Need help overcoming guilt...

ktsmom · Feb 11, 2008

To carry forward on Craig's brushing teeth analogy:

Katy's preschool class was a team in our Great Strides walk last year. We made a short presentation to the whole school (preschool through 4th grade) at their Friday assembly. Parents come to this, too. The head of the local chapter asked the children to raise their hands if they brushed their teeth for 1 minute. Of course all the hands went up. She asked them to raise their hands if they brushed their teeth for 2 minutes. Then 5 minutes. Several hands went up at the 5 minutes question and we all had a chuckle. THEN she asked them to raise their hands if they brushed their teeth for 2 HOURS. The crowd went quiet. I still get chills thinking about it. She went on to explain that is how long Katy spends at treatments every day.

We raised almost $4,000..................dunno whether to put a smile or a sad face here so I'll do both. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">

I agree with everything else said here - you keep on doing what you know is right. I looked back at that article you posted on December 1st. Read it again and you'll be reminded why you fight. Hugs to you! <img src="i/expressions/heart.gif" border="0">

ktsmom · Feb 11, 2008

To carry forward on Craig's brushing teeth analogy:

Katy's preschool class was a team in our Great Strides walk last year. We made a short presentation to the whole school (preschool through 4th grade) at their Friday assembly. Parents come to this, too. The head of the local chapter asked the children to raise their hands if they brushed their teeth for 1 minute. Of course all the hands went up. She asked them to raise their hands if they brushed their teeth for 2 minutes. Then 5 minutes. Several hands went up at the 5 minutes question and we all had a chuckle. THEN she asked them to raise their hands if they brushed their teeth for 2 HOURS. The crowd went quiet. I still get chills thinking about it. She went on to explain that is how long Katy spends at treatments every day.

We raised almost $4,000..................dunno whether to put a smile or a sad face here so I'll do both. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">

I agree with everything else said here - you keep on doing what you know is right. I looked back at that article you posted on December 1st. Read it again and you'll be reminded why you fight. Hugs to you! <img src="i/expressions/heart.gif" border="0">

ktsmom · Feb 11, 2008

To carry forward on Craig's brushing teeth analogy:

Katy's preschool class was a team in our Great Strides walk last year. We made a short presentation to the whole school (preschool through 4th grade) at their Friday assembly. Parents come to this, too. The head of the local chapter asked the children to raise their hands if they brushed their teeth for 1 minute. Of course all the hands went up. She asked them to raise their hands if they brushed their teeth for 2 minutes. Then 5 minutes. Several hands went up at the 5 minutes question and we all had a chuckle. THEN she asked them to raise their hands if they brushed their teeth for 2 HOURS. The crowd went quiet. I still get chills thinking about it. She went on to explain that is how long Katy spends at treatments every day.

We raised almost $4,000..................dunno whether to put a smile or a sad face here so I'll do both. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">

I agree with everything else said here - you keep on doing what you know is right. I looked back at that article you posted on December 1st. Read it again and you'll be reminded why you fight. Hugs to you! <img src="i/expressions/heart.gif" border="0">

ktsmom · Feb 11, 2008

To carry forward on Craig's brushing teeth analogy:

Katy's preschool class was a team in our Great Strides walk last year. We made a short presentation to the whole school (preschool through 4th grade) at their Friday assembly. Parents come to this, too. The head of the local chapter asked the children to raise their hands if they brushed their teeth for 1 minute. Of course all the hands went up. She asked them to raise their hands if they brushed their teeth for 2 minutes. Then 5 minutes. Several hands went up at the 5 minutes question and we all had a chuckle. THEN she asked them to raise their hands if they brushed their teeth for 2 HOURS. The crowd went quiet. I still get chills thinking about it. She went on to explain that is how long Katy spends at treatments every day.

