Natuaral Treataments - Recommendations?

[anonymous]

Can anyone give any input on natural treatments or little known treatments for any CF element, be it chest, digestion etc
I have read reports on various supplements.
- High Dose Omega Oils
- Curicum
- Glutathione
- Zinc

Has anyone tried these and monitored their effectiveness?
Can anyone recommend anything else, and can back up the supplement success with information?

Thanks

Rick

 

[HollyCatheryn]

I've got a few of the tame ones on <A href="http://www.geocities.com/MurrensNatureMama/wellness">www.geocities.com/MurrensNatureMama/wellness</A> A number of people advocate reducing or cutting out use of dairy products for people with CF - for a few reasons. It can cause increased mucus production and unless you buy organic it contains variying amounts of hormones, pesticides and antibiotics given to the cows or put on the things that they graze on.Juicing lots of fruits and veggies is also recommended for a few reasons - Raw foods contain lots of necessary vitamins and minerals in larger quantities than cooked foods. Raw foods also contain enzymes that help the body digest them and other foods we eat, which aids the north end of the CF gut. Juicing it breaks up the fibers so that the nutrients are more easily digested and this also helps the south end of the gut.In my experience, boosting nutrition is the best foundation for a healthy immune system and that preserves pulmonary health. I use Reliv (<A href="http://www.geocities.com/MurrensNatureMama/Reliv">www.geocities.com/MurrensNatureMama/Reliv</A>) to cover the bases and then add on top the herbs and oils that I need on occassion. You can so a sinus wash with Grapefruit Seed Extract (if you are post transplant you might substitute with Tea Tree Oil) which kills pseudomonas and just about every other bacteria and fungus. If used in high enough concentrations often enough you will experience the same side-effects as with antibiotics because of this. Using natural cleaning products in place of chemicals can also improve your lung health by causing less stress. I am not really well versed in the alternative stuff, but as I posted on another thread, the best book I've found is "Presctiptions for Nutritional Healing" and it's companion "Prescriptions for Herbal Healing" by Balch and Balch. They are well-known and respected in the nutritional and medical community. It is easy to use and tell you how to prepare therapies and recommends the optimum preparations as well as cautions.

 

[anonymous]

Good suggestions Holly.

 

[Bill]

Rick
I am a father to a 46 year old male w/cf. Over the years, I occassionally find some things I believe my son should try/look into. However, since parents never know anything, he has yet tried any item. Try going to www.glyco-facts.com. I recently read something there, that I found interesting. Naturally, my son won't even bother reading it or listening to me. I'll quote a few comments from them and you can do what you like with the info. "Clinical Symptom Changes in Cystic Fibrosis Patients who Supplemented their Diets with Glyconutrients. 81 of 95 respondents to the survey (85.3%) indicated a change in clinical symptoms after the introduction of glyconutrionals into their diet. 72.5% reported improved lung symptoms, and 81.1% reported improved digestive symptoms...." I know I'm a very old parent and obviously don't know as much as my son, but I would be interested in what someone else might think? If you or anyone else on the board try it, please let us all know what you think. Bill

 

[anonymous]

My son went yesterday to enroll in a new study and I asked the dr/researcher about glyconutrients and he said he had no problem with his patients trying things to make them feel better. His only concern was with the safety of the products and the product control- this might not make sense-in other words that you know exactly what you are getting and that you get the same thing each time. I have mixed feelings- I would love for him to try it if it would help but I dont want to do any harm.

 

[anonymous]

Here are some links to sites with some info that you may/may not find helpful:

GSH
<a target=new class=ftalternatingbarlinklarge href="http://members5.boardhost.com/CFGSH/
">http://members5.boardhost.com/CFGSH/
</a>
General Info (be sure to check in the Files section):
<a target=new class=ftalternatingbarlinklarge href="http://health.groups.yahoo.com/group/CFNutrition/?yguid=156625931">http://health.groups.yahoo.com/group/CFNutrition/?yguid=156625931</a>
&
www.sharktank.org

Good Luck!

 

[WinAce]

<blockquote>Quote<br><hr><i>Originally posted by: <b>Bill</b></i><br>I'll quote a few comments from them and you can do what you like with the info. "Clinical Symptom Changes in Cystic Fibrosis Patients who Supplemented their Diets with Glyconutrients. 81 of 95 respondents to the survey (85.3%) indicated a change in clinical symptoms after the introduction of glyconutrionals into their diet. 72.5% reported improved lung symptoms, and 81.1% reported improved digestive symptoms...." I know I'm a very old parent and obviously don't know as much as my son, but I would be interested in what someone else might think?<hr></blockquote>

What, if any, control group was present? Most people will report an improvement of some sort, even with a placebo. Obviously, we need to test how much improvement was reported <i>above</i> that you'd get with a useless treatment.