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Natural Remidies/Cures for CF?? is it out there?
- Thread starter BaggedCereals
- Start date
Scarlett81
New member
There's many natural/supplement dietary things that can help with your cf. None of them are a cure-they just help with it.
Like Amy said, NAC is great. I have been taking NAC for 2 years (i stopped since pregnancy), glutathione too definately helped me -but it doesnt help everyone. Taking good multi vitamins, having a diet high in vegetables, juicing when I start to feel run down or sick has 100% helped me avoid an exacerbation many times. I also see a doctor of homeopathy who specializes in herbs and dietary aids.
These things I do to supplement my medical care-I am religious with my therapies and inhaled meds and other meds when they are needed. There is no substitute for the meds the cf foundation and our docs reccomend. But these natural alternatives are extremely helpful and many of them do work, depending on the person and body type. I also feel that each body is different and what works for one won't work for all. That happens with meds too.
Like Amy said, NAC is great. I have been taking NAC for 2 years (i stopped since pregnancy), glutathione too definately helped me -but it doesnt help everyone. Taking good multi vitamins, having a diet high in vegetables, juicing when I start to feel run down or sick has 100% helped me avoid an exacerbation many times. I also see a doctor of homeopathy who specializes in herbs and dietary aids.
These things I do to supplement my medical care-I am religious with my therapies and inhaled meds and other meds when they are needed. There is no substitute for the meds the cf foundation and our docs reccomend. But these natural alternatives are extremely helpful and many of them do work, depending on the person and body type. I also feel that each body is different and what works for one won't work for all. That happens with meds too.
Scarlett81
New member
There's many natural/supplement dietary things that can help with your cf. None of them are a cure-they just help with it.
Like Amy said, NAC is great. I have been taking NAC for 2 years (i stopped since pregnancy), glutathione too definately helped me -but it doesnt help everyone. Taking good multi vitamins, having a diet high in vegetables, juicing when I start to feel run down or sick has 100% helped me avoid an exacerbation many times. I also see a doctor of homeopathy who specializes in herbs and dietary aids.
These things I do to supplement my medical care-I am religious with my therapies and inhaled meds and other meds when they are needed. There is no substitute for the meds the cf foundation and our docs reccomend. But these natural alternatives are extremely helpful and many of them do work, depending on the person and body type. I also feel that each body is different and what works for one won't work for all. That happens with meds too.
Like Amy said, NAC is great. I have been taking NAC for 2 years (i stopped since pregnancy), glutathione too definately helped me -but it doesnt help everyone. Taking good multi vitamins, having a diet high in vegetables, juicing when I start to feel run down or sick has 100% helped me avoid an exacerbation many times. I also see a doctor of homeopathy who specializes in herbs and dietary aids.
These things I do to supplement my medical care-I am religious with my therapies and inhaled meds and other meds when they are needed. There is no substitute for the meds the cf foundation and our docs reccomend. But these natural alternatives are extremely helpful and many of them do work, depending on the person and body type. I also feel that each body is different and what works for one won't work for all. That happens with meds too.
Scarlett81
New member
There's many natural/supplement dietary things that can help with your cf. None of them are a cure-they just help with it.
Like Amy said, NAC is great. I have been taking NAC for 2 years (i stopped since pregnancy), glutathione too definately helped me -but it doesnt help everyone. Taking good multi vitamins, having a diet high in vegetables, juicing when I start to feel run down or sick has 100% helped me avoid an exacerbation many times. I also see a doctor of homeopathy who specializes in herbs and dietary aids.
These things I do to supplement my medical care-I am religious with my therapies and inhaled meds and other meds when they are needed. There is no substitute for the meds the cf foundation and our docs reccomend. But these natural alternatives are extremely helpful and many of them do work, depending on the person and body type. I also feel that each body is different and what works for one won't work for all. That happens with meds too.
Like Amy said, NAC is great. I have been taking NAC for 2 years (i stopped since pregnancy), glutathione too definately helped me -but it doesnt help everyone. Taking good multi vitamins, having a diet high in vegetables, juicing when I start to feel run down or sick has 100% helped me avoid an exacerbation many times. I also see a doctor of homeopathy who specializes in herbs and dietary aids.
