially posting what your doctors recommend. I love being able to compare and contrast and come up with questions for my doctors so I can fully understand their decisions in my treatment.
This certainly has not been the end of the world for us, it just sucks as so many things about cf do. The long courses of IVs really do become part of your daily routine and you don't give much thought to it after a while. I wish you success in whatever treatment you and your doctors decide on. If you don't mind updating the site on what your doctors advise, I would appreciate it. I'm always interested in how others are treating this.
Lisa</end quote>
I agree with this as well.
Especially posting what your doctors recommend. I love being able to compare and contrast and come up with questions for my doctors so I can fully understand their decisions in my treatment.
theLostMiler
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>marla</b></i>
<br />
<br />
<br /> This certainly has not been the end of the world for us, it just sucks as so many things about cf do. The long courses of IVs really do become part of your daily routine and you don't give much thought to it after a while. I wish you success in whatever treatment you and your doctors decide on. If you don't mind updating the site on what your doctors advise, I would appreciate it. I'm always interested in how others are treating this.
<br />
<br />
<br />
<br />Lisa</end quote>
<br />
<br />I agree with this as well.
<br />
<br />Especially posting what your doctors recommend. I love being able to compare and contrast and come up with questions for my doctors so I can fully understand their decisions in my treatment.
<br />
<br />
<br /> This certainly has not been the end of the world for us, it just sucks as so many things about cf do. The long courses of IVs really do become part of your daily routine and you don't give much thought to it after a while. I wish you success in whatever treatment you and your doctors decide on. If you don't mind updating the site on what your doctors advise, I would appreciate it. I'm always interested in how others are treating this.
<br />
<br />
<br />
<br />Lisa</end quote>
<br />
<br />I agree with this as well.
<br />
<br />Especially posting what your doctors recommend. I love being able to compare and contrast and come up with questions for my doctors so I can fully understand their decisions in my treatment.
T
TonyaH
Guest
Hi Mary,
I would love to hear how your doctor decided to handle your mycobacterium abscessus. Andrew has a mycobacterium growing out right now and a CT scan scheduled when we return to clinic on Aug. 10th to get his picc line pulled. I'm just trying to learn all about mycobacteriums in the meantime.
Thanks!
I would love to hear how your doctor decided to handle your mycobacterium abscessus. Andrew has a mycobacterium growing out right now and a CT scan scheduled when we return to clinic on Aug. 10th to get his picc line pulled. I'm just trying to learn all about mycobacteriums in the meantime.
Thanks!
T
TonyaH
Guest
Hi Mary,
I would love to hear how your doctor decided to handle your mycobacterium abscessus. Andrew has a mycobacterium growing out right now and a CT scan scheduled when we return to clinic on Aug. 10th to get his picc line pulled. I'm just trying to learn all about mycobacteriums in the meantime.
Thanks!
I would love to hear how your doctor decided to handle your mycobacterium abscessus. Andrew has a mycobacterium growing out right now and a CT scan scheduled when we return to clinic on Aug. 10th to get his picc line pulled. I'm just trying to learn all about mycobacteriums in the meantime.
Thanks!
T
TonyaH
Guest
Hi Mary,
<br />I would love to hear how your doctor decided to handle your mycobacterium abscessus. Andrew has a mycobacterium growing out right now and a CT scan scheduled when we return to clinic on Aug. 10th to get his picc line pulled. I'm just trying to learn all about mycobacteriums in the meantime.
<br />Thanks!
<br />I would love to hear how your doctor decided to handle your mycobacterium abscessus. Andrew has a mycobacterium growing out right now and a CT scan scheduled when we return to clinic on Aug. 10th to get his picc line pulled. I'm just trying to learn all about mycobacteriums in the meantime.
