Need someone to talk to.....

[angelicalex]

Alright everyone, this is my first time trying this out so bear with me....
I'm a 19 year old female with CF and lately I have just been feeling completely miserable. I've never dealt well with having it, but I was always healthy as a child, the digestion affected me much more than the lungs for years. However when I was 16 and a sophomore in high school my parents divorced and I had my first hospitalization immediately afterwards. Since then, I have gone to the hospital just about every six months and stayed in for 2-3 weeks at a time. My health has completely deteriated in the last few years and I'm scared to death.
Also, I have started thinking about things such as marriage, and I keep thinking it's not fair to put someone through the pain of marrying me and having me die young.
I was just wondering if there was anyone out there who feels the same way I do, and wouldn't mind talking to me. I try to talk to my friends or my brothers but those who haven't gone through their entire life with CF just can't understand. Plus I don't like being pitied, and I hate people looking at me like I'm dying.
I hope I don't sound whiny, I just figured this would be the only place where people might understand and be able to help. Any advice or comments would be appreciated. My email is valentines_bunny@yahoo.com

 

[anonymous]

Hey I know exactly what you are going through......I've been with my boyfriend for almost two years. We live together and everything is great, but I always have in the back of my mind the "what if's" in my life. Why would he want to be with me when this is going to get a hold of me? Or why is he still with me? Is he just feeling sorry for me? I can't keep looking at all the negatives about this disease. Instead I try my hardest by looking at what I can do for my health and especially for my happiness. We only have this life and we NEED to make the best of it. People don't need to pity us, we do it enough ourselves. Life is very scary. We don't know how we're going to feel in a week or in 12 hours, but we do the best we can. I strongly believe in the power of prayer and sometimes all we have is our hope and prayers. Don't ever let go of hope because sometimes that's all we have left. Things are going to be great some days and crappy on other days. Don't give up!!! It sucks and it's hard, but God would never give us something we couldn't handle......Remember that. I would never wish this on my brother and sisters. I can handle this and in a way I'm glad it was me that has CF. I could never see them in pain and sadness, but me... I can handle this and still smile. If you need to talk email me......liotan46@yahoo.com.....Hope you feel better soon...SMILE!!!! Mari 24 w/CF

 

[anonymous]

Hello !

My sister is 25 on Saturday and has CF she also has been with her boyfriend for 6 years and I believe this is one of the reasons she is doing so well and is so happy. I think that by the sounds of it, you will make someone very happy and you will never ever let anyone down.
Even though I am in England I am happy to talk and please email me if you just want to talk about annything at all !!

Jack

jack.baker@reed.co.uk