Need Help Please...

[Ratatosk]

I wondered with your orginal post if cepacia wasn't one of the bugs the other child cultures, especially the way the school nurse was acting. Not having dealt with this type of situation yet, I guess I'd be having similar feeling, if not being completely panic-struck.

Have you spoken to your daughter's doctor yet to see what his/her opinion is on this?

 

[Ratatosk]

I wondered with your orginal post if cepacia wasn't one of the bugs the other child cultures, especially the way the school nurse was acting. Not having dealt with this type of situation yet, I guess I'd be having similar feeling, if not being completely panic-struck.

Have you spoken to your daughter's doctor yet to see what his/her opinion is on this?

 

[Ratatosk]

I wondered with your orginal post if cepacia wasn't one of the bugs the other child cultures, especially the way the school nurse was acting. Not having dealt with this type of situation yet, I guess I'd be having similar feeling, if not being completely panic-struck.

Have you spoken to your daughter's doctor yet to see what his/her opinion is on this?

 

[Ratatosk]

I wondered with your orginal post if cepacia wasn't one of the bugs the other child cultures, especially the way the school nurse was acting. Not having dealt with this type of situation yet, I guess I'd be having similar feeling, if not being completely panic-struck.

Have you spoken to your daughter's doctor yet to see what his/her opinion is on this?

 

[Ratatosk]

I wondered with your orginal post if cepacia wasn't one of the bugs the other child cultures, especially the way the school nurse was acting. Not having dealt with this type of situation yet, I guess I'd be having similar feeling, if not being completely panic-struck.
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<br />Have you spoken to your daughter's doctor yet to see what his/her opinion is on this?

 

[ReneeP]

Yes, I did. I called and left a message for the nurse but she ended up having the social worker call me back instead of calling me herself. I have had issues with this particular social worker in the past and do not trust her as far as I could throw her so it was bascially a wasted phone call. She is the social worker for all the clinics at this hosptial, not just CF and knows very little about CF. Basically all she said was to talk to Kaitlyn and to let her know how proud I am that she is taking responsibility for her own health but that she doesn't need to worry because I am not going to let anything happen to her... blah blah blah... I am debating whether to try calling the nurse again. I don't know why she threw me off on the social worker... she has never done that before...

 

[ReneeP]

Yes, I did. I called and left a message for the nurse but she ended up having the social worker call me back instead of calling me herself. I have had issues with this particular social worker in the past and do not trust her as far as I could throw her so it was bascially a wasted phone call. She is the social worker for all the clinics at this hosptial, not just CF and knows very little about CF. Basically all she said was to talk to Kaitlyn and to let her know how proud I am that she is taking responsibility for her own health but that she doesn't need to worry because I am not going to let anything happen to her... blah blah blah... I am debating whether to try calling the nurse again. I don't know why she threw me off on the social worker... she has never done that before...

 

[ReneeP]

Yes, I did. I called and left a message for the nurse but she ended up having the social worker call me back instead of calling me herself. I have had issues with this particular social worker in the past and do not trust her as far as I could throw her so it was bascially a wasted phone call. She is the social worker for all the clinics at this hosptial, not just CF and knows very little about CF. Basically all she said was to talk to Kaitlyn and to let her know how proud I am that she is taking responsibility for her own health but that she doesn't need to worry because I am not going to let anything happen to her... blah blah blah... I am debating whether to try calling the nurse again. I don't know why she threw me off on the social worker... she has never done that before...

 

[ReneeP]

Yes, I did. I called and left a message for the nurse but she ended up having the social worker call me back instead of calling me herself. I have had issues with this particular social worker in the past and do not trust her as far as I could throw her so it was bascially a wasted phone call. She is the social worker for all the clinics at this hosptial, not just CF and knows very little about CF. Basically all she said was to talk to Kaitlyn and to let her know how proud I am that she is taking responsibility for her own health but that she doesn't need to worry because I am not going to let anything happen to her... blah blah blah... I am debating whether to try calling the nurse again. I don't know why she threw me off on the social worker... she has never done that before...

