Justinsmom
New member
<P>Hi,</P>
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<P>My 7 year old son is going through the process of being diagnosed. He has minimal pancreatic function (fecal elastase was down to 25, stopped checking) and is on enzymes now. One "rare" mutation was found, but we will be repeated with Ambry to look for the second. We will see the CF clinic at CHOP in late November. My question is, for the past month or so, he has had "cold symptoms". It started with what I thought was an asthma cough (responded to inhaler) but his ped said his lungs sounded fine. This lasted about two weeks or so with two "major" coughing episodes. The pulmonolost nurse thought maybe post nasal drip was causing it. He then started with runny nose and congestion that turned thick and yellowish. He has had this part almost three weeks. It has been over a month in total. Still coughing somewhat when running around and still the thick nasal mucus. Does this sound like a "normal cold" or something CF related? He has mild asthma treated by singular and occassional inhaler. We have an appointment with ped on Friday but just curous if anyone else has had a similar experience. His pancreatic issues came on so quickly (drop from fecal elastase level of 148 to 25 within 5 1/2 months) that any changes scare me. His body mass index dropped below 3% before his regular GI realized that there was truly something wrong with him. </P>
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<P>Thank you in advance.</P>
<P> </P>
<P>Josette in PA</P>
<P> </P>
<P>My 7 year old son is going through the process of being diagnosed. He has minimal pancreatic function (fecal elastase was down to 25, stopped checking) and is on enzymes now. One "rare" mutation was found, but we will be repeated with Ambry to look for the second. We will see the CF clinic at CHOP in late November. My question is, for the past month or so, he has had "cold symptoms". It started with what I thought was an asthma cough (responded to inhaler) but his ped said his lungs sounded fine. This lasted about two weeks or so with two "major" coughing episodes. The pulmonolost nurse thought maybe post nasal drip was causing it. He then started with runny nose and congestion that turned thick and yellowish. He has had this part almost three weeks. It has been over a month in total. Still coughing somewhat when running around and still the thick nasal mucus. Does this sound like a "normal cold" or something CF related? He has mild asthma treated by singular and occassional inhaler. We have an appointment with ped on Friday but just curous if anyone else has had a similar experience. His pancreatic issues came on so quickly (drop from fecal elastase level of 148 to 25 within 5 1/2 months) that any changes scare me. His body mass index dropped below 3% before his regular GI realized that there was truly something wrong with him. </P>
<P> </P>
<P>Thank you in advance.</P>
<P> </P>
<P>Josette in PA</P>