<br />Thanks!
i just recently grew this, and lost some lung function, but my lung function only dropped 10% thankfully. my doctor put me on a bunch of antibiotics, and now im off of them and am feeling better. he put me on cipro, bactrim, doxycylcine, and tobi, for psudemonus. but i do feel better now, and my lung funtions are back to the 120% that they were before. thankfully i dodged the hospital visit. depending on how bad the ifection and how much pft's drop is what the doctors decide to do. my summer was ruined by this, cause i felt awful all summer, but now im glad that i didnt have to go into the hospital.
i just recently grew this, and lost some lung function, but my lung function only dropped 10% thankfully. my doctor put me on a bunch of antibiotics, and now im off of them and am feeling better. he put me on cipro, bactrim, doxycylcine, and tobi, for psudemonus. but i do feel better now, and my lung funtions are back to the 120% that they were before. thankfully i dodged the hospital visit. depending on how bad the ifection and how much pft's drop is what the doctors decide to do. my summer was ruined by this, cause i felt awful all summer, but now im glad that i didnt have to go into the hospital.
i just recently grew this, and lost some lung function, but my lung function only dropped 10% thankfully. my doctor put me on a bunch of antibiotics, and now im off of them and am feeling better. he put me on cipro, bactrim, doxycylcine, and tobi, for psudemonus. but i do feel better now, and my lung funtions are back to the 120% that they were before. thankfully i dodged the hospital visit. depending on how bad the ifection and how much pft's drop is what the doctors decide to do. my summer was ruined by this, cause i felt awful all summer, but now im glad that i didnt have to go into the hospital.
Hi Mary,
I was dxd w/ Mycobacterium Abscessus over 2 yrs ago... Like you I was scared, freaked out, you name it. I did exactly what you are doing. Reached out to others here w/ it.. I even got some phone #'s of ppl and spoke to them about it.. It did help.
At first my drs. didnt treat it & that worried me but I put my faith in them that they knew what they were doing.. I go to a center in Manhattan & I also go to Denver National Jewish in Colorado every 6 mos. The drs decided to "go after it" due to changes in my lungs .. They are not being really aggressive due to my past history with renal failure & I also have a clotting problem w/ ports/piccs (hence the reason for holding off till necessary)
The course of action for me was 7 mos on IV's Cefoxiton (sp) inhaled Amikasin & oral Clarithromycin .. After the seven mos. of IV, I continued w/ the inhaled & oral. It has been well over a year of them.. As far as my health goes , I am holding my own so I am happy with that ...
If you want to talk to me PM me.. I will give you my #.. Take care & hang in <img src="i/expressions/heart.gif" border="0"> joni
I was dxd w/ Mycobacterium Abscessus over 2 yrs ago... Like you I was scared, freaked out, you name it. I did exactly what you are doing. Reached out to others here w/ it.. I even got some phone #'s of ppl and spoke to them about it.. It did help.
At first my drs. didnt treat it & that worried me but I put my faith in them that they knew what they were doing.. I go to a center in Manhattan & I also go to Denver National Jewish in Colorado every 6 mos. The drs decided to "go after it" due to changes in my lungs .. They are not being really aggressive due to my past history with renal failure & I also have a clotting problem w/ ports/piccs (hence the reason for holding off till necessary)
The course of action for me was 7 mos on IV's Cefoxiton (sp) inhaled Amikasin & oral Clarithromycin .. After the seven mos. of IV, I continued w/ the inhaled & oral. It has been well over a year of them.. As far as my health goes , I am holding my own so I am happy with that ...
If you want to talk to me PM me.. I will give you my #.. Take care & hang in <img src="i/expressions/heart.gif" border="0"> joni
Hi Mary,
I was dxd w/ Mycobacterium Abscessus over 2 yrs ago... Like you I was scared, freaked out, you name it. I did exactly what you are doing. Reached out to others here w/ it.. I even got some phone #'s of ppl and spoke to them about it.. It did help.
At first my drs. didnt treat it & that worried me but I put my faith in them that they knew what they were doing.. I go to a center in Manhattan & I also go to Denver National Jewish in Colorado every 6 mos. The drs decided to "go after it" due to changes in my lungs .. They are not being really aggressive due to my past history with renal failure & I also have a clotting problem w/ ports/piccs (hence the reason for holding off till necessary)
The course of action for me was 7 mos on IV's Cefoxiton (sp) inhaled Amikasin & oral Clarithromycin .. After the seven mos. of IV, I continued w/ the inhaled & oral. It has been well over a year of them.. As far as my health goes , I am holding my own so I am happy with that ...
