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Hello! I have a boy 8 wcf. It is hard to hear them tell you that it is cf but like you it was a relief for me because then the things that were not right made sense and I was not going crazy! NOT THEN ANYWAY!lol( not sure about now )
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
Hello! I have a boy 8 wcf. It is hard to hear them tell you that it is cf but like you it was a relief for me because then the things that were not right made sense and I was not going crazy! NOT THEN ANYWAY!lol( not sure about now )
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
Hello! I have a boy 8 wcf. It is hard to hear them tell you that it is cf but like you it was a relief for me because then the things that were not right made sense and I was not going crazy! NOT THEN ANYWAY!lol( not sure about now )
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
Hello! I have a boy 8 wcf. It is hard to hear them tell you that it is cf but like you it was a relief for me because then the things that were not right made sense and I was not going crazy! NOT THEN ANYWAY!lol( not sure about now )
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
Hello! I have a boy 8 wcf. It is hard to hear them tell you that it is cf but like you it was a relief for me because then the things that were not right made sense and I was not going crazy! NOT THEN ANYWAY!lol( not sure about now )
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
Hello! I have a boy 8 wcf. It is hard to hear them tell you that it is cf but like you it was a relief for me because then the things that were not right made sense and I was not going crazy! NOT THEN ANYWAY!lol( not sure about now )
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
just remember, no question is stupid, no feeling unjustified, applesauce will go everywhere but in the mouth, you WILL become a POOP expert and I hope you have no sense of smell! Remember to pack away the bubble wrap and laugh when you can!
Glad to meet you!
Hi - I'm new to this site. I'm 5 months pregnant and just found out that my baby has CF. I have two other children (4yrs and 2 1/2yrs) that I now need to get tested. I was not aware that I was a carrier nor was my husband. The baby (due in January 08) has the Double Delta F508. I was told by my doctor that although its the most common gene --it is the most severe. I'm just getting started in learning more about this disease. Just wondering if there are parents out there with a child (or children) with the same gene (the double delta f508). Looking for any informaiton I can get at this point. I'm scared but I refuse to believe that this baby can't have a good, healthy life. I want to do anything and everything I can before this little one arrives so that I can ensure only the best for them. Any thoughts, susggestions, personal experiences are very welcomed.
thank you
thank you
Hi - I'm new to this site. I'm 5 months pregnant and just found out that my baby has CF. I have two other children (4yrs and 2 1/2yrs) that I now need to get tested. I was not aware that I was a carrier nor was my husband. The baby (due in January 08) has the Double Delta F508. I was told by my doctor that although its the most common gene --it is the most severe. I'm just getting started in learning more about this disease. Just wondering if there are parents out there with a child (or children) with the same gene (the double delta f508). Looking for any informaiton I can get at this point. I'm scared but I refuse to believe that this baby can't have a good, healthy life. I want to do anything and everything I can before this little one arrives so that I can ensure only the best for them. Any thoughts, susggestions, personal experiences are very welcomed.
thank you
thank you
Hi - I'm new to this site. I'm 5 months pregnant and just found out that my baby has CF. I have two other children (4yrs and 2 1/2yrs) that I now need to get tested. I was not aware that I was a carrier nor was my husband. The baby (due in January 08) has the Double Delta F508. I was told by my doctor that although its the most common gene --it is the most severe. I'm just getting started in learning more about this disease. Just wondering if there are parents out there with a child (or children) with the same gene (the double delta f508). Looking for any informaiton I can get at this point. I'm scared but I refuse to believe that this baby can't have a good, healthy life. I want to do anything and everything I can before this little one arrives so that I can ensure only the best for them. Any thoughts, susggestions, personal experiences are very welcomed.
