I'm new to this posting so be patient. I had a bilateral lung transplant in 1996. I have cystic fibrosis, crohns , renal failure and was just diagnosed with gastroparesis . I have lost about 20 lbs in the last 2 months down to 105 . Dr. put me on reglan 5 mg 30 mins before eating. Problem is I have no appetite and no desire to eat due to the pain . I know it's not healthy for me considering I have battled pneumonia and rejection the last 2 yrs and need weight to help fight off infections. Any advise would be appreciated.
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- Thread starter cassidy96
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My daughter was diagnosed with gastroparesis about 2 years ago and it has been hard on her and she has had the same problems. The doctors haven't come up with any great solutions. I've been researching quite a bit lately, I was motivated by another user on this forum whose screen name is Epona. She has a lot of postings in Alternative Medicines. She maintains a website with a lot of information regarding CF and the digestive system. We are just getting started with implementing just a few of her suggestions and they coincide with information I found on this website - http://www.constipation-remedies-for-all.com/gastroparesis.html. I don't have feedback yet on results, some of the supplements are still on order. I also wouldn't do anything without checking with your doctor first, especially since you have some other issues, but dietary and exercise management may be helpful.
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windex125
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I suffered with gastroparesis abt 3-4 yrs. ago was on Reglan as well it did not seem to effect my appetite you said you are now at 105 after losing 20lbs how tall are you as that is my wt. now I am 5ft tall I just got out of the hospital May 5th as I had my first attack of pancreastitis I've been Psufficient all my life so I lost 10lbs during the stay and now I am on a low fat plan and have started enzymes for the first time ever. You have to eat even if you don't want to plain and simple there has to be something you really enjoy ice cream, veggies, fruits. snack bars I put it in my head that if I want to try to stay as well as poss. I have to eat and drink a lot of water which is one of my worst issues I do not drink enough water. I also have GERD,IBS,one lung the other collapsed yrs ago Have had freq. infections as I grow a nasty bacteria MAC which is like luggage you have it always and it flares up when it wants. Please try to have a positive attitude abt food. I am sorry to hear you are going though rejection with the lungs and the other issues, my new way of thinking CF the disease that keeps on giving. I think this is just another hurdle you will get though. Good luck Pat-59/CF
I've had really good results since I became vegan as of a year ago. It began when I decided to try the 30 day challenge for a plant base diet devoid of all meat and dairy/egg. I instantly felt better GI wise, bloating and constipation began to disappear and pain went away and stayed away since I became vegan in June 2013. I love to eat and eat well, and so this new regime has allowed me to eat more with bloating or constipation. My weight if very good around 24.5 on the BMI scale, and my weight varies 2 to 4 pounds throughout the day with a baseline of 170lbs. My article about a plant base diet was published in the CF round table last September. http://www.cfroundtable.com/wp-content/uploads/cfr-autumn-2013.pdf
I hope my experience can help my fellow CFers for a pain free GI.
Best of luck,
Tom Martin, CF 46 years old, Double lung 8 years post.
I hope my experience can help my fellow CFers for a pain free GI.
Best of luck,
Tom Martin, CF 46 years old, Double lung 8 years post.