I am a worried mom and I need advice. My one year old son has been going through a lot of tests. His hemoglobin levels are low and are to my understanding has nothing to do with iron. He has elevated Fetal hemoglobin levels. He is seeing a hematologist/oncologist to determine if he has bone marrow failure. He has been tested for fanconi anemia and we are still awaiting the results. He has lost a pound in two weeks adn the doctor has said he is failing to thrive, despite his hug appetite, and would to rule out Cystic Fibrosis so they are doing a sweat test on July 1. He has diahrea quite often and coughs a lot, but it is not always with phlem. My question to some of you more experienced parents is this: Can cystic fibrosis affect red blood cell counts? Does anybody know if an elevated fetal hemoglobin can be associated with CF? I am just so exhausted with all the testing and I feel like I have to constantly follow up with the doctors for fear that something may "slip through the cracks".
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Need advice
- Thread starter lydmc1
- Start date
I am a worried mom and I need advice. My one year old son has been going through a lot of tests. His hemoglobin levels are low and are to my understanding has nothing to do with iron. He has elevated Fetal hemoglobin levels. He is seeing a hematologist/oncologist to determine if he has bone marrow failure. He has been tested for fanconi anemia and we are still awaiting the results. He has lost a pound in two weeks adn the doctor has said he is failing to thrive, despite his hug appetite, and would to rule out Cystic Fibrosis so they are doing a sweat test on July 1. He has diahrea quite often and coughs a lot, but it is not always with phlem. My question to some of you more experienced parents is this: Can cystic fibrosis affect red blood cell counts? Does anybody know if an elevated fetal hemoglobin can be associated with CF? I am just so exhausted with all the testing and I feel like I have to constantly follow up with the doctors for fear that something may "slip through the cracks".
I am a worried mom and I need advice. My one year old son has been going through a lot of tests. His hemoglobin levels are low and are to my understanding has nothing to do with iron. He has elevated Fetal hemoglobin levels. He is seeing a hematologist/oncologist to determine if he has bone marrow failure. He has been tested for fanconi anemia and we are still awaiting the results. He has lost a pound in two weeks adn the doctor has said he is failing to thrive, despite his hug appetite, and would to rule out Cystic Fibrosis so they are doing a sweat test on July 1. He has diahrea quite often and coughs a lot, but it is not always with phlem. My question to some of you more experienced parents is this: Can cystic fibrosis affect red blood cell counts? Does anybody know if an elevated fetal hemoglobin can be associated with CF? I am just so exhausted with all the testing and I feel like I have to constantly follow up with the doctors for fear that something may "slip through the cracks".
I am a worried mom and I need advice. My one year old son has been going through a lot of tests. His hemoglobin levels are low and are to my understanding has nothing to do with iron. He has elevated Fetal hemoglobin levels. He is seeing a hematologist/oncologist to determine if he has bone marrow failure. He has been tested for fanconi anemia and we are still awaiting the results. He has lost a pound in two weeks adn the doctor has said he is failing to thrive, despite his hug appetite, and would to rule out Cystic Fibrosis so they are doing a sweat test on July 1. He has diahrea quite often and coughs a lot, but it is not always with phlem. My question to some of you more experienced parents is this: Can cystic fibrosis affect red blood cell counts? Does anybody know if an elevated fetal hemoglobin can be associated with CF? I am just so exhausted with all the testing and I feel like I have to constantly follow up with the doctors for fear that something may "slip through the cracks".
I am a worried mom and I need advice. My one year old son has been going through a lot of tests. His hemoglobin levels are low and are to my understanding has nothing to do with iron. He has elevated Fetal hemoglobin levels. He is seeing a hematologist/oncologist to determine if he has bone marrow failure. He has been tested for fanconi anemia and we are still awaiting the results. He has lost a pound in two weeks adn the doctor has said he is failing to thrive, despite his hug appetite, and would to rule out Cystic Fibrosis so they are doing a sweat test on July 1. He has diahrea quite often and coughs a lot, but it is not always with phlem. My question to some of you more experienced parents is this: Can cystic fibrosis affect red blood cell counts? Does anybody know if an elevated fetal hemoglobin can be associated with CF? I am just so exhausted with all the testing and I feel like I have to constantly follow up with the doctors for fear that something may "slip through the cracks".
M
Mommafirst
Guest
I don't really know the answer to this. I know that you could get white blood cell counts higher if you have an infection, but I'm not sure about red blood cell counts. Since CF effects food/vitamin absorbtion, it is likely that a child may have vitamin K deficiency, which has a blood impact, but I'm not clear how.
Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
M
Mommafirst
Guest
I don't really know the answer to this. I know that you could get white blood cell counts higher if you have an infection, but I'm not sure about red blood cell counts. Since CF effects food/vitamin absorbtion, it is likely that a child may have vitamin K deficiency, which has a blood impact, but I'm not clear how.
Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
M
Mommafirst
Guest
I don't really know the answer to this. I know that you could get white blood cell counts higher if you have an infection, but I'm not sure about red blood cell counts. Since CF effects food/vitamin absorbtion, it is likely that a child may have vitamin K deficiency, which has a blood impact, but I'm not clear how.
Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
M
Mommafirst
Guest
I don't really know the answer to this. I know that you could get white blood cell counts higher if you have an infection, but I'm not sure about red blood cell counts. Since CF effects food/vitamin absorbtion, it is likely that a child may have vitamin K deficiency, which has a blood impact, but I'm not clear how.
Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
M
Mommafirst
Guest
I don't really know the answer to this. I know that you could get white blood cell counts higher if you have an infection, but I'm not sure about red blood cell counts. Since CF effects food/vitamin absorbtion, it is likely that a child may have vitamin K deficiency, which has a blood impact, but I'm not clear how.
<br />
<br />Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
<br />
<br />Sorry I'm not more helpful, but I don't want to pass on the wrong information. Best of luck, I know how hard all the testing can be on you.
shimmereestar
New member
Hi there,
I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like
I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like
shimmereestar
New member
Hi there,
I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like
I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like
shimmereestar
New member
Hi there,
I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like
I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like
shimmereestar
New member
Hi there,
I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like
I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like
shimmereestar
New member
Hi there,
<br />
<br />I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like
<br />
<br />I'll be praying for you and your family as you are trying to find out the answers to your baby's health. I know how hard it can be waiting for results and ruling things out. My Ellie did have low hemoglobin levels when she was about two and a half months old. We ended up in the PICU where they referrd her to a hematologist/oncologist to rule out leukemia. She actually needed two blood transfusions because her blood count was so low. I do believe it was because of her lack of absorption of vitamin K and once she started receiving her vitamin supplements it has not been an issue since<img src="i/expressions/face-icon-small-smile.gif" border="0"> We have continued to see the hematologist and oncologist every other month to test her blood levels. At our last visit we were told she didn't have to come back for 6 months. Our hematologist said it is rare for CF kiddos to have anemia, but so do. Luckily he believes this was a one time thing. She also coughed all the time and it sounded like s dry cough for the longest time. She never coughed up anything. When her cough started to become productive you could see her swallowing but she never actually brought everything out. I hope this helps you out a little. Know I will be thinking about you as you are going through all of this. Feel free to pm me if you would like