need help dont know wat to do

J

JORDYSMOM

New member
Hi there - I am fairly new to this site myself. I was only introduced to CF 2 years ago when my son was dx at 15 yrs old, so I am not an expert by any means. I can tell you though, that this site holds a great wealth of information. Also, I have noticed that the people here are very supportive of one another.

It seems that there are always one or two sweat tests done first and then genetic testing. I think this is because of insurance company requirements. Anyway, you should ask for the Ambry full panel DNA test. This way if your child has a rare mutation, as mine does, they will test for it also.

I wish the best for you and your son.
 
J

JORDYSMOM

New member
Hi there - I am fairly new to this site myself. I was only introduced to CF 2 years ago when my son was dx at 15 yrs old, so I am not an expert by any means. I can tell you though, that this site holds a great wealth of information. Also, I have noticed that the people here are very supportive of one another.

It seems that there are always one or two sweat tests done first and then genetic testing. I think this is because of insurance company requirements. Anyway, you should ask for the Ambry full panel DNA test. This way if your child has a rare mutation, as mine does, they will test for it also.

I wish the best for you and your son.
 
J

JORDYSMOM

New member
Hi there - I am fairly new to this site myself. I was only introduced to CF 2 years ago when my son was dx at 15 yrs old, so I am not an expert by any means. I can tell you though, that this site holds a great wealth of information. Also, I have noticed that the people here are very supportive of one another.

It seems that there are always one or two sweat tests done first and then genetic testing. I think this is because of insurance company requirements. Anyway, you should ask for the Ambry full panel DNA test. This way if your child has a rare mutation, as mine does, they will test for it also.

I wish the best for you and your son.
 
J

JORDYSMOM

New member
Hi there - I am fairly new to this site myself. I was only introduced to CF 2 years ago when my son was dx at 15 yrs old, so I am not an expert by any means. I can tell you though, that this site holds a great wealth of information. Also, I have noticed that the people here are very supportive of one another.

It seems that there are always one or two sweat tests done first and then genetic testing. I think this is because of insurance company requirements. Anyway, you should ask for the Ambry full panel DNA test. This way if your child has a rare mutation, as mine does, they will test for it also.

I wish the best for you and your son.
 
D

dbtoo

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mommyof2</b></i>

should i worry or not??</end quote></div>

You're a mother. Mother's worry. Do what you do best. Then, look at the ages of those of us who post on here, and worry less.

About symptoms. My wife had 13 out of 17 symptoms related to hodgkins lympoma. She doesn't have it. So symptoms may be deceiving. If you can, get the genetic testing, that's the definitive.
 
D

dbtoo

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mommyof2</b></i>

should i worry or not??</end quote></div>

You're a mother. Mother's worry. Do what you do best. Then, look at the ages of those of us who post on here, and worry less.

About symptoms. My wife had 13 out of 17 symptoms related to hodgkins lympoma. She doesn't have it. So symptoms may be deceiving. If you can, get the genetic testing, that's the definitive.
 
D

dbtoo

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mommyof2</b></i>

should i worry or not??</end quote></div>

You're a mother. Mother's worry. Do what you do best. Then, look at the ages of those of us who post on here, and worry less.

About symptoms. My wife had 13 out of 17 symptoms related to hodgkins lympoma. She doesn't have it. So symptoms may be deceiving. If you can, get the genetic testing, that's the definitive.
 
D

dbtoo

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mommyof2</b></i>

should i worry or not??</end quote></div>

You're a mother. Mother's worry. Do what you do best. Then, look at the ages of those of us who post on here, and worry less.

About symptoms. My wife had 13 out of 17 symptoms related to hodgkins lympoma. She doesn't have it. So symptoms may be deceiving. If you can, get the genetic testing, that's the definitive.
 
D

dbtoo

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mommyof2</b></i>

should i worry or not??</end quote>

You're a mother. Mother's worry. Do what you do best. Then, look at the ages of those of us who post on here, and worry less.

About symptoms. My wife had 13 out of 17 symptoms related to hodgkins lympoma. She doesn't have it. So symptoms may be deceiving. If you can, get the genetic testing, that's the definitive.
 
D

dbtoo

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mommyof2</b></i>

should i worry or not??</end quote>

You're a mother. Mother's worry. Do what you do best. Then, look at the ages of those of us who post on here, and worry less.

About symptoms. My wife had 13 out of 17 symptoms related to hodgkins lympoma. She doesn't have it. So symptoms may be deceiving. If you can, get the genetic testing, that's the definitive.
 
M

mommyof2

New member
glad to say my son test came back normal.. thank u everyone for ur feedback and support and i hope u all the best of heath..
 
M

mommyof2

New member
glad to say my son test came back normal.. thank u everyone for ur feedback and support and i hope u all the best of heath..
 
M

mommyof2

New member
glad to say my son test came back normal.. thank u everyone for ur feedback and support and i hope u all the best of heath..
 
M

mommyof2

New member
glad to say my son test came back normal.. thank u everyone for ur feedback and support and i hope u all the best of heath..
 
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