Need some tutoring

AbbysMama · Mar 12, 2008

Thank you very much Steve. I appreciate your validation that we are doing what is in the best interest of our child. <img src="">

Dana, rant away. I appreciate you helping me put things into perspective. I don't think it is anything more than genuine concern for Abby. I'm not sure if I didn't really know anything about the disease that I wouldn't wonder the same thing, not necessarily trying to second-guess, but just trying to understand.

I've gotten the information I need and the tutorial helped. I sincerely appreciate everyone who had a comment!

Emily

AbbysMama · Mar 12, 2008

Thank you very much Steve. I appreciate your validation that we are doing what is in the best interest of our child. <img src="">

Dana, rant away. I appreciate you helping me put things into perspective. I don't think it is anything more than genuine concern for Abby. I'm not sure if I didn't really know anything about the disease that I wouldn't wonder the same thing, not necessarily trying to second-guess, but just trying to understand.

I've gotten the information I need and the tutorial helped. I sincerely appreciate everyone who had a comment!

Emily

AbbysMama · Mar 12, 2008

Thank you very much Steve. I appreciate your validation that we are doing what is in the best interest of our child. <img src="">

Dana, rant away. I appreciate you helping me put things into perspective. I don't think it is anything more than genuine concern for Abby. I'm not sure if I didn't really know anything about the disease that I wouldn't wonder the same thing, not necessarily trying to second-guess, but just trying to understand.

I've gotten the information I need and the tutorial helped. I sincerely appreciate everyone who had a comment!

Emily

AbbysMama · Mar 12, 2008

Thank you very much Steve. I appreciate your validation that we are doing what is in the best interest of our child. <img src="">

Dana, rant away. I appreciate you helping me put things into perspective. I don't think it is anything more than genuine concern for Abby. I'm not sure if I didn't really know anything about the disease that I wouldn't wonder the same thing, not necessarily trying to second-guess, but just trying to understand.

I've gotten the information I need and the tutorial helped. I sincerely appreciate everyone who had a comment!

Emily

AbbysMama · Mar 12, 2008

Thank you very much Steve. I appreciate your validation that we are doing what is in the best interest of our child. <img src="">
 
 Dana, rant away. I appreciate you helping me put things into perspective. I don't think it is anything more than genuine concern for Abby. I'm not sure if I didn't really know anything about the disease that I wouldn't wonder the same thing, not necessarily trying to second-guess, but just trying to understand.
 
 I've gotten the information I need and the tutorial helped. I sincerely appreciate everyone who had a comment!
 
 Emily

Alyssa · Mar 13, 2008

Thank you Steve for replying again to this.

Wow ! Had screening been available when I was pregnant, they would have told me that it didn't matter if my husband was a carrier or not !!! I certainly hope they are not still doing that when a R117H 7T is found ! I feel lucky that my daughter never colonized PA during that 8 year period that we were clueless because her sweat test was 38 and they said "no CF"

Alyssa · Mar 13, 2008

Thank you Steve for replying again to this.

Wow ! Had screening been available when I was pregnant, they would have told me that it didn't matter if my husband was a carrier or not !!! I certainly hope they are not still doing that when a R117H 7T is found ! I feel lucky that my daughter never colonized PA during that 8 year period that we were clueless because her sweat test was 38 and they said "no CF"

Alyssa · Mar 13, 2008

Thank you Steve for replying again to this.

Wow ! Had screening been available when I was pregnant, they would have told me that it didn't matter if my husband was a carrier or not !!! I certainly hope they are not still doing that when a R117H 7T is found ! I feel lucky that my daughter never colonized PA during that 8 year period that we were clueless because her sweat test was 38 and they said "no CF"

Alyssa · Mar 13, 2008

Thank you Steve for replying again to this.

Wow ! Had screening been available when I was pregnant, they would have told me that it didn't matter if my husband was a carrier or not !!! I certainly hope they are not still doing that when a R117H 7T is found ! I feel lucky that my daughter never colonized PA during that 8 year period that we were clueless because her sweat test was 38 and they said "no CF"

Alyssa · Mar 13, 2008

Thank you Steve for replying again to this.
 
 Wow ! Had screening been available when I was pregnant, they would have told me that it didn't matter if my husband was a carrier or not !!! I certainly hope they are not still doing that when a R117H 7T is found ! I feel lucky that my daughter never colonized PA during that 8 year period that we were clueless because her sweat test was 38 and they said "no CF"

IrishBuddhist · May 7, 2008

I am so glad I tuned in this morning to read this

We too just got the same results of Delta 508 and R117H
and the doc said, he has atypical Cf

This whole process started from a nasal polyp and now at least we have answers as to other symptoms as mild as they are.

Its very reassuring to see others that are dealing with the same thing. Looking forward to getting to know more parents in the same predicment.

IrishBuddhist · May 7, 2008

I am so glad I tuned in this morning to read this

We too just got the same results of Delta 508 and R117H
and the doc said, he has atypical Cf

This whole process started from a nasal polyp and now at least we have answers as to other symptoms as mild as they are.

Its very reassuring to see others that are dealing with the same thing. Looking forward to getting to know more parents in the same predicment.

IrishBuddhist · May 7, 2008

I am so glad I tuned in this morning to read this

We too just got the same results of Delta 508 and R117H
and the doc said, he has atypical Cf

This whole process started from a nasal polyp and now at least we have answers as to other symptoms as mild as they are.

Its very reassuring to see others that are dealing with the same thing. Looking forward to getting to know more parents in the same predicment.

IrishBuddhist · May 7, 2008

I am so glad I tuned in this morning to read this

We too just got the same results of Delta 508 and R117H
and the doc said, he has atypical Cf

This whole process started from a nasal polyp and now at least we have answers as to other symptoms as mild as they are.

Its very reassuring to see others that are dealing with the same thing. Looking forward to getting to know more parents in the same predicment.

IrishBuddhist · May 7, 2008

I am so glad I tuned in this morning to read this
 
 We too just got the same results of Delta 508 and R117H
 and the doc said, he has atypical Cf
 
 This whole process started from a nasal polyp and now at least we have answers as to other symptoms as mild as they are.
 
 Its very reassuring to see others that are dealing with the same thing. Looking forward to getting to know more parents in the same predicment.

Ratatosk · May 7, 2008