new here need help on cf

[stella]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stella</b></i>




hello i want to introduce my self i am new at the site.my name is stella and i am from greece.my brother was diagnosed with cf at the age of 20.he is now 26 he has digestive problems basically.his oxygen at the lungs does not reduce its almost 100%.he has losen weight and i dont know how to help him.he takes enzymes 2 per meal.he has the double f 508 gene(omozygous)?does anybody know if this double gene causes basically digestive problems to most?has any body any ideas of how weight can be ganed?i have heard that a plant clled courcoum from india dissapears the symptoms of cf?how can somebody know if he is a mild cfer?sorry for the many questions.hope all of you be fine all the time....

y.g do you know if saffron helps cfers?
y.g what does double f 508 gene means phenotypically?

 

[stella]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stella</b></i>




hello i want to introduce my self i am new at the site.my name is stella and i am from greece.my brother was diagnosed with cf at the age of 20.he is now 26 he has digestive problems basically.his oxygen at the lungs does not reduce its almost 100%.he has losen weight and i dont know how to help him.he takes enzymes 2 per meal.he has the double f 508 gene(omozygous)?does anybody know if this double gene causes basically digestive problems to most?has any body any ideas of how weight can be ganed?i have heard that a plant clled courcoum from india dissapears the symptoms of cf?how can somebody know if he is a mild cfer?sorry for the many questions.hope all of you be fine all the time....

y.g do you know if saffron helps cfers?
y.g what does double f 508 gene means phenotypically?

 

[stella]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stella</b></i>




hello i want to introduce my self i am new at the site.my name is stella and i am from greece.my brother was diagnosed with cf at the age of 20.he is now 26 he has digestive problems basically.his oxygen at the lungs does not reduce its almost 100%.he has losen weight and i dont know how to help him.he takes enzymes 2 per meal.he has the double f 508 gene(omozygous)?does anybody know if this double gene causes basically digestive problems to most?has any body any ideas of how weight can be ganed?i have heard that a plant clled courcoum from india dissapears the symptoms of cf?how can somebody know if he is a mild cfer?sorry for the many questions.hope all of you be fine all the time....

y.g do you know if saffron helps cfers?
y.g what does double f 508 gene means phenotypically?

 

[Mockingbird]

I don't see any reason why saffron would be a benefit; even if it was, that would be way too expensive. As for Curcumin, I know there are people on this site who have tried it, but I never followed the research myself, so hopefully one of them will chime in.

As for gaining weight, he might want to talk to his doctor about adjusting his enzyme dose. Or, perhaps his stomach is too acidic which would prevent the enzymes from working properly. In that case, he should ask his doctor about antacid medication. Or, maybe he simply isn't eating enough; what is his diet like?

 

[Mockingbird]

I don't see any reason why saffron would be a benefit; even if it was, that would be way too expensive. As for Curcumin, I know there are people on this site who have tried it, but I never followed the research myself, so hopefully one of them will chime in.

As for gaining weight, he might want to talk to his doctor about adjusting his enzyme dose. Or, perhaps his stomach is too acidic which would prevent the enzymes from working properly. In that case, he should ask his doctor about antacid medication. Or, maybe he simply isn't eating enough; what is his diet like?

 

[Mockingbird]

I don't see any reason why saffron would be a benefit; even if it was, that would be way too expensive. As for Curcumin, I know there are people on this site who have tried it, but I never followed the research myself, so hopefully one of them will chime in.

As for gaining weight, he might want to talk to his doctor about adjusting his enzyme dose. Or, perhaps his stomach is too acidic which would prevent the enzymes from working properly. In that case, he should ask his doctor about antacid medication. Or, maybe he simply isn't eating enough; what is his diet like?

 

[anonymous]

thank you for your response!probably he has to change the dose of enzymes talking to doctor.he doesn't eat properly i think he works all day,there are days he eats 2 sandwiches for lunch.but he has pains on stomach and choli often which makes him not to want to eat.i ask about saffron because we plant here saffron the best quality in the world,red saffron.antacid therapy works?

