B
bethylove
Guest
I recently moved to Maryland and started going to Clinic at Johns Hopkins. I only had one appointment before I ended up needing to go into the hospital. <div><br></div><div>I really liked the people I met at my first appointment, and it seemed like they knew what they were doing. Going into the hospital has been ... well, disappointing -- to say the least. </div><div><br></div><div>I'm not sure if it's just because I'm used to a different system, or if it's truly as bad as it seems, but after 5 days I cannot WAIT to leave (and I am NOT one to rush out the hospital). Mainly it's simple things like having to ask for a Contact PreCaution sign on my door due to having 2 different MRSA strands. And then once I got one put up, having to remind nurses, doctors, people who draw blood, etc. to go back out and put on gowns and gloves! </div><div><br></div><div>Or that it took 5 days to get an albuterol inhaler -- after repeatedly telling each Dr. that I still didn't have one. I kept getting the same response "Oh we'll have to fix that. We'll put that order right in" ...5 days later. grrrr</div><div><br></div><div>I also see a lot of "Whatever makes my life easier is what we're going to do" going on here. Example: RT comes once a night for chest PT. PT's perform PT during the day up to 3 times. Well my RT came to see me, looked up my chart info in the computer and told me "Oh, well your order is only for PT twice a day... did Pt come tap on you already twice?" </div><div><br></div><div>"Yes... but I'm not sure where you're going with this." Clearly she wanted to leave. And I called her out on it, she told me that she can stay if I think I need it. I told her I did and she set her watch for 5 minutes. After that she was gone. </div><div><br></div><div>Or the IV nurse giving my my 3rd IV kept asking 'why I just didn't have a port yet' because 'she lovesss them, so much easier to access''. and when I told her I wasn't sure I was ready for a port she asked how often I was in this year (3 visits so far... in 3 months =\) and she said something along the lines of 'you should just get one'. (It's a very personal decision and it's one I don't want to make for a while! ugh. ) I said something along those lines but she wouldn't drop it. </div><div><br></div><div>There's also a lot of poor communication. I was having an allergic reaction to an IV med my nurse had given me so I rang out to the nurses station to let them know I needed benadryl for my allergic reaction. 15 minutes later PT came to take me for a walk and I told her I was waiting on my benadryl. She went to find my nurse... turns out she didn't even get the message that I wasn't handling the Vancomycin well and needed Benadryl. I never got any benadryl and was itchy/firey/and numb for the full 1.5 hours my med ran. </div><div><br></div><div>I've been trying so hard to give this place a second chance and continue to have an open mind, but they are making it so hard! I feel that the CF center is okay but as far as being in patient it's a horrible experience. Am I being overly critical? Is there something I'm doing wrong as far as being a patient?? Is this level of disfunction normal and should I just get used to it? </div><div><br></div><div>I figured going to the number one hospital I'd be in good hands, but I've been nothing but disappointed since I've arrived. I didn't have really high expectations, I'm only comparing them to the last hospital I stayed at. =\ </div><div><br></div><div>Any advice? suggestions? comments? Reasons why you love Johns Hopkins? anything really? </div><div><br></div><div><br></div>