Purplelungz
New member
its may
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National CF Awareness Month...
- Thread starter ej0820
- Start date
Purplelungz
New member
its may
thefrogprincess
New member
Its May, that's why most of the Gret Strides walks are in May.
thefrogprincess
New member
Its May, that's why most of the Gret Strides walks are in May.
littledebbie
New member
What?!?!?! We have CF?!!!? *Gasp, looks around accusingly*
...no one tells me anything around here.......
...no one tells me anything around here.......
littledebbie
New member
What?!?!?! We have CF?!!!? *Gasp, looks around accusingly*
...no one tells me anything around here.......
...no one tells me anything around here.......
<blockquote>Quote<br><hr>I have a question. What's the point of a CF awareness month, if no one but the CF community really knows about it? We are already aware.<hr></blockquote>
i cracked up laughing when i saw that. it reminded me of perths pathetic fundraising events. the only people who show up are the cfers, their parents and close friends! no one from outside the cf community ever shows up.
<blockquote>Quote<br><hr>Do they actually post this information anywhere important (i.e. newspapers, TV, schools, government buildings, etc)? I hope so.<hr></blockquote>
there is no advertising here. no tv ads, no radio ads, no magazine ads, no flyers, no telemarketing, not even any information pamphlets when someone makes a coin donation to the people with tins. people just think 'hmm cf whats that? oh well its a charity i may as well stick my change in there. ho hum'. not even any advertising in the hospital. even when you try to make people aware we are just met with weird stares and the 'i feel sorry for you but at the end of the day i dont give a damn' attitude.
i cracked up laughing when i saw that. it reminded me of perths pathetic fundraising events. the only people who show up are the cfers, their parents and close friends! no one from outside the cf community ever shows up.
<blockquote>Quote<br><hr>Do they actually post this information anywhere important (i.e. newspapers, TV, schools, government buildings, etc)? I hope so.<hr></blockquote>
there is no advertising here. no tv ads, no radio ads, no magazine ads, no flyers, no telemarketing, not even any information pamphlets when someone makes a coin donation to the people with tins. people just think 'hmm cf whats that? oh well its a charity i may as well stick my change in there. ho hum'. not even any advertising in the hospital. even when you try to make people aware we are just met with weird stares and the 'i feel sorry for you but at the end of the day i dont give a damn' attitude.
<blockquote>Quote<br><hr>I have a question. What's the point of a CF awareness month, if no one but the CF community really knows about it? We are already aware.<hr></blockquote>
i cracked up laughing when i saw that. it reminded me of perths pathetic fundraising events. the only people who show up are the cfers, their parents and close friends! no one from outside the cf community ever shows up.
<blockquote>Quote<br><hr>Do they actually post this information anywhere important (i.e. newspapers, TV, schools, government buildings, etc)? I hope so.<hr></blockquote>
there is no advertising here. no tv ads, no radio ads, no magazine ads, no flyers, no telemarketing, not even any information pamphlets when someone makes a coin donation to the people with tins. people just think 'hmm cf whats that? oh well its a charity i may as well stick my change in there. ho hum'. not even any advertising in the hospital. even when you try to make people aware we are just met with weird stares and the 'i feel sorry for you but at the end of the day i dont give a damn' attitude.
i cracked up laughing when i saw that. it reminded me of perths pathetic fundraising events. the only people who show up are the cfers, their parents and close friends! no one from outside the cf community ever shows up.
<blockquote>Quote<br><hr>Do they actually post this information anywhere important (i.e. newspapers, TV, schools, government buildings, etc)? I hope so.<hr></blockquote>
there is no advertising here. no tv ads, no radio ads, no magazine ads, no flyers, no telemarketing, not even any information pamphlets when someone makes a coin donation to the people with tins. people just think 'hmm cf whats that? oh well its a charity i may as well stick my change in there. ho hum'. not even any advertising in the hospital. even when you try to make people aware we are just met with weird stares and the 'i feel sorry for you but at the end of the day i dont give a damn' attitude.
YES, everyone it is May.
I know because last year i started a fundraiser for 65roses day, which is held every year on the 26th May. There are many way's people can get involved in raising awareness and money for research. ie, crazy hair day at school/work, neighbourhood bbq, stalls, dinner dance, morning tea and cakes work/schools, pijama day work, schools. Just be creative!