If you want to talk to me PM me.. I will give you my #.. Take care & hang in <img src="i/expressions/heart.gif" border="0"> joni
I was dxd w/ Mycobacterium Abscessus over 2 yrs ago... Like you I was scared, freaked out, you name it. I did exactly what you are doing. Reached out to others here w/ it.. I even got some phone #'s of ppl and spoke to them about it.. It did help.
At first my drs. didnt treat it & that worried me but I put my faith in them that they knew what they were doing.. I go to a center in Manhattan & I also go to Denver National Jewish in Colorado every 6 mos. The drs decided to "go after it" due to changes in my lungs .. They are not being really aggressive due to my past history with renal failure & I also have a clotting problem w/ ports/piccs (hence the reason for holding off till necessary)
The course of action for me was 7 mos on IV's Cefoxiton (sp) inhaled Amikasin & oral Clarithromycin .. After the seven mos. of IV, I continued w/ the inhaled & oral. It has been well over a year of them.. As far as my health goes , I am holding my own so I am happy with that ...
If you want to talk to me PM me.. I will give you my #.. Take care & hang in <img src="i/expressions/heart.gif" border="0"> joni
Hi Mary,
<br />
<br /> I was dxd w/ Mycobacterium Abscessus over 2 yrs ago... Like you I was scared, freaked out, you name it. I did exactly what you are doing. Reached out to others here w/ it.. I even got some phone #'s of ppl and spoke to them about it.. It did help.
<br />
<br />At first my drs. didnt treat it & that worried me but I put my faith in them that they knew what they were doing.. I go to a center in Manhattan & I also go to Denver National Jewish in Colorado every 6 mos. The drs decided to "go after it" due to changes in my lungs .. They are not being really aggressive due to my past history with renal failure & I also have a clotting problem w/ ports/piccs (hence the reason for holding off till necessary)
<br />
<br />The course of action for me was 7 mos on IV's Cefoxiton (sp) inhaled Amikasin & oral Clarithromycin .. After the seven mos. of IV, I continued w/ the inhaled & oral. It has been well over a year of them.. As far as my health goes , I am holding my own so I am happy with that ...
<br />
<br /> If you want to talk to me PM me.. I will give you my #.. Take care & hang in <img src="i/expressions/heart.gif" border="0"> joni
<br />
<br /> I was dxd w/ Mycobacterium Abscessus over 2 yrs ago... Like you I was scared, freaked out, you name it. I did exactly what you are doing. Reached out to others here w/ it.. I even got some phone #'s of ppl and spoke to them about it.. It did help.
<br />
<br />At first my drs. didnt treat it & that worried me but I put my faith in them that they knew what they were doing.. I go to a center in Manhattan & I also go to Denver National Jewish in Colorado every 6 mos. The drs decided to "go after it" due to changes in my lungs .. They are not being really aggressive due to my past history with renal failure & I also have a clotting problem w/ ports/piccs (hence the reason for holding off till necessary)
<br />
<br />The course of action for me was 7 mos on IV's Cefoxiton (sp) inhaled Amikasin & oral Clarithromycin .. After the seven mos. of IV, I continued w/ the inhaled & oral. It has been well over a year of them.. As far as my health goes , I am holding my own so I am happy with that ...
<br />
<br /> If you want to talk to me PM me.. I will give you my #.. Take care & hang in <img src="i/expressions/heart.gif" border="0"> joni
W
windex125
Guest
Dear BelEAche I see you are 58 with MAC I am 55 and tested postive for MAC more than 5yrs ago, but was not treated immediately for it? big mistake I now show only one lung on my xray the right side is completely diseased with MAC I finally did get treatment 3 different oral meds it set it back somewhat, but my pfts are now only 40-50% I only started posting on here last month I would read and get confused as everyone seems so knowledgeable with their numbers and I do not even understand alot of the abbreviations used? Maybe being in denial has helped me somewhat? My doctor in Manhattan mentioned Denver to me yrs ago and I said come on we are in NY there is no one here, I do not fly? But I am amazed you did IV meds for 7mts? I am assuming of course you have a port? I see yr. post was one from a few mts ago I hope you ck back and look at this. I am so curious abt yr. treatment and how you are doing, since we seem to be in the older age bracket?