 

[ReneeP]

Yes, I did. I called and left a message for the nurse but she ended up having the social worker call me back instead of calling me herself. I have had issues with this particular social worker in the past and do not trust her as far as I could throw her so it was bascially a wasted phone call. She is the social worker for all the clinics at this hosptial, not just CF and knows very little about CF. Basically all she said was to talk to Kaitlyn and to let her know how proud I am that she is taking responsibility for her own health but that she doesn't need to worry because I am not going to let anything happen to her... blah blah blah... I am debating whether to try calling the nurse again. I don't know why she threw me off on the social worker... she has never done that before...

 

[Ratatosk]

IMO, call the nurse back and ask to speak to the doctor or to have her relay your concerns to him. We recently had a similar question regarding my inlaws visting a relative with MRSA pneumonia and being that our CF doctor specializes in infectious disease we wanted to get his take on it and he was more than happy to talk with us about.

I can't stand our social worker because in the past when we've asked about assistance programs, she told us we weren't eligible and then only wanted to discuss our feelings and how we as a couple were doing. We found out years later that DS HAD been eligible for medical assistance up until age 3. Grrr!

 

[Ratatosk]

IMO, call the nurse back and ask to speak to the doctor or to have her relay your concerns to him. We recently had a similar question regarding my inlaws visting a relative with MRSA pneumonia and being that our CF doctor specializes in infectious disease we wanted to get his take on it and he was more than happy to talk with us about.

I can't stand our social worker because in the past when we've asked about assistance programs, she told us we weren't eligible and then only wanted to discuss our feelings and how we as a couple were doing. We found out years later that DS HAD been eligible for medical assistance up until age 3. Grrr!

 

[Ratatosk]

IMO, call the nurse back and ask to speak to the doctor or to have her relay your concerns to him. We recently had a similar question regarding my inlaws visting a relative with MRSA pneumonia and being that our CF doctor specializes in infectious disease we wanted to get his take on it and he was more than happy to talk with us about.

I can't stand our social worker because in the past when we've asked about assistance programs, she told us we weren't eligible and then only wanted to discuss our feelings and how we as a couple were doing. We found out years later that DS HAD been eligible for medical assistance up until age 3. Grrr!

 

[Ratatosk]

IMO, call the nurse back and ask to speak to the doctor or to have her relay your concerns to him. We recently had a similar question regarding my inlaws visting a relative with MRSA pneumonia and being that our CF doctor specializes in infectious disease we wanted to get his take on it and he was more than happy to talk with us about.

I can't stand our social worker because in the past when we've asked about assistance programs, she told us we weren't eligible and then only wanted to discuss our feelings and how we as a couple were doing. We found out years later that DS HAD been eligible for medical assistance up until age 3. Grrr!

 

[Ratatosk]

IMO, call the nurse back and ask to speak to the doctor or to have her relay your concerns to him. We recently had a similar question regarding my inlaws visting a relative with MRSA pneumonia and being that our CF doctor specializes in infectious disease we wanted to get his take on it and he was more than happy to talk with us about.
<br />
<br />I can't stand our social worker because in the past when we've asked about assistance programs, she told us we weren't eligible and then only wanted to discuss our feelings and how we as a couple were doing. We found out years later that DS HAD been eligible for medical assistance up until age 3. Grrr!
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[Sevenstars]

Hmm, I was going to say "Oh she should be fine, don't worry about it", but I feel differently after reading your second post. You're right, its a risk that is unnecessary, and a risk she'd be taking every single day for... 5 years? It seems likely that she'd eventually pick something up from the other girl. What was also alarming to me was the other mother's ignorance about CF in general. If your daughter had been that sick, wouldn't you have done a little research? I mean she didn't even know what bugs she was culturing.

Also keep in mind, you can catch things from hospitals and doctor's offices, and that is even with things being washed down, gloves, gowns, masks etc. Of course, there are MORE bugs going around in those places, but at a school you'd have 0 disinfection from class to class, maybe even day to day. What if they sit at the same desk in different periods? Same cafeteria table? Things like that I wonder about.

Like you said, your daughter is old enough to speak up for herself too. If she was worried and wasn't opposed to changing schools, it would certainly seem like a decent option. Years down the road if she had caught PA/MRSA from that girl and gotten extremely sick, you don't want to think "I could have prevented this."

