New, Diagnosed at 6 days

[websterhome]

Thank you so much - you're right, not exactly where I wanted to be... It is a reassuring feeling to know there are others out there going through similar scenarios. What are some of the best tricks you've found to prevent infection?

 

[websterhome]

Thank you so much - you're right, not exactly where I wanted to be... It is a reassuring feeling to know there are others out there going through similar scenarios. What are some of the best tricks you've found to prevent infection?

 

[websterhome]

Thank you so much - you're right, not exactly where I wanted to be... It is a reassuring feeling to know there are others out there going through similar scenarios. What are some of the best tricks you've found to prevent infection?

 

[websterhome]

Thank you so much - you're right, not exactly where I wanted to be... It is a reassuring feeling to know there are others out there going through similar scenarios. What are some of the best tricks you've found to prevent infection?

 

[websterhome]

Thank you so much - you're right, not exactly where I wanted to be... It is a reassuring feeling to know there are others out there going through similar scenarios. What are some of the best tricks you've found to prevent infection?

 

[Mommafirst]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>websterhome</b></i>

What are some of the best tricks you've found to prevent infection?</end quote></div>

Good question, but I don't know that there is an answer. Other than being germ conscious (washing hands a lot, purell, lysol wipes around the home and at restaurants...) you kind of just have to get to a place where you let them live a normal childhood -- germs and all. I don't let actively sick people come hang out with my daughter, but otherwise I just think that despite the fear you come to a place where you just have to live. I've yet to find a bubble big enough to put my daughter in it <img src="i/expressions/face-icon-small-wink.gif" border="0">

I should say though that keeping up with airway clearance and keeping good weight on your CFer are both helpful in keeping infection away. But know that even if you do it all right, it doesn't guarantee that you CFer won't have bouts of illness or hospitalizations.

 

[Mommafirst]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>websterhome</b></i>

What are some of the best tricks you've found to prevent infection?</end quote></div>

Good question, but I don't know that there is an answer. Other than being germ conscious (washing hands a lot, purell, lysol wipes around the home and at restaurants...) you kind of just have to get to a place where you let them live a normal childhood -- germs and all. I don't let actively sick people come hang out with my daughter, but otherwise I just think that despite the fear you come to a place where you just have to live. I've yet to find a bubble big enough to put my daughter in it <img src="i/expressions/face-icon-small-wink.gif" border="0">

I should say though that keeping up with airway clearance and keeping good weight on your CFer are both helpful in keeping infection away. But know that even if you do it all right, it doesn't guarantee that you CFer won't have bouts of illness or hospitalizations.

 

[Mommafirst]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>websterhome</b></i>

What are some of the best tricks you've found to prevent infection?</end quote></div>

Good question, but I don't know that there is an answer. Other than being germ conscious (washing hands a lot, purell, lysol wipes around the home and at restaurants...) you kind of just have to get to a place where you let them live a normal childhood -- germs and all. I don't let actively sick people come hang out with my daughter, but otherwise I just think that despite the fear you come to a place where you just have to live. I've yet to find a bubble big enough to put my daughter in it <img src="i/expressions/face-icon-small-wink.gif" border="0">

I should say though that keeping up with airway clearance and keeping good weight on your CFer are both helpful in keeping infection away. But know that even if you do it all right, it doesn't guarantee that you CFer won't have bouts of illness or hospitalizations.

 

[Mommafirst]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>websterhome</b></i>

What are some of the best tricks you've found to prevent infection?</end quote>

Good question, but I don't know that there is an answer. Other than being germ conscious (washing hands a lot, purell, lysol wipes around the home and at restaurants...) you kind of just have to get to a place where you let them live a normal childhood -- germs and all. I don't let actively sick people come hang out with my daughter, but otherwise I just think that despite the fear you come to a place where you just have to live. I've yet to find a bubble big enough to put my daughter in it <img src="i/expressions/face-icon-small-wink.gif" border="0">

I should say though that keeping up with airway clearance and keeping good weight on your CFer are both helpful in keeping infection away. But know that even if you do it all right, it doesn't guarantee that you CFer won't have bouts of illness or hospitalizations.

 

[Mommafirst]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>websterhome</b></i>
<br />
<br /> What are some of the best tricks you've found to prevent infection?</end quote>
<br />
<br />Good question, but I don't know that there is an answer. Other than being germ conscious (washing hands a lot, purell, lysol wipes around the home and at restaurants...) you kind of just have to get to a place where you let them live a normal childhood -- germs and all. I don't let actively sick people come hang out with my daughter, but otherwise I just think that despite the fear you come to a place where you just have to live. I've yet to find a bubble big enough to put my daughter in it <img src="i/expressions/face-icon-small-wink.gif" border="0">
<br />
<br />I should say though that keeping up with airway clearance and keeping good weight on your CFer are both helpful in keeping infection away. But know that even if you do it all right, it doesn't guarantee that you CFer won't have bouts of illness or hospitalizations.

