K
Kaethe108
Guest
We just use 0,9% so far. So sorry, I cannot help. Was does your CF Team suggest?
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
K
Kaethe108
Guest
We just use 0,9% so far. So sorry, I cannot help. Was does your CF Team suggest?
K
Kaethe108
Guest
We just use 0,9% so far. So sorry, I cannot help. Was does your CF Team suggest?
AleksandraKaczynska
New member
Hi - you can buy Hypertonic Saline 10 % and 0,9 % - we don't have 3 % nor 7% - but mix the above.
For ex. Asia has 5,45 % from mixing 2 ml 0,9% with 2 ml 10%. We got 3,175 % from mixing 1 ml 10% NaCl and 3 ml 0,9%. That's how we are told to do. We hope to be able to have a ready mix of 7% but still it's not produced.
However you need a perscription for larger numebrs for both of them.
For ex. Asia has 5,45 % from mixing 2 ml 0,9% with 2 ml 10%. We got 3,175 % from mixing 1 ml 10% NaCl and 3 ml 0,9%. That's how we are told to do. We hope to be able to have a ready mix of 7% but still it's not produced.
However you need a perscription for larger numebrs for both of them.
AleksandraKaczynska
New member
Hi - you can buy Hypertonic Saline 10 % and 0,9 % - we don't have 3 % nor 7% - but mix the above.
For ex. Asia has 5,45 % from mixing 2 ml 0,9% with 2 ml 10%. We got 3,175 % from mixing 1 ml 10% NaCl and 3 ml 0,9%. That's how we are told to do. We hope to be able to have a ready mix of 7% but still it's not produced.
However you need a perscription for larger numebrs for both of them.
For ex. Asia has 5,45 % from mixing 2 ml 0,9% with 2 ml 10%. We got 3,175 % from mixing 1 ml 10% NaCl and 3 ml 0,9%. That's how we are told to do. We hope to be able to have a ready mix of 7% but still it's not produced.
However you need a perscription for larger numebrs for both of them.
AleksandraKaczynska
New member
Hi - you can buy Hypertonic Saline 10 % and 0,9 % - we don't have 3 % nor 7% - but mix the above.
<br />For ex. Asia has 5,45 % from mixing 2 ml 0,9% with 2 ml 10%. We got 3,175 % from mixing 1 ml 10% NaCl and 3 ml 0,9%. That's how we are told to do. We hope to be able to have a ready mix of 7% but still it's not produced.
<br />However you need a perscription for larger numebrs for both of them.
<br />
<br />For ex. Asia has 5,45 % from mixing 2 ml 0,9% with 2 ml 10%. We got 3,175 % from mixing 1 ml 10% NaCl and 3 ml 0,9%. That's how we are told to do. We hope to be able to have a ready mix of 7% but still it's not produced.
<br />However you need a perscription for larger numebrs for both of them.
<br />
AleksandraKaczynska
New member
<br>
AleksandraKaczynska
New member
<br>
AleksandraKaczynska
New member
<br>
AleksandraKaczynska
New member
<br>
AleksandraKaczynska
New member
<br>
AleksandraKaczynska
New member
<br>
Hi Kaethe, for a second I thought your daughter had the same mutations as my son (F508/R1158X)... I hadn't meet or heard of anyone yet with the same mutations so I got excited haha.
My son was diagnosed after a few weeks of being born, because he had a Meconium illus (his large intestine was blocked) back in November of 2010.
As your daughter, he had just the pancreas problem and started on creon. We were living in Mexico and we moved to Houston in April because I think there is a better knowledge and treatments here for him.
He is now on Ventolin (inhaler) and Hypertonic solution (nebulizer) as a preventive measure. He has been 2 times in the hospital but just because he had colds that the doctors didn't want to become worst and his longs keep being clean after almost a year (as you say.. hopefully for much longer <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ).
This is the first time I post, I always just come here and read and I think this forum is really interesting and helpful, and it is nice to have people to talk to about CF.
Hope everything goes great and hopefully we can keep in touch! And remind us to be positive and with patience.
Sandra <img src="i/expressions/face-icon-small-smile.gif" border="0">
My son was diagnosed after a few weeks of being born, because he had a Meconium illus (his large intestine was blocked) back in November of 2010.
As your daughter, he had just the pancreas problem and started on creon. We were living in Mexico and we moved to Houston in April because I think there is a better knowledge and treatments here for him.
He is now on Ventolin (inhaler) and Hypertonic solution (nebulizer) as a preventive measure. He has been 2 times in the hospital but just because he had colds that the doctors didn't want to become worst and his longs keep being clean after almost a year (as you say.. hopefully for much longer <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ).
This is the first time I post, I always just come here and read and I think this forum is really interesting and helpful, and it is nice to have people to talk to about CF.
Hope everything goes great and hopefully we can keep in touch! And remind us to be positive and with patience.
Sandra <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hi Kaethe, for a second I thought your daughter had the same mutations as my son (F508/R1158X)... I hadn't meet or heard of anyone yet with the same mutations so I got excited haha.
My son was diagnosed after a few weeks of being born, because he had a Meconium illus (his large intestine was blocked) back in November of 2010.