These things I do to supplement my medical care-I am religious with my therapies and inhaled meds and other meds when they are needed. There is no substitute for the meds the cf foundation and our docs reccomend. But these natural alternatives are extremely helpful and many of them do work, depending on the person and body type. I also feel that each body is different and what works for one won't work for all. That happens with meds too.
Scarlett81
New member
not at all to start a controversy-but just to show you hwo you need to do the research and find the right people to help you-
I had my doctor of homeopathy tell me about nac 2-3 yrs ago and researched it on my own and really thought it seemed to make sense. I mentioned it to a doctor and they laughed at me and completely talked down to me, telling me how useless it was and ridiculous I was for taking it.
Now there are many cf docs saying it is promising like amy said. So you really need to look into things on your own and decide if it seems right for you or not.
I had my doctor of homeopathy tell me about nac 2-3 yrs ago and researched it on my own and really thought it seemed to make sense. I mentioned it to a doctor and they laughed at me and completely talked down to me, telling me how useless it was and ridiculous I was for taking it.
Now there are many cf docs saying it is promising like amy said. So you really need to look into things on your own and decide if it seems right for you or not.
Scarlett81
New member
not at all to start a controversy-but just to show you hwo you need to do the research and find the right people to help you-
I had my doctor of homeopathy tell me about nac 2-3 yrs ago and researched it on my own and really thought it seemed to make sense. I mentioned it to a doctor and they laughed at me and completely talked down to me, telling me how useless it was and ridiculous I was for taking it.
Now there are many cf docs saying it is promising like amy said. So you really need to look into things on your own and decide if it seems right for you or not.
I had my doctor of homeopathy tell me about nac 2-3 yrs ago and researched it on my own and really thought it seemed to make sense. I mentioned it to a doctor and they laughed at me and completely talked down to me, telling me how useless it was and ridiculous I was for taking it.
Now there are many cf docs saying it is promising like amy said. So you really need to look into things on your own and decide if it seems right for you or not.
Scarlett81
New member
not at all to start a controversy-but just to show you hwo you need to do the research and find the right people to help you-
I had my doctor of homeopathy tell me about nac 2-3 yrs ago and researched it on my own and really thought it seemed to make sense. I mentioned it to a doctor and they laughed at me and completely talked down to me, telling me how useless it was and ridiculous I was for taking it.
Now there are many cf docs saying it is promising like amy said. So you really need to look into things on your own and decide if it seems right for you or not.
I had my doctor of homeopathy tell me about nac 2-3 yrs ago and researched it on my own and really thought it seemed to make sense. I mentioned it to a doctor and they laughed at me and completely talked down to me, telling me how useless it was and ridiculous I was for taking it.
Now there are many cf docs saying it is promising like amy said. So you really need to look into things on your own and decide if it seems right for you or not.
Alot of what Christian and others have said rings true for us in the care we choose for our son. While I would be careful of anyone tauting a "cure" I do believe with natural support and complimentary care, traditional CF care can be enhanced or greatly improved. This for us includes diet, supplements like GSH, tumeric, DHA and whole foods vitamins, and utilizing other healing modalities which offer ways to balance the bodies energy system such as acupuncture, reiki, breath work, chiropractic, qigong ect. While our son is too young to need much of the latter, I do not see these things as "alternative" to traditional approaches to CF care. I see them as complimentary and necessary for proper health and well-being (not just for CF people). I feel the current medical model for allopathic medicine to be rather flat in the way they see the body/person. It is as if the allopathic viewpoint sees the "earth is flat" while other healing systems (which are 1000's of years along) like traditional chinese and ayurvedic medicine tend to see the body in a much more complete way. I think this is slowly changing and people are beginning to demand more from their physicians regarding natural healing methods. We see this at the Cleveland Clinic and other internationally renowned hospitals and research facilities. They have an integrative practice which works with patients who have cancer, diabetes, chrohns, and other chronic diseases to establish more expanded health care plan which often includes acupuncture, reiki, visualization, yogic breath work and more. You can not get in to save your life and they have added 6 acupuncturists in a 1-2 year period. So, I see CF care potentially encompassing these very well researched methods in the future - hopefully within the clinic model.
