Need your option - separate ends of the spectrum?!

[crickit715]

i can only say my daughter has been on pulmozyme since 3 weeks of age and on the vest since 12months....she is 18 months now and was just hospitalized for her first "major lung issue" (bronchoscopy).... i feel more comfortable with an aggressive approach rather to my daughters treatment, but everyone is different.

 

[crickit715]

i can only say my daughter has been on pulmozyme since 3 weeks of age and on the vest since 12months....she is 18 months now and was just hospitalized for her first "major lung issue" (bronchoscopy).... i feel more comfortable with an aggressive approach rather to my daughters treatment, but everyone is different.

 

[crickit715]

i can only say my daughter has been on pulmozyme since 3 weeks of age and on the vest since 12months....she is 18 months now and was just hospitalized for her first "major lung issue" (bronchoscopy).... i feel more comfortable with an aggressive approach rather to my daughters treatment, but everyone is different.

 

[crickit715]

i can only say my daughter has been on pulmozyme since 3 weeks of age and on the vest since 12months....she is 18 months now and was just hospitalized for her first "major lung issue" (bronchoscopy).... i feel more comfortable with an aggressive approach rather to my daughters treatment, but everyone is different.

 

[crickit715]

i can only say my daughter has been on pulmozyme since 3 weeks of age and on the vest since 12months....she is 18 months now and was just hospitalized for her first "major lung issue" (bronchoscopy).... i feel more comfortable with an aggressive approach rather to my daughters treatment, but everyone is different.

 

[saveferris2009]

In terms of the Vest, I'd go with the #1 CF center in the nation / the man who invented the device....

Vest right away.

Manual CPT is variable - no two CPT sessions are the same. With the Vest, each session is identical and controllable... with the highest quality.

Take care

 

[saveferris2009]

In terms of the Vest, I'd go with the #1 CF center in the nation / the man who invented the device....

Vest right away.

Manual CPT is variable - no two CPT sessions are the same. With the Vest, each session is identical and controllable... with the highest quality.

Take care

 

[saveferris2009]

In terms of the Vest, I'd go with the #1 CF center in the nation / the man who invented the device....

Vest right away.

Manual CPT is variable - no two CPT sessions are the same. With the Vest, each session is identical and controllable... with the highest quality.

Take care

 

[saveferris2009]

In terms of the Vest, I'd go with the #1 CF center in the nation / the man who invented the device....

Vest right away.

Manual CPT is variable - no two CPT sessions are the same. With the Vest, each session is identical and controllable... with the highest quality.

Take care

 

[saveferris2009]

In terms of the Vest, I'd go with the #1 CF center in the nation / the man who invented the device....
<br />
<br />Vest right away.
<br />
<br />Manual CPT is variable - no two CPT sessions are the same. With the Vest, each session is identical and controllable... with the highest quality.
<br />
<br />Take care

 

[izemmom]

I'd have to go with the more aggressive/preventative center. The "sutter" reccommendations seem very similar to what we've experienced. Emily has been on Pulmozyme for a long time, probably since she was about a year old. Like Heather's doc, our doc was quick to put her on it after I brought it up. I think that the fact that Sutter is surprised at the low doseage of enzyme is telling, too. They are surprised because they have a higher standard of care, in my opinion.

It's not an easy decision, and you have so many factors to consider. Is it possible for both clinics to give you referrals - families who use them that you can speak frankly to? Can't hurt to ask!

Good luck, and keep us posted.

 

[izemmom]

I'd have to go with the more aggressive/preventative center. The "sutter" reccommendations seem very similar to what we've experienced. Emily has been on Pulmozyme for a long time, probably since she was about a year old. Like Heather's doc, our doc was quick to put her on it after I brought it up. I think that the fact that Sutter is surprised at the low doseage of enzyme is telling, too. They are surprised because they have a higher standard of care, in my opinion.

It's not an easy decision, and you have so many factors to consider. Is it possible for both clinics to give you referrals - families who use them that you can speak frankly to? Can't hurt to ask!

Good luck, and keep us posted.

 

[izemmom]

I'd have to go with the more aggressive/preventative center. The "sutter" reccommendations seem very similar to what we've experienced. Emily has been on Pulmozyme for a long time, probably since she was about a year old. Like Heather's doc, our doc was quick to put her on it after I brought it up. I think that the fact that Sutter is surprised at the low doseage of enzyme is telling, too. They are surprised because they have a higher standard of care, in my opinion.

It's not an easy decision, and you have so many factors to consider. Is it possible for both clinics to give you referrals - families who use them that you can speak frankly to? Can't hurt to ask!

Good luck, and keep us posted.

 

[izemmom]

I'd have to go with the more aggressive/preventative center. The "sutter" reccommendations seem very similar to what we've experienced. Emily has been on Pulmozyme for a long time, probably since she was about a year old. Like Heather's doc, our doc was quick to put her on it after I brought it up. I think that the fact that Sutter is surprised at the low doseage of enzyme is telling, too. They are surprised because they have a higher standard of care, in my opinion.

It's not an easy decision, and you have so many factors to consider. Is it possible for both clinics to give you referrals - families who use them that you can speak frankly to? Can't hurt to ask!

Good luck, and keep us posted.

 

[izemmom]

I'd have to go with the more aggressive/preventative center. The "sutter" reccommendations seem very similar to what we've experienced. Emily has been on Pulmozyme for a long time, probably since she was about a year old. Like Heather's doc, our doc was quick to put her on it after I brought it up. I think that the fact that Sutter is surprised at the low doseage of enzyme is telling, too. They are surprised because they have a higher standard of care, in my opinion.
<br />
<br />It's not an easy decision, and you have so many factors to consider. Is it possible for both clinics to give you referrals - families who use them that you can speak frankly to? Can't hurt to ask!
<br />
<br />Good luck, and keep us posted.

 

[hmw]

Without set clinic days, do they still ensure that the whole team sees your child at their appts? This would be important to me.

I agree with the others that I would prefer a more proactive approach to care. The enzyme thing would be a big deal to me too. I wish the very best in your decision-making.

 

[hmw]

Without set clinic days, do they still ensure that the whole team sees your child at their appts? This would be important to me.

I agree with the others that I would prefer a more proactive approach to care. The enzyme thing would be a big deal to me too. I wish the very best in your decision-making.

 

[hmw]

Without set clinic days, do they still ensure that the whole team sees your child at their appts? This would be important to me.

I agree with the others that I would prefer a more proactive approach to care. The enzyme thing would be a big deal to me too. I wish the very best in your decision-making.

 

[hmw]

Without set clinic days, do they still ensure that the whole team sees your child at their appts? This would be important to me.

I agree with the others that I would prefer a more proactive approach to care. The enzyme thing would be a big deal to me too. I wish the very best in your decision-making.

 

[hmw]

Without set clinic days, do they still ensure that the whole team sees your child at their appts? This would be important to me.
<br />
<br />I agree with the others that I would prefer a more proactive approach to care. The enzyme thing would be a big deal to me too. I wish the very best in your decision-making.