thank you
thank you
Hi - I'm new to this site. I'm 5 months pregnant and just found out that my baby has CF. I have two other children (4yrs and 2 1/2yrs) that I now need to get tested. I was not aware that I was a carrier nor was my husband. The baby (due in January 08) has the Double Delta F508. I was told by my doctor that although its the most common gene --it is the most severe. I'm just getting started in learning more about this disease. Just wondering if there are parents out there with a child (or children) with the same gene (the double delta f508). Looking for any informaiton I can get at this point. I'm scared but I refuse to believe that this baby can't have a good, healthy life. I want to do anything and everything I can before this little one arrives so that I can ensure only the best for them. Any thoughts, susggestions, personal experiences are very welcomed.
thank you
thank you
Hi - I'm new to this site. I'm 5 months pregnant and just found out that my baby has CF. I have two other children (4yrs and 2 1/2yrs) that I now need to get tested. I was not aware that I was a carrier nor was my husband. The baby (due in January 08) has the Double Delta F508. I was told by my doctor that although its the most common gene --it is the most severe. I'm just getting started in learning more about this disease. Just wondering if there are parents out there with a child (or children) with the same gene (the double delta f508). Looking for any informaiton I can get at this point. I'm scared but I refuse to believe that this baby can't have a good, healthy life. I want to do anything and everything I can before this little one arrives so that I can ensure only the best for them. Any thoughts, susggestions, personal experiences are very welcomed.
thank you
thank you
Hi kcp - Welcome- I'm sure it was hard to hear about your baby. My son is 10 yrs old and he is a double delta. I will tell you that no 2 kids are the same when it comes to CF even if they have the same mutations. So far Tanner has been pretty healthy. He has mainly sinus polyp issues (4 surgerys so far) and some digestion. His lung function is in the 90's and hasn't ever been in the hospital after he was diagnosed when he was 6 months old. I very devestated when he was diagnosed!
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.
Hi kcp - Welcome- I'm sure it was hard to hear about your baby. My son is 10 yrs old and he is a double delta. I will tell you that no 2 kids are the same when it comes to CF even if they have the same mutations. So far Tanner has been pretty healthy. He has mainly sinus polyp issues (4 surgerys so far) and some digestion. His lung function is in the 90's and hasn't ever been in the hospital after he was diagnosed when he was 6 months old. I very devestated when he was diagnosed!
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.
Hi kcp - Welcome- I'm sure it was hard to hear about your baby. My son is 10 yrs old and he is a double delta. I will tell you that no 2 kids are the same when it comes to CF even if they have the same mutations. So far Tanner has been pretty healthy. He has mainly sinus polyp issues (4 surgerys so far) and some digestion. His lung function is in the 90's and hasn't ever been in the hospital after he was diagnosed when he was 6 months old. I very devestated when he was diagnosed!
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.
Hi kcp - Welcome- I'm sure it was hard to hear about your baby. My son is 10 yrs old and he is a double delta. I will tell you that no 2 kids are the same when it comes to CF even if they have the same mutations. So far Tanner has been pretty healthy. He has mainly sinus polyp issues (4 surgerys so far) and some digestion. His lung function is in the 90's and hasn't ever been in the hospital after he was diagnosed when he was 6 months old. I very devestated when he was diagnosed!
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.
Hi kcp - Welcome- I'm sure it was hard to hear about your baby. My son is 10 yrs old and he is a double delta. I will tell you that no 2 kids are the same when it comes to CF even if they have the same mutations. So far Tanner has been pretty healthy. He has mainly sinus polyp issues (4 surgerys so far) and some digestion. His lung function is in the 90's and hasn't ever been in the hospital after he was diagnosed when he was 6 months old. I very devestated when he was diagnosed!
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.
I didn't come and start learning here til Tanner was 9 and it has really helped me learn more about CF, but it was also a real eye opener for me and I realized how bad it can and will get - unfortunetly. But we live everyday like he is a normal kid and do his treatments and take his pills. He is very active in sports and no one really knows that he has CF unless we tell them. Good luck to your other 2 kids - I'll be praying that they don't have CF. If you have anyother questions - just let us know.