 

[JORDYSMOM]

Welcome! I think it's great you have started CPT so early. Prevention is the key with this disease, and getting a child used to the treatments is paramount. They will be much less likely to fight you on it later.

I hope you find this site to be as helpful as I have. I look forward to getting to know you better.

Stacey

 

[JORDYSMOM]

Welcome! I think it's great you have started CPT so early. Prevention is the key with this disease, and getting a child used to the treatments is paramount. They will be much less likely to fight you on it later.

I hope you find this site to be as helpful as I have. I look forward to getting to know you better.

Stacey

 

[JORDYSMOM]

Welcome! I think it's great you have started CPT so early. Prevention is the key with this disease, and getting a child used to the treatments is paramount. They will be much less likely to fight you on it later.

I hope you find this site to be as helpful as I have. I look forward to getting to know you better.

Stacey

 

[JORDYSMOM]

Welcome! I think it's great you have started CPT so early. Prevention is the key with this disease, and getting a child used to the treatments is paramount. They will be much less likely to fight you on it later.

I hope you find this site to be as helpful as I have. I look forward to getting to know you better.

Stacey

 

[JORDYSMOM]

Welcome! I think it's great you have started CPT so early. Prevention is the key with this disease, and getting a child used to the treatments is paramount. They will be much less likely to fight you on it later.
<br />
<br />I hope you find this site to be as helpful as I have. I look forward to getting to know you better.
<br />
<br />Stacey

 

[Rebjane]

Welcome! I am also an RN and my daughter is now almost 6 with CF. Being an RN has it's positives and negatives. We are able to work the health care system, push past some of the BS. However, sometimes I worry about things that someone not in the health care field may not worry about; so it can be a heavy burden to have some of that knowledge. Anyway, Prevention like the others have said is key. The winters are usually a little more stressful...I used to feel like the germ police. Just do your best; breastfeeding is so awesome for your baby's immune system and digestive system. Sounds like your baby is doing well on breatmilk so keep it up as long as you can! I breastfed my daughter with CF until she was over 3 (years old that is <img src="i/expressions/face-icon-small-smile.gif" border="0">)

 

[Rebjane]

Welcome! I am also an RN and my daughter is now almost 6 with CF. Being an RN has it's positives and negatives. We are able to work the health care system, push past some of the BS. However, sometimes I worry about things that someone not in the health care field may not worry about; so it can be a heavy burden to have some of that knowledge. Anyway, Prevention like the others have said is key. The winters are usually a little more stressful...I used to feel like the germ police. Just do your best; breastfeeding is so awesome for your baby's immune system and digestive system. Sounds like your baby is doing well on breatmilk so keep it up as long as you can! I breastfed my daughter with CF until she was over 3 (years old that is <img src="i/expressions/face-icon-small-smile.gif" border="0">)

 

[Rebjane]

Welcome! I am also an RN and my daughter is now almost 6 with CF. Being an RN has it's positives and negatives. We are able to work the health care system, push past some of the BS. However, sometimes I worry about things that someone not in the health care field may not worry about; so it can be a heavy burden to have some of that knowledge. Anyway, Prevention like the others have said is key. The winters are usually a little more stressful...I used to feel like the germ police. Just do your best; breastfeeding is so awesome for your baby's immune system and digestive system. Sounds like your baby is doing well on breatmilk so keep it up as long as you can! I breastfed my daughter with CF until she was over 3 (years old that is <img src="i/expressions/face-icon-small-smile.gif" border="0">)

 

[Rebjane]

Welcome! I am also an RN and my daughter is now almost 6 with CF. Being an RN has it's positives and negatives. We are able to work the health care system, push past some of the BS. However, sometimes I worry about things that someone not in the health care field may not worry about; so it can be a heavy burden to have some of that knowledge. Anyway, Prevention like the others have said is key. The winters are usually a little more stressful...I used to feel like the germ police. Just do your best; breastfeeding is so awesome for your baby's immune system and digestive system. Sounds like your baby is doing well on breatmilk so keep it up as long as you can! I breastfed my daughter with CF until she was over 3 (years old that is <img src="i/expressions/face-icon-small-smile.gif" border="0">)

 

[Rebjane]

Welcome! I am also an RN and my daughter is now almost 6 with CF. Being an RN has it's positives and negatives. We are able to work the health care system, push past some of the BS. However, sometimes I worry about things that someone not in the health care field may not worry about; so it can be a heavy burden to have some of that knowledge. Anyway, Prevention like the others have said is key. The winters are usually a little more stressful...I used to feel like the germ police. Just do your best; breastfeeding is so awesome for your baby's immune system and digestive system. Sounds like your baby is doing well on breatmilk so keep it up as long as you can! I breastfed my daughter with CF until she was over 3 (years old that is <img src="i/expressions/face-icon-small-smile.gif" border="0">)