We raised almost $4,000..................dunno whether to put a smile or a sad face here so I'll do both. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">

I agree with everything else said here - you keep on doing what you know is right. I looked back at that article you posted on December 1st. Read it again and you'll be reminded why you fight. Hugs to you! <img src="i/expressions/heart.gif" border="0">

ktsmom · Feb 11, 2008

To carry forward on Craig's brushing teeth analogy:

Katy's preschool class was a team in our Great Strides walk last year. We made a short presentation to the whole school (preschool through 4th grade) at their Friday assembly. Parents come to this, too. The head of the local chapter asked the children to raise their hands if they brushed their teeth for 1 minute. Of course all the hands went up. She asked them to raise their hands if they brushed their teeth for 2 minutes. Then 5 minutes. Several hands went up at the 5 minutes question and we all had a chuckle. THEN she asked them to raise their hands if they brushed their teeth for 2 HOURS. The crowd went quiet. I still get chills thinking about it. She went on to explain that is how long Katy spends at treatments every day.

We raised almost $4,000..................dunno whether to put a smile or a sad face here so I'll do both. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">

I agree with everything else said here - you keep on doing what you know is right. I looked back at that article you posted on December 1st. Read it again and you'll be reminded why you fight. Hugs to you! <img src="i/expressions/heart.gif" border="0">

JORDYSMOM · Feb 11, 2008

When I first came here, I felt that guilt. My son wasn't dx until he was 15. He obviously didn't suffer the same severity of symptoms as most CFers. I had trouble seeing my son in the same light as the other kids who's parents come here. I've gone through the same doubt and lack of support from my family and friends. They've brought it to my attention that Jordan didn't spend most of his childhood in the hospital. They've even said, "At least you don't have to live like those other people who's kids are going to die from it." WHAT????

I no longer feel that guilt. I have learned that CF is just as real for me as it is for anyone else. My fears for my child are just as founded as the parent who's child is in the hospital five times a year. Yes, I am so very grateful that my child hasn't had as much trouble as some. The fact is, though, that it could happen at any time. I still live with that daily fear. Will the next bad cold be the one? Looking back on Jordan's life, I can see the signs, and the decline in his lung health. For so long, I wondered why his asthma continued to worsen. They told me he would outgrow it. Well, now I know.

Another perspective for you on the fund-raising side of things. Since your child isn't symptomatic, you can spend more time on fund-raising and education. There may come a time when there are hospitalizations, and you have much less free time. Do it while you can, and be proud of what you are doing. I for one, am very appreciative of anyone who gives their time and energy.

I know the power that this site has to make one feel better about themselves and their situation. I hope that you feel the support, and that you gain the strength that you need to push on.

Stacey

JORDYSMOM · Feb 11, 2008

When I first came here, I felt that guilt. My son wasn't dx until he was 15. He obviously didn't suffer the same severity of symptoms as most CFers. I had trouble seeing my son in the same light as the other kids who's parents come here. I've gone through the same doubt and lack of support from my family and friends. They've brought it to my attention that Jordan didn't spend most of his childhood in the hospital. They've even said, "At least you don't have to live like those other people who's kids are going to die from it." WHAT????

I no longer feel that guilt. I have learned that CF is just as real for me as it is for anyone else. My fears for my child are just as founded as the parent who's child is in the hospital five times a year. Yes, I am so very grateful that my child hasn't had as much trouble as some. The fact is, though, that it could happen at any time. I still live with that daily fear. Will the next bad cold be the one? Looking back on Jordan's life, I can see the signs, and the decline in his lung health. For so long, I wondered why his asthma continued to worsen. They told me he would outgrow it. Well, now I know.

Another perspective for you on the fund-raising side of things. Since your child isn't symptomatic, you can spend more time on fund-raising and education. There may come a time when there are hospitalizations, and you have much less free time. Do it while you can, and be proud of what you are doing. I for one, am very appreciative of anyone who gives their time and energy.

I know the power that this site has to make one feel better about themselves and their situation. I hope that you feel the support, and that you gain the strength that you need to push on.