W
windex125
Guest
Dear BelEAche I see you are 58 with MAC I am 55 and tested postive for MAC more than 5yrs ago, but was not treated immediately for it? big mistake I now show only one lung on my xray the right side is completely diseased with MAC I finally did get treatment 3 different oral meds it set it back somewhat, but my pfts are now only 40-50% I only started posting on here last month I would read and get confused as everyone seems so knowledgeable with their numbers and I do not even understand alot of the abbreviations used? Maybe being in denial has helped me somewhat? My doctor in Manhattan mentioned Denver to me yrs ago and I said come on we are in NY there is no one here, I do not fly? But I am amazed you did IV meds for 7mts? I am assuming of course you have a port? I see yr. post was one from a few mts ago I hope you ck back and look at this. I am so curious abt yr. treatment and how you are doing, since we seem to be in the older age bracket?
W
windex125
Guest
Dear BelEAche I see you are 58 with MAC I am 55 and tested postive for MAC more than 5yrs ago, but was not treated immediately for it? big mistake I now show only one lung on my xray the right side is completely diseased with MAC I finally did get treatment 3 different oral meds it set it back somewhat, but my pfts are now only 40-50% I only started posting on here last month I would read and get confused as everyone seems so knowledgeable with their numbers and I do not even understand alot of the abbreviations used? Maybe being in denial has helped me somewhat? My doctor in Manhattan mentioned Denver to me yrs ago and I said come on we are in NY there is no one here, I do not fly? But I am amazed you did IV meds for 7mts? I am assuming of course you have a port? I see yr. post was one from a few mts ago I hope you ck back and look at this. I am so curious abt yr. treatment and how you are doing, since we seem to be in the older age bracket?
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>windex125</b></i>
Dear BelEAche I see you are 58 with MAC I am 55 and tested postive for MAC more than 5yrs ago, but was not treated immediately for it? big mistake I now show only one lung on my xray the right side is completely diseased with MAC I finally did get treatment 3 different oral meds it set it back somewhat, but my pfts are now only 40-50% I only started posting on here last month I would read and get confused as everyone seems so knowledgeable with their numbers and I do not even understand alot of the abbreviations used? Maybe being in denial has helped me somewhat? My doctor in Manhattan mentioned Denver to me yrs ago and I said come on we are in NY there is no one here, I do not fly? But I am amazed you did IV meds for 7mts? I am assuming of course you have a port? I see yr. post was one from a few mts ago I hope you ck back and look at this. I am so curious abt yr. treatment and how you are doing, since we seem to be in the older age bracket?</end quote></div>
Hi Windex,
First off , dont be put off by anything you read & dont quite understand. It took me a long time to understand what ppl are saying & sometimes I still get confused lol
What center do you go to in Manhattan ?? Have your drs. considered removing the lung ?? I know some ppl living & doing well with one lung ..
I am doing well & like Mallory said, I go to healing masses when able & believe that the last one has made a difference for me.. we will see <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have a strong faith in God that helps me to cope when it gets rough..
I will be heading back to Denver National Jewish for my 6 mos check up & am expecting to go back on IV's , may even have to before that visit in Oct.. I will blog about it after I return .. so check out my blog in November..
If you have any questions please PM me. I will be glad to help in whatever way I can..
