westonsmom
New member
Welcome. Take it one day at a time. You can't focus on the thought of death or it will overwhelm you and will teach your daughter to not live her life. Focus on the positives even if it is hard. The research, new meds, and advances. My son is also 15 months old. I do a lot of fundraising. It gives me a purpose and helps me be in some control over the diagnosis. Good luck with your baby. Keep good thoughts!