Need help with getting son to take his medicines

K

kandi

New member
My son Eric age 13 (will be 14 May 4) has been definant about taking his medicne for the last year but the last few months have been crazy. His last appt to the cf doctor was Sept 13. We go back to the dr on Dec 13. A little bit background may help. He was diagnosed at age 9 almost 10. He has been hospitalized 4 times since then. He has been diagnosed twice with pseudomonas and once with msra.He was listed as failure to thrive this time last year. We had a feeding tube put in place in Jan. He has(had) gained 16 lbs last visit. The docotrs were bragging on him for his weight gain. They told him his functions were down a little from a few missed treatment but if he stayed on top of them he could get them back up. Three weeks after being home he has given us even a really hard time. For the last month we can't get him to do his night time feedings, refuses to take his medicines, and refuses to take his breathing treatments. For two weeks we fought about it consistentaly with no change. I am tired of fighting. I have two other children and I was staying stressed. I hate to say it I just give up on fighting with him. He now does nothing. He should have completed his tobi two and half weeks ago. I by no means have giving up on him (even thought right now I feel like a failure). I am dreading what the doctors are going to say. I know he is not going to gain weight like he should be and his pfts are going to be down. I guess this is really just a way for me to vent. The doctors have told him what is going to happen and seem as though he doesn't care. I feel so lost and confused about cf. We live in a small city and no one around here has or knows anything about cf. I am glad I can atleast have a place to vent. We have offered rewards and everything with no avail. I am not sure what to do. I just hope that things change soon for his health and my sainty.
Thanks for letting me vent.
 
K

kandi

New member
My son Eric age 13 (will be 14 May 4) has been definant about taking his medicne for the last year but the last few months have been crazy. His last appt to the cf doctor was Sept 13. We go back to the dr on Dec 13. A little bit background may help. He was diagnosed at age 9 almost 10. He has been hospitalized 4 times since then. He has been diagnosed twice with pseudomonas and once with msra.He was listed as failure to thrive this time last year. We had a feeding tube put in place in Jan. He has(had) gained 16 lbs last visit. The docotrs were bragging on him for his weight gain. They told him his functions were down a little from a few missed treatment but if he stayed on top of them he could get them back up. Three weeks after being home he has given us even a really hard time. For the last month we can't get him to do his night time feedings, refuses to take his medicines, and refuses to take his breathing treatments. For two weeks we fought about it consistentaly with no change. I am tired of fighting. I have two other children and I was staying stressed. I hate to say it I just give up on fighting with him. He now does nothing. He should have completed his tobi two and half weeks ago. I by no means have giving up on him (even thought right now I feel like a failure). I am dreading what the doctors are going to say. I know he is not going to gain weight like he should be and his pfts are going to be down. I guess this is really just a way for me to vent. The doctors have told him what is going to happen and seem as though he doesn't care. I feel so lost and confused about cf. We live in a small city and no one around here has or knows anything about cf. I am glad I can atleast have a place to vent. We have offered rewards and everything with no avail. I am not sure what to do. I just hope that things change soon for his health and my sainty.
Thanks for letting me vent.
 
K

kandi

New member
My son Eric age 13 (will be 14 May 4) has been definant about taking his medicne for the last year but the last few months have been crazy. His last appt to the cf doctor was Sept 13. We go back to the dr on Dec 13. A little bit background may help. He was diagnosed at age 9 almost 10. He has been hospitalized 4 times since then. He has been diagnosed twice with pseudomonas and once with msra.He was listed as failure to thrive this time last year. We had a feeding tube put in place in Jan. He has(had) gained 16 lbs last visit. The docotrs were bragging on him for his weight gain. They told him his functions were down a little from a few missed treatment but if he stayed on top of them he could get them back up. Three weeks after being home he has given us even a really hard time. For the last month we can't get him to do his night time feedings, refuses to take his medicines, and refuses to take his breathing treatments. For two weeks we fought about it consistentaly with no change. I am tired of fighting. I have two other children and I was staying stressed. I hate to say it I just give up on fighting with him. He now does nothing. He should have completed his tobi two and half weeks ago. I by no means have giving up on him (even thought right now I feel like a failure). I am dreading what the doctors are going to say. I know he is not going to gain weight like he should be and his pfts are going to be down. I guess this is really just a way for me to vent. The doctors have told him what is going to happen and seem as though he doesn't care. I feel so lost and confused about cf. We live in a small city and no one around here has or knows anything about cf. I am glad I can atleast have a place to vent. We have offered rewards and everything with no avail. I am not sure what to do. I just hope that things change soon for his health and my sainty.
Thanks for letting me vent.
 