Take care <img src="i/expressions/heart.gif" border="0"> joni
Dear BelEAche I see you are 58 with MAC I am 55 and tested postive for MAC more than 5yrs ago, but was not treated immediately for it? big mistake I now show only one lung on my xray the right side is completely diseased with MAC I finally did get treatment 3 different oral meds it set it back somewhat, but my pfts are now only 40-50% I only started posting on here last month I would read and get confused as everyone seems so knowledgeable with their numbers and I do not even understand alot of the abbreviations used? Maybe being in denial has helped me somewhat? My doctor in Manhattan mentioned Denver to me yrs ago and I said come on we are in NY there is no one here, I do not fly? But I am amazed you did IV meds for 7mts? I am assuming of course you have a port? I see yr. post was one from a few mts ago I hope you ck back and look at this. I am so curious abt yr. treatment and how you are doing, since we seem to be in the older age bracket?</end quote></div>
Hi Windex,
First off , dont be put off by anything you read & dont quite understand. It took me a long time to understand what ppl are saying & sometimes I still get confused lol
What center do you go to in Manhattan ?? Have your drs. considered removing the lung ?? I know some ppl living & doing well with one lung ..
I am doing well & like Mallory said, I go to healing masses when able & believe that the last one has made a difference for me.. we will see <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have a strong faith in God that helps me to cope when it gets rough..
I will be heading back to Denver National Jewish for my 6 mos check up & am expecting to go back on IV's , may even have to before that visit in Oct.. I will blog about it after I return .. so check out my blog in November..
If you have any questions please PM me. I will be glad to help in whatever way I can..
Take care <img src="i/expressions/heart.gif" border="0"> joni
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>windex125</b></i>
Dear BelEAche I see you are 58 with MAC I am 55 and tested postive for MAC more than 5yrs ago, but was not treated immediately for it? big mistake I now show only one lung on my xray the right side is completely diseased with MAC I finally did get treatment 3 different oral meds it set it back somewhat, but my pfts are now only 40-50% I only started posting on here last month I would read and get confused as everyone seems so knowledgeable with their numbers and I do not even understand alot of the abbreviations used? Maybe being in denial has helped me somewhat? My doctor in Manhattan mentioned Denver to me yrs ago and I said come on we are in NY there is no one here, I do not fly? But I am amazed you did IV meds for 7mts? I am assuming of course you have a port? I see yr. post was one from a few mts ago I hope you ck back and look at this. I am so curious abt yr. treatment and how you are doing, since we seem to be in the older age bracket?</end quote>
Hi Windex,
First off , dont be put off by anything you read & dont quite understand. It took me a long time to understand what ppl are saying & sometimes I still get confused lol
What center do you go to in Manhattan ?? Have your drs. considered removing the lung ?? I know some ppl living & doing well with one lung ..
I am doing well & like Mallory said, I go to healing masses when able & believe that the last one has made a difference for me.. we will see <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have a strong faith in God that helps me to cope when it gets rough..
I will be heading back to Denver National Jewish for my 6 mos check up & am expecting to go back on IV's , may even have to before that visit in Oct.. I will blog about it after I return .. so check out my blog in November..
If you have any questions please PM me. I will be glad to help in whatever way I can..
Take care <img src="i/expressions/heart.gif" border="0"> joni
Dear BelEAche I see you are 58 with MAC I am 55 and tested postive for MAC more than 5yrs ago, but was not treated immediately for it? big mistake I now show only one lung on my xray the right side is completely diseased with MAC I finally did get treatment 3 different oral meds it set it back somewhat, but my pfts are now only 40-50% I only started posting on here last month I would read and get confused as everyone seems so knowledgeable with their numbers and I do not even understand alot of the abbreviations used? Maybe being in denial has helped me somewhat? My doctor in Manhattan mentioned Denver to me yrs ago and I said come on we are in NY there is no one here, I do not fly? But I am amazed you did IV meds for 7mts? I am assuming of course you have a port? I see yr. post was one from a few mts ago I hope you ck back and look at this. I am so curious abt yr. treatment and how you are doing, since we seem to be in the older age bracket?</end quote>
Hi Windex,
First off , dont be put off by anything you read & dont quite understand. It took me a long time to understand what ppl are saying & sometimes I still get confused lol
What center do you go to in Manhattan ?? Have your drs. considered removing the lung ?? I know some ppl living & doing well with one lung ..