Last year i raised $680, and i'm hoping to raise much more this year. I also attended a CF ball, held to raise money and tickets were $100 each as well as money for raffles. That night we raised $10 000, thanks to all the people who attended.<img src="i/expressions/face-icon-small-happy.gif" border="0">.
I also think there is not enough awareness out there. I know because i was never aware of it until my daughter was diagnoesd late 2004, that is when i bacame aware and began in the fundraising efforts and also organised coffee mornings, for mums with chidren w/cf. This was so that we could get together and talk to each other about what we were experiencing, with our chidren and them having CF. I felt that talking to family wasn't good enough as, they never understood the full extent of things. Thay just kept saying it will go away, and that used to realy give me the s**ts. We now get together on a regular bases without our chn, dah!
Anyway hope this helps
Eli
I know because last year i started a fundraiser for 65roses day, which is held every year on the 26th May. There are many way's people can get involved in raising awareness and money for research. ie, crazy hair day at school/work, neighbourhood bbq, stalls, dinner dance, morning tea and cakes work/schools, pijama day work, schools. Just be creative!
Last year i raised $680, and i'm hoping to raise much more this year. I also attended a CF ball, held to raise money and tickets were $100 each as well as money for raffles. That night we raised $10 000, thanks to all the people who attended.<img src="i/expressions/face-icon-small-happy.gif" border="0">.
I also think there is not enough awareness out there. I know because i was never aware of it until my daughter was diagnoesd late 2004, that is when i bacame aware and began in the fundraising efforts and also organised coffee mornings, for mums with chidren w/cf. This was so that we could get together and talk to each other about what we were experiencing, with our chidren and them having CF. I felt that talking to family wasn't good enough as, they never understood the full extent of things. Thay just kept saying it will go away, and that used to realy give me the s**ts. We now get together on a regular bases without our chn, dah!
Anyway hope this helps
Eli
YES, everyone it is May.
I know because last year i started a fundraiser for 65roses day, which is held every year on the 26th May. There are many way's people can get involved in raising awareness and money for research. ie, crazy hair day at school/work, neighbourhood bbq, stalls, dinner dance, morning tea and cakes work/schools, pijama day work, schools. Just be creative!
Last year i raised $680, and i'm hoping to raise much more this year. I also attended a CF ball, held to raise money and tickets were $100 each as well as money for raffles. That night we raised $10 000, thanks to all the people who attended.<img src="i/expressions/face-icon-small-happy.gif" border="0">.
I also think there is not enough awareness out there. I know because i was never aware of it until my daughter was diagnoesd late 2004, that is when i bacame aware and began in the fundraising efforts and also organised coffee mornings, for mums with chidren w/cf. This was so that we could get together and talk to each other about what we were experiencing, with our chidren and them having CF. I felt that talking to family wasn't good enough as, they never understood the full extent of things. Thay just kept saying it will go away, and that used to realy give me the s**ts. We now get together on a regular bases without our chn, dah!
Anyway hope this helps
Eli
I know because last year i started a fundraiser for 65roses day, which is held every year on the 26th May. There are many way's people can get involved in raising awareness and money for research. ie, crazy hair day at school/work, neighbourhood bbq, stalls, dinner dance, morning tea and cakes work/schools, pijama day work, schools. Just be creative!
Last year i raised $680, and i'm hoping to raise much more this year. I also attended a CF ball, held to raise money and tickets were $100 each as well as money for raffles. That night we raised $10 000, thanks to all the people who attended.<img src="i/expressions/face-icon-small-happy.gif" border="0">.
I also think there is not enough awareness out there. I know because i was never aware of it until my daughter was diagnoesd late 2004, that is when i bacame aware and began in the fundraising efforts and also organised coffee mornings, for mums with chidren w/cf. This was so that we could get together and talk to each other about what we were experiencing, with our chidren and them having CF. I felt that talking to family wasn't good enough as, they never understood the full extent of things. Thay just kept saying it will go away, and that used to realy give me the s**ts. We now get together on a regular bases without our chn, dah!
Anyway hope this helps
Eli