 

[anonymous]

thank you for your response!probably he has to change the dose of enzymes talking to doctor.he doesn't eat properly i think he works all day,there are days he eats 2 sandwiches for lunch.but he has pains on stomach and choli often which makes him not to want to eat.i ask about saffron because we plant here saffron the best quality in the world,red saffron.antacid therapy works?

 

[anonymous]

thank you for your response!probably he has to change the dose of enzymes talking to doctor.he doesn't eat properly i think he works all day,there are days he eats 2 sandwiches for lunch.but he has pains on stomach and choli often which makes him not to want to eat.i ask about saffron because we plant here saffron the best quality in the world,red saffron.antacid therapy works?

 

[anonymous]

He has to take different amounts of enzyms depending on how much fat he eats. As greek cooking is with many olive-oil, olives, lamb and other very fat stuff he has to try how much enzyms he needs for different meals. If you take not enough enzyms you get stomach pains.

Uli,44,Germany

 

[anonymous]

He has to take different amounts of enzyms depending on how much fat he eats. As greek cooking is with many olive-oil, olives, lamb and other very fat stuff he has to try how much enzyms he needs for different meals. If you take not enough enzyms you get stomach pains.

Uli,44,Germany

 

[anonymous]

He has to take different amounts of enzyms depending on how much fat he eats. As greek cooking is with many olive-oil, olives, lamb and other very fat stuff he has to try how much enzyms he needs for different meals. If you take not enough enzyms you get stomach pains.

Uli,44,Germany

 

[anonymous]

i am glad to learn a lot of things everyday because of all of you and i thank you for that.i' ve been to germany many years ago,my aunt lives at iserlohn,near dortmund.

 

[anonymous]

i am glad to learn a lot of things everyday because of all of you and i thank you for that.i' ve been to germany many years ago,my aunt lives at iserlohn,near dortmund.

 

[anonymous]

i am glad to learn a lot of things everyday because of all of you and i thank you for that.i' ve been to germany many years ago,my aunt lives at iserlohn,near dortmund.

 

[eli]

Hi Stella,

There should be a qualiied CF doc, somewhere in Greece. Maybe in the city, where the major hospitals are.

I live in Australia and have a 2yr old daughter with CF, but my background is Macedonian. Macedonia is a fairly poor country, maybe much worse than Greece.

But, i do know that in the city of Skpoje they have a specialist Cf clinic just for cf'ers.

Maybe try and do a search over the internet or even ask a local doctor for some advice.

Take care
Eli

 

[eli]

Hi Stella,

There should be a qualiied CF doc, somewhere in Greece. Maybe in the city, where the major hospitals are.

I live in Australia and have a 2yr old daughter with CF, but my background is Macedonian. Macedonia is a fairly poor country, maybe much worse than Greece.

But, i do know that in the city of Skpoje they have a specialist Cf clinic just for cf'ers.

Maybe try and do a search over the internet or even ask a local doctor for some advice.

Take care
Eli

 

[eli]

Hi Stella,

There should be a qualiied CF doc, somewhere in Greece. Maybe in the city, where the major hospitals are.

I live in Australia and have a 2yr old daughter with CF, but my background is Macedonian. Macedonia is a fairly poor country, maybe much worse than Greece.

But, i do know that in the city of Skpoje they have a specialist Cf clinic just for cf'ers.

Maybe try and do a search over the internet or even ask a local doctor for some advice.

Take care
Eli

 

[anonymous]

hallo eli as in fyrom as you say there is a center in athens its 7 hours away from us unfortunately.there is not a center in thessaloniki,a city near us,there are some doctors most, almost all, not specified on cf.anyway thanks for advice.

 

[anonymous]

hallo eli as in fyrom as you say there is a center in athens its 7 hours away from us unfortunately.there is not a center in thessaloniki,a city near us,there are some doctors most, almost all, not specified on cf.anyway thanks for advice.