I am doing well & like Mallory said, I go to healing masses when able & believe that the last one has made a difference for me.. we will see <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have a strong faith in God that helps me to cope when it gets rough..
I will be heading back to Denver National Jewish for my 6 mos check up & am expecting to go back on IV's , may even have to before that visit in Oct.. I will blog about it after I return .. so check out my blog in November..
If you have any questions please PM me. I will be glad to help in whatever way I can..
Take care <img src="i/expressions/heart.gif" border="0"> joni
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>windex125</b></i>
<br />
<br />Dear BelEAche I see you are 58 with MAC I am 55 and tested postive for MAC more than 5yrs ago, but was not treated immediately for it? big mistake I now show only one lung on my xray the right side is completely diseased with MAC I finally did get treatment 3 different oral meds it set it back somewhat, but my pfts are now only 40-50% I only started posting on here last month I would read and get confused as everyone seems so knowledgeable with their numbers and I do not even understand alot of the abbreviations used? Maybe being in denial has helped me somewhat? My doctor in Manhattan mentioned Denver to me yrs ago and I said come on we are in NY there is no one here, I do not fly? But I am amazed you did IV meds for 7mts? I am assuming of course you have a port? I see yr. post was one from a few mts ago I hope you ck back and look at this. I am so curious abt yr. treatment and how you are doing, since we seem to be in the older age bracket?</end quote>
<br />
<br />
<br />
<br />Hi Windex,
<br />
<br /> First off , dont be put off by anything you read & dont quite understand. It took me a long time to understand what ppl are saying & sometimes I still get confused lol
<br />
<br /> What center do you go to in Manhattan ?? Have your drs. considered removing the lung ?? I know some ppl living & doing well with one lung ..
<br />
<br /> I am doing well & like Mallory said, I go to healing masses when able & believe that the last one has made a difference for me.. we will see <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have a strong faith in God that helps me to cope when it gets rough..
<br />
<br /> I will be heading back to Denver National Jewish for my 6 mos check up & am expecting to go back on IV's , may even have to before that visit in Oct.. I will blog about it after I return .. so check out my blog in November..
<br />
<br /> If you have any questions please PM me. I will be glad to help in whatever way I can..
<br />
<br /> Take care <img src="i/expressions/heart.gif" border="0"> joni
<br />
<br />Dear BelEAche I see you are 58 with MAC I am 55 and tested postive for MAC more than 5yrs ago, but was not treated immediately for it? big mistake I now show only one lung on my xray the right side is completely diseased with MAC I finally did get treatment 3 different oral meds it set it back somewhat, but my pfts are now only 40-50% I only started posting on here last month I would read and get confused as everyone seems so knowledgeable with their numbers and I do not even understand alot of the abbreviations used? Maybe being in denial has helped me somewhat? My doctor in Manhattan mentioned Denver to me yrs ago and I said come on we are in NY there is no one here, I do not fly? But I am amazed you did IV meds for 7mts? I am assuming of course you have a port? I see yr. post was one from a few mts ago I hope you ck back and look at this. I am so curious abt yr. treatment and how you are doing, since we seem to be in the older age bracket?</end quote>
<br />
<br />
<br />
<br />Hi Windex,
<br />
<br /> First off , dont be put off by anything you read & dont quite understand. It took me a long time to understand what ppl are saying & sometimes I still get confused lol
<br />
<br /> What center do you go to in Manhattan ?? Have your drs. considered removing the lung ?? I know some ppl living & doing well with one lung ..
<br />
<br /> I am doing well & like Mallory said, I go to healing masses when able & believe that the last one has made a difference for me.. we will see <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have a strong faith in God that helps me to cope when it gets rough..
<br />
<br /> I will be heading back to Denver National Jewish for my 6 mos check up & am expecting to go back on IV's , may even have to before that visit in Oct.. I will blog about it after I return .. so check out my blog in November..
<br />
<br /> If you have any questions please PM me. I will be glad to help in whatever way I can..
<br />
<br /> Take care <img src="i/expressions/heart.gif" border="0"> joni