Going through much of the of the same BS at Shadyside in Pittsburgh at the moment (that's where they admit adult CFers). Some of it is due to a nursing crunch and them having to pull a lot of float nurses not used to the CF service and part of it is sheer laziness.<br><br>I had to speak with a floor supervisor to get what I needed, when I needed it. It's sad that in our healthcare you have to know enough about the standards of care as the docs and nurses do. <br><br>Not that just being sick is bad enough, now I have to do everybody else's job.<br>
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Going through much of the of the same BS at Shadyside in Pittsburgh at the moment (that's where they admit adult CFers). Some of it is due to a nursing crunch and them having to pull a lot of float nurses not used to the CF service and part of it is sheer laziness.<br><br>I had to speak with a floor supervisor to get what I needed, when I needed it. It's sad that in our healthcare you have to know enough about the standards of care as the docs and nurses do. <br><br>Not that just being sick is bad enough, now I have to do everybody else's job.<br>
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lizlas
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lizlas
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lizlas
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Iamqueenofeverything
New member
My advice is to let management know of this problem. if this happens to you, then then it's happening to someone else. Is there a number to call if you aren't being treated right? Does your main doctor know what happened?
Iamqueenofeverything
New member
My advice is to let management know of this problem. if this happens to you, then then it's happening to someone else. Is there a number to call if you aren't being treated right? Does your main doctor know what happened?
Iamqueenofeverything
New member
My advice is to let management know of this problem. if this happens to you, then then it's happening to someone else. Is there a number to call if you aren't being treated right? Does your main doctor know what happened?
<br>I have two words for you---DITCH them. I went to Hopkins when I first moved to MD, then realized that it was bad, you are not alone on that idea. When you are seen in clinic, it is by CF specialists. When you are admitted, you are on the "medical" floor (unless that has changed since 1998). I had a nurse that had no clue about treating CF. She would come in my room and hand me my meds, including my enzymes. She wanted to see me swallow them before she would leave. I told her that my breakfast had not arrived. She did not understand what the problem was, "just go ahead and take them, your breakfast will be here soon". I refused to take them, and tried to explain the purpose of the enzymes (believe it or not, I was trying to be tactful). She got all huffy and walked out, but did not return when I told them I was ready for my enzymes. You are expected to stay in your room pretty much at all times. Since I have been at Children's National Med Ctr in DC, it has been MUCH better. It is basically the same distance from my house (as Hopkins), since I live west of Frederick MD. The doctors are great, and are the same ones that care for you when you are admitted. The floor that you are admitted to are well aware of CF issues and treatments. As an inpatient, you are given a bottle of enzymes to keep in your drawer. You use them as you need them. They have an exersize room that you are encouraged to use to keep up activity level (if in isolation, they will bring you your own bike). They have computers to use, and you are allowed to go down to get food at the cafeteria. You can wander around at the gift shop and get a good cup of coffee from the cafeteria or kiosk. You can still get cabin fever, but it is a huge improvement over Hopkins!!!
<br>I have two words for you---DITCH them. I went to Hopkins when I first moved to MD, then realized that it was bad, you are not alone on that idea. When you are seen in clinic, it is by CF specialists. When you are admitted, you are on the "medical" floor (unless that has changed since 1998). I had a nurse that had no clue about treating CF. She would come in my room and hand me my meds, including my enzymes. She wanted to see me swallow them before she would leave. I told her that my breakfast had not arrived. She did not understand what the problem was, "just go ahead and take them, your breakfast will be here soon". I refused to take them, and tried to explain the purpose of the enzymes (believe it or not, I was trying to be tactful). She got all huffy and walked out, but did not return when I told them I was ready for my enzymes. You areexpected tostay in your roompretty much at all times. Since I have been at Children's National Med Ctr in DC, it has been MUCH better. It is basicallythe same distance from my house (as Hopkins),sinceI live west of Frederick MD. The doctors are great, and are the same ones that care for you when you are admitted. The floor that you are admitted to are well aware of CF issues and treatments. As an inpatient, you are given a bottle of enzymes to keep in your drawer. You use them as you need them. They have an exersize room that you are encouraged to use to keep up activity level (if in isolation, they will bring you your own bike). They have computers to use, and you are allowed to go down to get food at the cafeteria. You can wander around at the gift shop and get a good cup of coffee from the cafeteria or kiosk. You can still get cabin fever, but it is a huge improvement over Hopkins!!!
<br>I have two words for you---DITCH them. I went to Hopkins when I first moved to MD, then realized that it was bad, you are not alone on that idea. When you are seen in clinic, it is by CF specialists. When you are admitted, you are on the "medical" floor (unless that has changed since 1998). I had a nurse that had no clue about treating CF. She would come in my room and hand me my meds, including my enzymes. She wanted to see me swallow them before she would leave. I told her that my breakfast had not arrived. She did not understand what the problem was, "just go ahead and take them, your breakfast will be here soon". I refused to take them, and tried to explain the purpose of the enzymes (believe it or not, I was trying to be tactful). She got all huffy and walked out, but did not return when I told them I was ready for my enzymes. You areexpected tostay in your roompretty much at all times. Since I have been at Children's National Med Ctr in DC, it has been MUCH better. It is basicallythe same distance from my house (as Hopkins),sinceI live west of Frederick MD. The doctors are great, and are the same ones that care for you when you are admitted. The floor that you are admitted to are well aware of CF issues and treatments. As an inpatient, you are given a bottle of enzymes to keep in your drawer. You use them as you need them. They have an exersize room that you are encouraged to use to keep up activity level (if in isolation, they will bring you your own bike). They have computers to use, and you are allowed to go down to get food at the cafeteria. You can wander around at the gift shop and get a good cup of coffee from the cafeteria or kiosk. You can still get cabin fever, but it is a huge improvement over Hopkins!!!