This is not weird, pseudo science. It is here for those willing to do research and expand their idea of health for themselves and their families. Carefully chosen professionals who understand this more expanded idea of health can be wonderful expansion to CF clinic care. They are not mutually exclusive.
Warmly,
This is not weird, pseudo science. It is here for those willing to do research and expand their idea of health for themselves and their families. Carefully chosen professionals who understand this more expanded idea of health can be wonderful expansion to CF clinic care. They are not mutually exclusive.
Warmly,
Alot of what Christian and others have said rings true for us in the care we choose for our son. While I would be careful of anyone tauting a "cure" I do believe with natural support and complimentary care, traditional CF care can be enhanced or greatly improved. This for us includes diet, supplements like GSH, tumeric, DHA and whole foods vitamins, and utilizing other healing modalities which offer ways to balance the bodies energy system such as acupuncture, reiki, breath work, chiropractic, qigong ect. While our son is too young to need much of the latter, I do not see these things as "alternative" to traditional approaches to CF care. I see them as complimentary and necessary for proper health and well-being (not just for CF people). I feel the current medical model for allopathic medicine to be rather flat in the way they see the body/person. It is as if the allopathic viewpoint sees the "earth is flat" while other healing systems (which are 1000's of years along) like traditional chinese and ayurvedic medicine tend to see the body in a much more complete way. I think this is slowly changing and people are beginning to demand more from their physicians regarding natural healing methods. We see this at the Cleveland Clinic and other internationally renowned hospitals and research facilities. They have an integrative practice which works with patients who have cancer, diabetes, chrohns, and other chronic diseases to establish more expanded health care plan which often includes acupuncture, reiki, visualization, yogic breath work and more. You can not get in to save your life and they have added 6 acupuncturists in a 1-2 year period. So, I see CF care potentially encompassing these very well researched methods in the future - hopefully within the clinic model.
This is not weird, pseudo science. It is here for those willing to do research and expand their idea of health for themselves and their families. Carefully chosen professionals who understand this more expanded idea of health can be wonderful expansion to CF clinic care. They are not mutually exclusive.
Warmly,
This is not weird, pseudo science. It is here for those willing to do research and expand their idea of health for themselves and their families. Carefully chosen professionals who understand this more expanded idea of health can be wonderful expansion to CF clinic care. They are not mutually exclusive.
Warmly,
Alot of what Christian and others have said rings true for us in the care we choose for our son. While I would be careful of anyone tauting a "cure" I do believe with natural support and complimentary care, traditional CF care can be enhanced or greatly improved. This for us includes diet, supplements like GSH, tumeric, DHA and whole foods vitamins, and utilizing other healing modalities which offer ways to balance the bodies energy system such as acupuncture, reiki, breath work, chiropractic, qigong ect. While our son is too young to need much of the latter, I do not see these things as "alternative" to traditional approaches to CF care. I see them as complimentary and necessary for proper health and well-being (not just for CF people). I feel the current medical model for allopathic medicine to be rather flat in the way they see the body/person. It is as if the allopathic viewpoint sees the "earth is flat" while other healing systems (which are 1000's of years along) like traditional chinese and ayurvedic medicine tend to see the body in a much more complete way. I think this is slowly changing and people are beginning to demand more from their physicians regarding natural healing methods. We see this at the Cleveland Clinic and other internationally renowned hospitals and research facilities. They have an integrative practice which works with patients who have cancer, diabetes, chrohns, and other chronic diseases to establish more expanded health care plan which often includes acupuncture, reiki, visualization, yogic breath work and more. You can not get in to save your life and they have added 6 acupuncturists in a 1-2 year period. So, I see CF care potentially encompassing these very well researched methods in the future - hopefully within the clinic model.