 

[Sevenstars]

Hmm, I was going to say "Oh she should be fine, don't worry about it", but I feel differently after reading your second post. You're right, its a risk that is unnecessary, and a risk she'd be taking every single day for... 5 years? It seems likely that she'd eventually pick something up from the other girl. What was also alarming to me was the other mother's ignorance about CF in general. If your daughter had been that sick, wouldn't you have done a little research? I mean she didn't even know what bugs she was culturing.

Also keep in mind, you can catch things from hospitals and doctor's offices, and that is even with things being washed down, gloves, gowns, masks etc. Of course, there are MORE bugs going around in those places, but at a school you'd have 0 disinfection from class to class, maybe even day to day. What if they sit at the same desk in different periods? Same cafeteria table? Things like that I wonder about.

Like you said, your daughter is old enough to speak up for herself too. If she was worried and wasn't opposed to changing schools, it would certainly seem like a decent option. Years down the road if she had caught PA/MRSA from that girl and gotten extremely sick, you don't want to think "I could have prevented this."

 

[Sevenstars]

Hmm, I was going to say "Oh she should be fine, don't worry about it", but I feel differently after reading your second post. You're right, its a risk that is unnecessary, and a risk she'd be taking every single day for... 5 years? It seems likely that she'd eventually pick something up from the other girl. What was also alarming to me was the other mother's ignorance about CF in general. If your daughter had been that sick, wouldn't you have done a little research? I mean she didn't even know what bugs she was culturing.

Also keep in mind, you can catch things from hospitals and doctor's offices, and that is even with things being washed down, gloves, gowns, masks etc. Of course, there are MORE bugs going around in those places, but at a school you'd have 0 disinfection from class to class, maybe even day to day. What if they sit at the same desk in different periods? Same cafeteria table? Things like that I wonder about.

Like you said, your daughter is old enough to speak up for herself too. If she was worried and wasn't opposed to changing schools, it would certainly seem like a decent option. Years down the road if she had caught PA/MRSA from that girl and gotten extremely sick, you don't want to think "I could have prevented this."

 

[Sevenstars]

Hmm, I was going to say "Oh she should be fine, don't worry about it", but I feel differently after reading your second post. You're right, its a risk that is unnecessary, and a risk she'd be taking every single day for... 5 years? It seems likely that she'd eventually pick something up from the other girl. What was also alarming to me was the other mother's ignorance about CF in general. If your daughter had been that sick, wouldn't you have done a little research? I mean she didn't even know what bugs she was culturing.

Also keep in mind, you can catch things from hospitals and doctor's offices, and that is even with things being washed down, gloves, gowns, masks etc. Of course, there are MORE bugs going around in those places, but at a school you'd have 0 disinfection from class to class, maybe even day to day. What if they sit at the same desk in different periods? Same cafeteria table? Things like that I wonder about.

Like you said, your daughter is old enough to speak up for herself too. If she was worried and wasn't opposed to changing schools, it would certainly seem like a decent option. Years down the road if she had caught PA/MRSA from that girl and gotten extremely sick, you don't want to think "I could have prevented this."

 

[Sevenstars]

Hmm, I was going to say "Oh she should be fine, don't worry about it", but I feel differently after reading your second post. You're right, its a risk that is unnecessary, and a risk she'd be taking every single day for... 5 years? It seems likely that she'd eventually pick something up from the other girl. What was also alarming to me was the other mother's ignorance about CF in general. If your daughter had been that sick, wouldn't you have done a little research? I mean she didn't even know what bugs she was culturing.
<br />
<br />Also keep in mind, you can catch things from hospitals and doctor's offices, and that is even with things being washed down, gloves, gowns, masks etc. Of course, there are MORE bugs going around in those places, but at a school you'd have 0 disinfection from class to class, maybe even day to day. What if they sit at the same desk in different periods? Same cafeteria table? Things like that I wonder about.
<br />
<br />Like you said, your daughter is old enough to speak up for herself too. If she was worried and wasn't opposed to changing schools, it would certainly seem like a decent option. Years down the road if she had caught PA/MRSA from that girl and gotten extremely sick, you don't want to think "I could have prevented this."