D

damiensmom

New member
Good Idea, and if he doesnt say much at first keep asking him. He might have a hard time identifing with hes feelings as we all do somtimes.
 
D

damiensmom

New member
Good Idea, and if he doesnt say much at first keep asking him. He might have a hard time identifing with hes feelings as we all do somtimes.
 
D

damiensmom

New member
Good Idea, and if he doesnt say much at first keep asking him. He might have a hard time identifing with hes feelings as we all do somtimes.
 
J

jgan

New member
some of this is normal adolescent rebellion, but with the 4 hospitals inpts and the other things I would also suggest that he HATES being different than all his mates. He probably will not be able to identify what is bothering him. This is not unusual for a 13 yr old. Find a neutral person to present some thoutghts to him as to why he may be doing what he is doing. See if they can get him to connect the dots. He may be depressed because adolescents often appear angry when depressed.
 
J

jgan

New member
some of this is normal adolescent rebellion, but with the 4 hospitals inpts and the other things I would also suggest that he HATES being different than all his mates. He probably will not be able to identify what is bothering him. This is not unusual for a 13 yr old. Find a neutral person to present some thoutghts to him as to why he may be doing what he is doing. See if they can get him to connect the dots. He may be depressed because adolescents often appear angry when depressed.
 
J

jgan

New member
some of this is normal adolescent rebellion, but with the 4 hospitals inpts and the other things I would also suggest that he HATES being different than all his mates. He probably will not be able to identify what is bothering him. This is not unusual for a 13 yr old. Find a neutral person to present some thoutghts to him as to why he may be doing what he is doing. See if they can get him to connect the dots. He may be depressed because adolescents often appear angry when depressed.
 
M

mumsy83

New member
i have two brothers who dealt with their CF and took medication properly until they got to the rebelious teenage stage and my mother was under a great amount of stress during these years.The medication needs to be a normal part of life for teenagers and not something special as they just want to be the same as everybody else their age. My mum would set up all their medication and equipment before they would wake up,etc and not mention anything about it when they woke and they would quickly get on with taking medecines etc then resume to normal activitys.im happy to tell you they both grew out of this phase and now they are age 19 and 24 and are coping alot better with what they have to do.


sister to 2 brothers w/cf age 19 and 24
 
M

mumsy83

New member
i have two brothers who dealt with their CF and took medication properly until they got to the rebelious teenage stage and my mother was under a great amount of stress during these years.The medication needs to be a normal part of life for teenagers and not something special as they just want to be the same as everybody else their age. My mum would set up all their medication and equipment before they would wake up,etc and not mention anything about it when they woke and they would quickly get on with taking medecines etc then resume to normal activitys.im happy to tell you they both grew out of this phase and now they are age 19 and 24 and are coping alot better with what they have to do.


sister to 2 brothers w/cf age 19 and 24
 
M

mumsy83

New member
i have two brothers who dealt with their CF and took medication properly until they got to the rebelious teenage stage and my mother was under a great amount of stress during these years.The medication needs to be a normal part of life for teenagers and not something special as they just want to be the same as everybody else their age. My mum would set up all their medication and equipment before they would wake up,etc and not mention anything about it when they woke and they would quickly get on with taking medecines etc then resume to normal activitys.im happy to tell you they both grew out of this phase and now they are age 19 and 24 and are coping alot better with what they have to do.


sister to 2 brothers w/cf age 19 and 24
 
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