my son is 17 1/2 months and is having a sweat test done. read some of the symptoms online and he has a lot of them. should i worry or not?? i'm really scared he is being seein in childrens hospital boston. which the best hospital for kids in the boston area. so i am confident that they will test him for what ever they feel they need to but i want to know if there is anything specific i should ask for please help me..<img src="i/expressions/face-icon-small-sad.gif" border="0">
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need help dont know wat to do
- Thread starter mommyof2
- Start date
my son is 17 1/2 months and is having a sweat test done. read some of the symptoms online and he has a lot of them. should i worry or not?? i'm really scared he is being seein in childrens hospital boston. which the best hospital for kids in the boston area. so i am confident that they will test him for what ever they feel they need to but i want to know if there is anything specific i should ask for please help me..<img src="i/expressions/face-icon-small-sad.gif" border="0">
my son is 17 1/2 months and is having a sweat test done. read some of the symptoms online and he has a lot of them. should i worry or not?? i'm really scared he is being seein in childrens hospital boston. which the best hospital for kids in the boston area. so i am confident that they will test him for what ever they feel they need to but i want to know if there is anything specific i should ask for please help me..<img src="i/expressions/face-icon-small-sad.gif" border="0">
my son is 17 1/2 months and is having a sweat test done. read some of the symptoms online and he has a lot of them. should i worry or not?? i'm really scared he is being seein in childrens hospital boston. which the best hospital for kids in the boston area. so i am confident that they will test him for what ever they feel they need to but i want to know if there is anything specific i should ask for please help me..<img src="i/expressions/face-icon-small-sad.gif" border="0">
my son is 17 1/2 months and is having a sweat test done. read some of the symptoms online and he has a lot of them. should i worry or not?? i'm really scared he is being seein in childrens hospital boston. which the best hospital for kids in the boston area. so i am confident that they will test him for what ever they feel they need to but i want to know if there is anything specific i should ask for please help me..<img src="i/expressions/face-icon-small-sad.gif" border="0">
my son is 17 1/2 months and is having a sweat test done. read some of the symptoms online and he has a lot of them. should i worry or not?? i'm really scared he is being seein in childrens hospital boston. which the best hospital for kids in the boston area. so i am confident that they will test him for what ever they feel they need to but i want to know if there is anything specific i should ask for please help me..<img src="i/expressions/face-icon-small-sad.gif" border="0">
I was tested & dx at Bostons Children Hospital 32 years ago. To worry or not? Well I cant tell you not to, but if he is dx with CF worrying wont change that. I am guessing they will start with a sweat test & then do genetic testing. IF for some reason they dont ask for the genetic at the same time. Genetic tests longer to get results on. I am not really sure what you should ask except maybe what is their standard practices of meds, preventative if he is dx. At least you will have an idea of what you will be starting with as far as routine. I personally would concentrate on getting the answers for now. You have already done research so you know wht CF can present. Good Luck & Let us know what happens.....
I was tested & dx at Bostons Children Hospital 32 years ago. To worry or not? Well I cant tell you not to, but if he is dx with CF worrying wont change that. I am guessing they will start with a sweat test & then do genetic testing. IF for some reason they dont ask for the genetic at the same time. Genetic tests longer to get results on. I am not really sure what you should ask except maybe what is their standard practices of meds, preventative if he is dx. At least you will have an idea of what you will be starting with as far as routine. I personally would concentrate on getting the answers for now. You have already done research so you know wht CF can present. Good Luck & Let us know what happens.....
I was tested & dx at Bostons Children Hospital 32 years ago. To worry or not? Well I cant tell you not to, but if he is dx with CF worrying wont change that. I am guessing they will start with a sweat test & then do genetic testing. IF for some reason they dont ask for the genetic at the same time. Genetic tests longer to get results on. I am not really sure what you should ask except maybe what is their standard practices of meds, preventative if he is dx. At least you will have an idea of what you will be starting with as far as routine. I personally would concentrate on getting the answers for now. You have already done research so you know wht CF can present. Good Luck & Let us know what happens.....
I was tested & dx at Bostons Children Hospital 32 years ago. To worry or not? Well I cant tell you not to, but if he is dx with CF worrying wont change that. I am guessing they will start with a sweat test & then do genetic testing. IF for some reason they dont ask for the genetic at the same time. Genetic tests longer to get results on. I am not really sure what you should ask except maybe what is their standard practices of meds, preventative if he is dx. At least you will have an idea of what you will be starting with as far as routine. I personally would concentrate on getting the answers for now. You have already done research so you know wht CF can present. Good Luck & Let us know what happens.....
I was tested & dx at Bostons Children Hospital 32 years ago. To worry or not? Well I cant tell you not to, but if he is dx with CF worrying wont change that. I am guessing they will start with a sweat test & then do genetic testing. IF for some reason they dont ask for the genetic at the same time. Genetic tests longer to get results on. I am not really sure what you should ask except maybe what is their standard practices of meds, preventative if he is dx. At least you will have an idea of what you will be starting with as far as routine. I personally would concentrate on getting the answers for now. You have already done research so you know wht CF can present. Good Luck & Let us know what happens.....
I was tested & dx at Bostons Children Hospital 32 years ago. To worry or not? Well I cant tell you not to, but if he is dx with CF worrying wont change that. I am guessing they will start with a sweat test & then do genetic testing. IF for some reason they dont ask for the genetic at the same time. Genetic tests longer to get results on. I am not really sure what you should ask except maybe what is their standard practices of meds, preventative if he is dx. At least you will have an idea of what you will be starting with as far as routine. I personally would concentrate on getting the answers for now. You have already done research so you know wht CF can present. Good Luck & Let us know what happens.....
Hi there - I am fairly new to this site myself. I was only introduced to CF 2 years ago when my son was dx at 15 yrs old, so I am not an expert by any means. I can tell you though, that this site holds a great wealth of information. Also, I have noticed that the people here are very supportive of one another.
It seems that there are always one or two sweat tests done first and then genetic testing. I think this is because of insurance company requirements. Anyway, you should ask for the Ambry full panel DNA test. This way if your child has a rare mutation, as mine does, they will test for it also.
I wish the best for you and your son.
It seems that there are always one or two sweat tests done first and then genetic testing. I think this is because of insurance company requirements. Anyway, you should ask for the Ambry full panel DNA test. This way if your child has a rare mutation, as mine does, they will test for it also.
I wish the best for you and your son.
Hi there - I am fairly new to this site myself. I was only introduced to CF 2 years ago when my son was dx at 15 yrs old, so I am not an expert by any means. I can tell you though, that this site holds a great wealth of information. Also, I have noticed that the people here are very supportive of one another.
It seems that there are always one or two sweat tests done first and then genetic testing. I think this is because of insurance company requirements. Anyway, you should ask for the Ambry full panel DNA test. This way if your child has a rare mutation, as mine does, they will test for it also.
I wish the best for you and your son.
It seems that there are always one or two sweat tests done first and then genetic testing. I think this is because of insurance company requirements. Anyway, you should ask for the Ambry full panel DNA test. This way if your child has a rare mutation, as mine does, they will test for it also.
I wish the best for you and your son.