Stacey

JORDYSMOM · Feb 11, 2008

When I first came here, I felt that guilt. My son wasn't dx until he was 15. He obviously didn't suffer the same severity of symptoms as most CFers. I had trouble seeing my son in the same light as the other kids who's parents come here. I've gone through the same doubt and lack of support from my family and friends. They've brought it to my attention that Jordan didn't spend most of his childhood in the hospital. They've even said, "At least you don't have to live like those other people who's kids are going to die from it." WHAT????

I no longer feel that guilt. I have learned that CF is just as real for me as it is for anyone else. My fears for my child are just as founded as the parent who's child is in the hospital five times a year. Yes, I am so very grateful that my child hasn't had as much trouble as some. The fact is, though, that it could happen at any time. I still live with that daily fear. Will the next bad cold be the one? Looking back on Jordan's life, I can see the signs, and the decline in his lung health. For so long, I wondered why his asthma continued to worsen. They told me he would outgrow it. Well, now I know.

Another perspective for you on the fund-raising side of things. Since your child isn't symptomatic, you can spend more time on fund-raising and education. There may come a time when there are hospitalizations, and you have much less free time. Do it while you can, and be proud of what you are doing. I for one, am very appreciative of anyone who gives their time and energy.

I know the power that this site has to make one feel better about themselves and their situation. I hope that you feel the support, and that you gain the strength that you need to push on.

Stacey

JORDYSMOM · Feb 11, 2008

When I first came here, I felt that guilt. My son wasn't dx until he was 15. He obviously didn't suffer the same severity of symptoms as most CFers. I had trouble seeing my son in the same light as the other kids who's parents come here. I've gone through the same doubt and lack of support from my family and friends. They've brought it to my attention that Jordan didn't spend most of his childhood in the hospital. They've even said, "At least you don't have to live like those other people who's kids are going to die from it." WHAT????

I no longer feel that guilt. I have learned that CF is just as real for me as it is for anyone else. My fears for my child are just as founded as the parent who's child is in the hospital five times a year. Yes, I am so very grateful that my child hasn't had as much trouble as some. The fact is, though, that it could happen at any time. I still live with that daily fear. Will the next bad cold be the one? Looking back on Jordan's life, I can see the signs, and the decline in his lung health. For so long, I wondered why his asthma continued to worsen. They told me he would outgrow it. Well, now I know.

Another perspective for you on the fund-raising side of things. Since your child isn't symptomatic, you can spend more time on fund-raising and education. There may come a time when there are hospitalizations, and you have much less free time. Do it while you can, and be proud of what you are doing. I for one, am very appreciative of anyone who gives their time and energy.

I know the power that this site has to make one feel better about themselves and their situation. I hope that you feel the support, and that you gain the strength that you need to push on.

Stacey

JORDYSMOM · Feb 11, 2008

When I first came here, I felt that guilt. My son wasn't dx until he was 15. He obviously didn't suffer the same severity of symptoms as most CFers. I had trouble seeing my son in the same light as the other kids who's parents come here. I've gone through the same doubt and lack of support from my family and friends. They've brought it to my attention that Jordan didn't spend most of his childhood in the hospital. They've even said, "At least you don't have to live like those other people who's kids are going to die from it." WHAT????

I no longer feel that guilt. I have learned that CF is just as real for me as it is for anyone else. My fears for my child are just as founded as the parent who's child is in the hospital five times a year. Yes, I am so very grateful that my child hasn't had as much trouble as some. The fact is, though, that it could happen at any time. I still live with that daily fear. Will the next bad cold be the one? Looking back on Jordan's life, I can see the signs, and the decline in his lung health. For so long, I wondered why his asthma continued to worsen. They told me he would outgrow it. Well, now I know.

Another perspective for you on the fund-raising side of things. Since your child isn't symptomatic, you can spend more time on fund-raising and education. There may come a time when there are hospitalizations, and you have much less free time. Do it while you can, and be proud of what you are doing. I for one, am very appreciative of anyone who gives their time and energy.

I know the power that this site has to make one feel better about themselves and their situation. I hope that you feel the support, and that you gain the strength that you need to push on.

Stacey

Rebjane · Feb 11, 2008