Thank you. I am so sorry you are having to go through so much with your son too, I hope you find some answers soon. It is definitely one of the worst feelings in the world not knowing how to help your child. My daughter had some of those symptoms as a baby, I just didnt realize at the time what it could be. I am definitely going to push for the full genetic tests. Good luck to you also, I hope your son gets out of the hospital soon.
New Here...Question about sweat test?
- Thread starter Mom2Bri
- Start date
BaylorCrew07
New member
Mom2Bri - I did not read through all of the responses, as I'm short on time, but your daughter's symptoms sound exactly like mine. I had been seeing an asthma/allergy doctor my entire life, had 3 sinus surgeries, asthma meds, etc. and was finally diagnosed w/ CF when I was 20 years old.
I would urge you to get the genetic testing done - the full Ambry panel. My sweat test was borderline, and the stupid nurse was even talking to my dad "oh, I'm sure there is NO WAY she has CF, she looks healthy"... some people can be so stupid.
Anyway...hopefully your daughter does not have CF, but for peace of mind I would advise getting the genetic testing done.
I would urge you to get the genetic testing done - the full Ambry panel. My sweat test was borderline, and the stupid nurse was even talking to my dad "oh, I'm sure there is NO WAY she has CF, she looks healthy"... some people can be so stupid.
Anyway...hopefully your daughter does not have CF, but for peace of mind I would advise getting the genetic testing done.
BaylorCrew07
New member
Mom2Bri - I did not read through all of the responses, as I'm short on time, but your daughter's symptoms sound exactly like mine. I had been seeing an asthma/allergy doctor my entire life, had 3 sinus surgeries, asthma meds, etc. and was finally diagnosed w/ CF when I was 20 years old.
I would urge you to get the genetic testing done - the full Ambry panel. My sweat test was borderline, and the stupid nurse was even talking to my dad "oh, I'm sure there is NO WAY she has CF, she looks healthy"... some people can be so stupid.
Anyway...hopefully your daughter does not have CF, but for peace of mind I would advise getting the genetic testing done.
I would urge you to get the genetic testing done - the full Ambry panel. My sweat test was borderline, and the stupid nurse was even talking to my dad "oh, I'm sure there is NO WAY she has CF, she looks healthy"... some people can be so stupid.
Anyway...hopefully your daughter does not have CF, but for peace of mind I would advise getting the genetic testing done.
BaylorCrew07
New member
Mom2Bri - I did not read through all of the responses, as I'm short on time, but your daughter's symptoms sound exactly like mine. I had been seeing an asthma/allergy doctor my entire life, had 3 sinus surgeries, asthma meds, etc. and was finally diagnosed w/ CF when I was 20 years old.
<br />
<br />I would urge you to get the genetic testing done - the full Ambry panel. My sweat test was borderline, and the stupid nurse was even talking to my dad "oh, I'm sure there is NO WAY she has CF, she looks healthy"... some people can be so stupid.
<br />
<br />Anyway...hopefully your daughter does not have CF, but for peace of mind I would advise getting the genetic testing done.
<br />
<br />I would urge you to get the genetic testing done - the full Ambry panel. My sweat test was borderline, and the stupid nurse was even talking to my dad "oh, I'm sure there is NO WAY she has CF, she looks healthy"... some people can be so stupid.
<br />
<br />Anyway...hopefully your daughter does not have CF, but for peace of mind I would advise getting the genetic testing done.
Mom2Bri...hello there! This is a funny coincidence but my daughter just did a sweat test at Valley Children's Hospital in Madera recently too! We live in Visalia, California. First of all, best wishes getting a diagnosis. We've been working on one for three years now for our 7 year old daughter, so I know the rollercoaster you are riding. She's had odd, foamy, loose and floating stool for 5 years now, and 3 years ago she had some GI bleeding episodes, she's gone through 3 colonoscopies, had several significant findings on biopsies during these procedures but none of them led to a diagnosis. Her sweat tests were in the mid 30's the first time, and then dropped way down to 20. I ask myself, is it possible for a sweat test to vary by that much??? She's had one positive fecal fat test indicating fat malabsorption, and then one just came back last week negative. We are waiting on a pancreatic elastase test. I am planning on asking for genetic testing. Almost every stool of hers floats. Anyway, I think it's interesting we live in the same area. By the way, I heard from one source that Madera is an accredited CF center, and another that they are "working" on it.
Mom2Bri...hello there! This is a funny coincidence but my daughter just did a sweat test at Valley Children's Hospital in Madera recently too! We live in Visalia, California. First of all, best wishes getting a diagnosis. We've been working on one for three years now for our 7 year old daughter, so I know the rollercoaster you are riding. She's had odd, foamy, loose and floating stool for 5 years now, and 3 years ago she had some GI bleeding episodes, she's gone through 3 colonoscopies, had several significant findings on biopsies during these procedures but none of them led to a diagnosis. Her sweat tests were in the mid 30's the first time, and then dropped way down to 20. I ask myself, is it possible for a sweat test to vary by that much??? She's had one positive fecal fat test indicating fat malabsorption, and then one just came back last week negative. We are waiting on a pancreatic elastase test. I am planning on asking for genetic testing. Almost every stool of hers floats. Anyway, I think it's interesting we live in the same area. By the way, I heard from one source that Madera is an accredited CF center, and another that they are "working" on it.
Mom2Bri...hello there! This is a funny coincidence but my daughter just did a sweat test at Valley Children's Hospital in Madera recently too! We live in Visalia, California. First of all, best wishes getting a diagnosis. We've been working on one for three years now for our 7 year old daughter, so I know the rollercoaster you are riding. She's had odd, foamy, loose and floating stool for 5 years now, and 3 years ago she had some GI bleeding episodes, she's gone through 3 colonoscopies, had several significant findings on biopsies during these procedures but none of them led to a diagnosis. Her sweat tests were in the mid 30's the first time, and then dropped way down to 20. I ask myself, is it possible for a sweat test to vary by that much??? She's had one positive fecal fat test indicating fat malabsorption, and then one just came back last week negative. We are waiting on a pancreatic elastase test. I am planning on asking for genetic testing. Almost every stool of hers floats. Anyway, I think it's interesting we live in the same area. By the way, I heard from one source that Madera is an accredited CF center, and another that they are "working" on it.