This is not weird, pseudo science. It is here for those willing to do research and expand their idea of health for themselves and their families. Carefully chosen professionals who understand this more expanded idea of health can be wonderful expansion to CF clinic care. They are not mutually exclusive.
Warmly,
This is not weird, pseudo science. It is here for those willing to do research and expand their idea of health for themselves and their families. Carefully chosen professionals who understand this more expanded idea of health can be wonderful expansion to CF clinic care. They are not mutually exclusive.
Warmly,
Jody, I agree 100%
Western medicine is focused mainly on symptomatic treatment, rather then preventative. There is a lot of literature out there on immune function and arganine, essential fatty acids, GSH. NAC, even sean and his oregano oil. There is plenty of research on these things, yet none of the cf centers implement these things because they aren't properly tested. I guess it's up to you to research these different things for yourself, and see if they are worth trying, because most likely, your doctors will not endorse them...<img src="i/expressions/face-icon-small-sad.gif" border="0">
Western medicine is focused mainly on symptomatic treatment, rather then preventative. There is a lot of literature out there on immune function and arganine, essential fatty acids, GSH. NAC, even sean and his oregano oil. There is plenty of research on these things, yet none of the cf centers implement these things because they aren't properly tested. I guess it's up to you to research these different things for yourself, and see if they are worth trying, because most likely, your doctors will not endorse them...<img src="i/expressions/face-icon-small-sad.gif" border="0">
Jody, I agree 100%
Western medicine is focused mainly on symptomatic treatment, rather then preventative. There is a lot of literature out there on immune function and arganine, essential fatty acids, GSH. NAC, even sean and his oregano oil. There is plenty of research on these things, yet none of the cf centers implement these things because they aren't properly tested. I guess it's up to you to research these different things for yourself, and see if they are worth trying, because most likely, your doctors will not endorse them...<img src="i/expressions/face-icon-small-sad.gif" border="0">
Western medicine is focused mainly on symptomatic treatment, rather then preventative. There is a lot of literature out there on immune function and arganine, essential fatty acids, GSH. NAC, even sean and his oregano oil. There is plenty of research on these things, yet none of the cf centers implement these things because they aren't properly tested. I guess it's up to you to research these different things for yourself, and see if they are worth trying, because most likely, your doctors will not endorse them...<img src="i/expressions/face-icon-small-sad.gif" border="0">
Jody, I agree 100%
Western medicine is focused mainly on symptomatic treatment, rather then preventative. There is a lot of literature out there on immune function and arganine, essential fatty acids, GSH. NAC, even sean and his oregano oil. There is plenty of research on these things, yet none of the cf centers implement these things because they aren't properly tested. I guess it's up to you to research these different things for yourself, and see if they are worth trying, because most likely, your doctors will not endorse them...<img src="i/expressions/face-icon-small-sad.gif" border="0">
Western medicine is focused mainly on symptomatic treatment, rather then preventative. There is a lot of literature out there on immune function and arganine, essential fatty acids, GSH. NAC, even sean and his oregano oil. There is plenty of research on these things, yet none of the cf centers implement these things because they aren't properly tested. I guess it's up to you to research these different things for yourself, and see if they are worth trying, because most likely, your doctors will not endorse them...<img src="i/expressions/face-icon-small-sad.gif" border="0">
lightNlife
New member
Even so, all those things are supplements, not stand-alone treatments.
lightNlife
New member
Even so, all those things are supplements, not stand-alone treatments.
lightNlife
New member
Even so, all those things are supplements, not stand-alone treatments.
Get a hobby is correct, most of the stuff you get at health food stores is crap. If you would like to try NAC and want to make sure you a getting what you paying for, ask your doctor to prescribe 20% mucomyst solution to get 1800 mg you would do 4.5 ml twice a day. If he's stubborn and won't go outside the box here is the link for the stuff they used in the Stanford study (<a target=_blank class=ftalternatingbarlinklarge href="http://www.bioadvantex.com/us/02_ghealth_pharmanac.asp">http://www.bioadvantex.com/us/02_ghealth_pharmanac.asp</a>).