NEED SOME ANSWERS FROM PARENTS FOR FRIDAY APPT

flwrchldkb

New member
My daughter was diagnosed 12/7/10 with only one mutated gene and one positive sweat test. We went through that first cf visit last week and it is a lot to take in all at once. Just know that they won't do anything that they don't deem necessary for your daughter's health. It is scary to hear the diagnosis and you have to take the rest day by day. The care and treatment of this is easier to handle than the emotions most days. Just know that there are plenty of people willing to support and listen!
 
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