New here

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ashmomo

New member
Welcome to the site. Sorry for your daughters diagnosis. I hope she is doing well so far <img src="i/expressions/face-icon-small-blush.gif" border="0">)
I have 2 daughters both with CF. Ages 5 and 10 months. I have learned most of what I know about CF from this VERY helpful website! The people on here can be alot of help when you need answers. Doctors don't tell you nearly everything about CF...make sure to do your own research as well.

Feel free to PM me anytime. Looks like you have your hands full!

Again, WELCOME!!

antonette1279: you might want to post your question in the 'newly diagnosed section' in a NEW post of it's own...or even the 'Families' section. It may not be seen here in the mix.
 
A

ashmomo

New member
Welcome to the site. Sorry for your daughters diagnosis. I hope she is doing well so far <img src="i/expressions/face-icon-small-blush.gif" border="0">)
I have 2 daughters both with CF. Ages 5 and 10 months. I have learned most of what I know about CF from this VERY helpful website! The people on here can be alot of help when you need answers. Doctors don't tell you nearly everything about CF...make sure to do your own research as well.

Feel free to PM me anytime. Looks like you have your hands full!

Again, WELCOME!!

antonette1279: you might want to post your question in the 'newly diagnosed section' in a NEW post of it's own...or even the 'Families' section. It may not be seen here in the mix.
 
A

ashmomo

New member
Welcome to the site. Sorry for your daughters diagnosis. I hope she is doing well so far <img src="i/expressions/face-icon-small-blush.gif" border="0">)
I have 2 daughters both with CF. Ages 5 and 10 months. I have learned most of what I know about CF from this VERY helpful website! The people on here can be alot of help when you need answers. Doctors don't tell you nearly everything about CF...make sure to do your own research as well.

Feel free to PM me anytime. Looks like you have your hands full!

Again, WELCOME!!

antonette1279: you might want to post your question in the 'newly diagnosed section' in a NEW post of it's own...or even the 'Families' section. It may not be seen here in the mix.
 
A

ashmomo

New member
Welcome to the site. Sorry for your daughters diagnosis. I hope she is doing well so far <img src="i/expressions/face-icon-small-blush.gif" border="0">)
I have 2 daughters both with CF. Ages 5 and 10 months. I have learned most of what I know about CF from this VERY helpful website! The people on here can be alot of help when you need answers. Doctors don't tell you nearly everything about CF...make sure to do your own research as well.

Feel free to PM me anytime. Looks like you have your hands full!

Again, WELCOME!!

antonette1279: you might want to post your question in the 'newly diagnosed section' in a NEW post of it's own...or even the 'Families' section. It may not be seen here in the mix.
 
A

ashmomo

New member
Welcome to the site. Sorry for your daughters diagnosis. I hope she is doing well so far <img src="i/expressions/face-icon-small-blush.gif" border="0">)
<br />I have 2 daughters both with CF. Ages 5 and 10 months. I have learned most of what I know about CF from this VERY helpful website! The people on here can be alot of help when you need answers. Doctors don't tell you nearly everything about CF...make sure to do your own research as well.
<br />
<br />Feel free to PM me anytime. Looks like you have your hands full!
<br />
<br />Again, WELCOME!!
<br />
<br />antonette1279: you might want to post your question in the 'newly diagnosed section' in a NEW post of it's own...or even the 'Families' section. It may not be seen here in the mix.
 
S

SadiesMom

New member
Hi Michelle

My daughter just turned a year old Feb 27, but like your daughter she was diagnosed shortly after birth, at four weeks old. It was devastating and I'm so sorry. With everything you read on the internet, the "what if"s can be quite scary. I hope you find this site as informational and helpful as I have. I didn't know much about CF when we started all this, and this site helped me learn but also made me an informed parent. I knew what questions to ask the doctors and was empowered to question their diagnosis and prescriptions. Sometimes I find that I am more up-to-date on current treatment trends then they are and it's all because I read the forum postings here.

That being said, my advice to you is to not read the blogs. At least for me, they made it harder and scarier. Just remember that no two cases are the same, even with the same mutations. Right now, I'm sure it seems like your whole world is topsy-turvy, but I promise it gets easier.
 
S

SadiesMom

New member
Hi Michelle

My daughter just turned a year old Feb 27, but like your daughter she was diagnosed shortly after birth, at four weeks old. It was devastating and I'm so sorry. With everything you read on the internet, the "what if"s can be quite scary. I hope you find this site as informational and helpful as I have. I didn't know much about CF when we started all this, and this site helped me learn but also made me an informed parent. I knew what questions to ask the doctors and was empowered to question their diagnosis and prescriptions. Sometimes I find that I am more up-to-date on current treatment trends then they are and it's all because I read the forum postings here.

That being said, my advice to you is to not read the blogs. At least for me, they made it harder and scarier. Just remember that no two cases are the same, even with the same mutations. Right now, I'm sure it seems like your whole world is topsy-turvy, but I promise it gets easier.
 
S

SadiesMom

New member
Hi Michelle

My daughter just turned a year old Feb 27, but like your daughter she was diagnosed shortly after birth, at four weeks old. It was devastating and I'm so sorry. With everything you read on the internet, the "what if"s can be quite scary. I hope you find this site as informational and helpful as I have. I didn't know much about CF when we started all this, and this site helped me learn but also made me an informed parent. I knew what questions to ask the doctors and was empowered to question their diagnosis and prescriptions. Sometimes I find that I am more up-to-date on current treatment trends then they are and it's all because I read the forum postings here.

That being said, my advice to you is to not read the blogs. At least for me, they made it harder and scarier. Just remember that no two cases are the same, even with the same mutations. Right now, I'm sure it seems like your whole world is topsy-turvy, but I promise it gets easier.
 
S

SadiesMom

New member
Hi Michelle

My daughter just turned a year old Feb 27, but like your daughter she was diagnosed shortly after birth, at four weeks old. It was devastating and I'm so sorry. With everything you read on the internet, the "what if"s can be quite scary. I hope you find this site as informational and helpful as I have. I didn't know much about CF when we started all this, and this site helped me learn but also made me an informed parent. I knew what questions to ask the doctors and was empowered to question their diagnosis and prescriptions. Sometimes I find that I am more up-to-date on current treatment trends then they are and it's all because I read the forum postings here.

That being said, my advice to you is to not read the blogs. At least for me, they made it harder and scarier. Just remember that no two cases are the same, even with the same mutations. Right now, I'm sure it seems like your whole world is topsy-turvy, but I promise it gets easier.
 
S

SadiesMom

New member
Hi Michelle
<br />
<br />My daughter just turned a year old Feb 27, but like your daughter she was diagnosed shortly after birth, at four weeks old. It was devastating and I'm so sorry. With everything you read on the internet, the "what if"s can be quite scary. I hope you find this site as informational and helpful as I have. I didn't know much about CF when we started all this, and this site helped me learn but also made me an informed parent. I knew what questions to ask the doctors and was empowered to question their diagnosis and prescriptions. Sometimes I find that I am more up-to-date on current treatment trends then they are and it's all because I read the forum postings here.
<br />
<br />That being said, my advice to you is to not read the blogs. At least for me, they made it harder and scarier. Just remember that no two cases are the same, even with the same mutations. Right now, I'm sure it seems like your whole world is topsy-turvy, but I promise it gets easier.
 
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