Ok do you want to hear about my day from h**l. Well took my son for surgery this morning, had to get up at 3:20 a.m. after going to bed at 11:00 p.m. (ok not to bad) We do the first breathing treatment of the day at 3:30 a.m. We drive 2 hours one way and get there early at 6:00 a.m. we were suppose to be there at 6:30 a.m. good. We go to surgery waiting room and sit for 1.5 hours --ok. They come and tell us they don't have us down until 1:00 p.m.--- no I told them they told us to be there at 6:30 a.m., ok they say we'll check it out. we sit, ok they take us to pre-op. Where we sit for 5 MORE hours, with my 4 year old running around and bored and me falling out of my chair so sleepy. The doctor comes and tells me it will be right after these two twins gettting tonsils out --- 1 more hour EACH, why couldn't he just take us before we had been waiting for 5 hours just in pre-op area, they just got there, and my sons procedure was to be only 20 minutes long, just clean out the junk in his nose from his sinus surgery three weeks ago. OF-- finally he gets in and it takes 30 minutes and then to post recovery for 3 hours, I told them to get me there before he wakes, well he is awake before I get there and upset...............He has to see me when he first wakes up. He is also mad because he has a port and they won't use it for surgery, they use his arm, which makes us both mad. That is why we have the port................... Why can't they use it??? Ok now a 2 hour drive home and drop off the precription, oh they can't fill because doctor didn't put on the dosage, they say they will have to wait, I make calls for 1.5 hours to get the medicine filled, get the doctor and he calls the pharmacy. I call the pharmacy and they tell me can't fill with any 3 of our insurance coverages, need prior authorization, what we need now. I gave them the doctors number let them call, that is their job per the nurse at the hospital. Well it is after closing time no call from the pharmacy---surprise. I wish sometimes those people could walk in my shoes for one day. It makes me so mad sometimes. My husband is out of state and I am all alone with 3 of my 4 kids. One who is very demaning with her chromosome deletion disorder. I feel like I am going crazy. HELP.......... I knew I could vent here because you all know what I am talking about. We live in a different world, having or caring & loving someone with cf. We need more awareness!!!!!!!!! Thanks for listening!!!
I didn't sign in because you all would think I had flipped out.
Angie
I didn't sign in because you all would think I had flipped out.
Angie