Hi everyone, I'm a 20 year old male with CF living in Columbia SC. A little about myself...
FEV1 has hung around 20-25 since 2007
B Cepacia (Duke is only place that will transplant me)
5'10" 110 lbs. Never been able to gain weight, only on steroids
2/2006 Started having pneumos, 4 to date
9/2006 G-Tube put in
2/2008 Had pleurodesis (right lung)
9/2009 Had consult week at Duke
10/2009 Started pulmonary rehab
5/2010 Decided not to get transplant
11/2010 Last major hospitalization
1/2011 Decided TO GET transplant
2/2011 Restarted pulmonary rehab
I'm to a point with CF I couldn't prepare myself for, it's such a significant part of every second now and I guess I need to join a community to read about, and hopefully help out some of my questions. Finally had to put on the oxygen for good in November, and finally had to buy a wheelchair in the last month. My interests are in transplant and post transplant, fitness for the shape I'm in now and hopefully post transplant, and nutrition before/after. I regret waiting this long to try and gain knowledge but hopefully within a year I can lead a productive life again. Personally I like racing and golf, all my favorite TV shows are comedies, and I sim race online a lot. Thanks for having me.
FEV1 has hung around 20-25 since 2007
B Cepacia (Duke is only place that will transplant me)
5'10" 110 lbs. Never been able to gain weight, only on steroids
2/2006 Started having pneumos, 4 to date
9/2006 G-Tube put in
2/2008 Had pleurodesis (right lung)
9/2009 Had consult week at Duke
10/2009 Started pulmonary rehab
5/2010 Decided not to get transplant
11/2010 Last major hospitalization
1/2011 Decided TO GET transplant
2/2011 Restarted pulmonary rehab
I'm to a point with CF I couldn't prepare myself for, it's such a significant part of every second now and I guess I need to join a community to read about, and hopefully help out some of my questions. Finally had to put on the oxygen for good in November, and finally had to buy a wheelchair in the last month. My interests are in transplant and post transplant, fitness for the shape I'm in now and hopefully post transplant, and nutrition before/after. I regret waiting this long to try and gain knowledge but hopefully within a year I can lead a productive life again. Personally I like racing and golf, all my favorite TV shows are comedies, and I sim race online a lot. Thanks for having me.