As your daughter, he had just the pancreas problem and started on creon. We were living in Mexico and we moved to Houston in April because I think there is a better knowledge and treatments here for him.
He is now on Ventolin (inhaler) and Hypertonic solution (nebulizer) as a preventive measure. He has been 2 times in the hospital but just because he had colds that the doctors didn't want to become worst and his longs keep being clean after almost a year (as you say.. hopefully for much longer <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ).
This is the first time I post, I always just come here and read and I think this forum is really interesting and helpful, and it is nice to have people to talk to about CF.
Hope everything goes great and hopefully we can keep in touch! And remind us to be positive and with patience.
Sandra <img src="i/expressions/face-icon-small-smile.gif" border="0">
My son was diagnosed after a few weeks of being born, because he had a Meconium illus (his large intestine was blocked) back in November of 2010.
As your daughter, he had just the pancreas problem and started on creon. We were living in Mexico and we moved to Houston in April because I think there is a better knowledge and treatments here for him.
He is now on Ventolin (inhaler) and Hypertonic solution (nebulizer) as a preventive measure. He has been 2 times in the hospital but just because he had colds that the doctors didn't want to become worst and his longs keep being clean after almost a year (as you say.. hopefully for much longer <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ).
This is the first time I post, I always just come here and read and I think this forum is really interesting and helpful, and it is nice to have people to talk to about CF.
Hope everything goes great and hopefully we can keep in touch! And remind us to be positive and with patience.
Sandra <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hi Kaethe, for a second I thought your daughter had the same mutations as my son (F508/R1158X)... I hadn't meet or heard of anyone yet with the same mutations so I got excited haha.
<br />
<br />My son was diagnosed after a few weeks of being born, because he had a Meconium illus (his large intestine was blocked) back in November of 2010.
<br />
<br />As your daughter, he had just the pancreas problem and started on creon. We were living in Mexico and we moved to Houston in April because I think there is a better knowledge and treatments here for him.
<br />
<br />He is now on Ventolin (inhaler) and Hypertonic solution (nebulizer) as a preventive measure. He has been 2 times in the hospital but just because he had colds that the doctors didn't want to become worst and his longs keep being clean after almost a year (as you say.. hopefully for much longer <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ).
<br />
<br />This is the first time I post, I always just come here and read and I think this forum is really interesting and helpful, and it is nice to have people to talk to about CF.
<br />
<br />Hope everything goes great and hopefully we can keep in touch! And remind us to be positive and with patience.
<br />
<br />Sandra <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />
<br />My son was diagnosed after a few weeks of being born, because he had a Meconium illus (his large intestine was blocked) back in November of 2010.
<br />
<br />As your daughter, he had just the pancreas problem and started on creon. We were living in Mexico and we moved to Houston in April because I think there is a better knowledge and treatments here for him.
<br />
<br />He is now on Ventolin (inhaler) and Hypertonic solution (nebulizer) as a preventive measure. He has been 2 times in the hospital but just because he had colds that the doctors didn't want to become worst and his longs keep being clean after almost a year (as you say.. hopefully for much longer <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ).
<br />
<br />This is the first time I post, I always just come here and read and I think this forum is really interesting and helpful, and it is nice to have people to talk to about CF.
<br />
<br />Hope everything goes great and hopefully we can keep in touch! And remind us to be positive and with patience.
<br />
<br />Sandra <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
K
Kaethe108
Guest
I don't know all the English words and especially abbreviations, so maybe you can help me: what is the difference between inhaler and nebulizer. I guess so far we only use nebulizer (Pari). And what does vest mean?
K
Kaethe108
Guest
I don't know all the English words and especially abbreviations, so maybe you can help me: what is the difference between inhaler and nebulizer. I guess so far we only use nebulizer (Pari). And what does vest mean?
K
Kaethe108
Guest
I don't know all the English words and especially abbreviations, so maybe you can help me: what is the difference between inhaler and nebulizer. I guess so far we only use nebulizer (Pari). And what does vest mean?
AleksandraKaczynska
New member
The easiest way is for you to see and read about it yourself - I guess you can fing the same pages in German
<br>see
<br>http://www.thevest.com/
<br>some think it's great - some think of it as a gadget - I guess it all depends on waht you need at the moment.
<br>and
<br> see
<br>http://en.wikipedia.org/wiki/Inhaler
<br>nebulizer is your Pari <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>Some medicine can be given by inhaler's - but usually you'll propobly be using nebulizers not only for saline but also other medicines.
<br>
<br>see
<br>http://www.thevest.com/
<br>some think it's great - some think of it as a gadget - I guess it all depends on waht you need at the moment.
<br>and
<br> see
<br>http://en.wikipedia.org/wiki/Inhaler
<br>nebulizer is your Pari <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>Some medicine can be given by inhaler's - but usually you'll propobly be using nebulizers not only for saline but also other medicines.
<br>
AleksandraKaczynska
New member
The easiest way is for you to see and read about it yourself - I guess you can fing the same pages in German
<br>see
<br>http://www.thevest.com/
<br>some think it's great - some think of it as a gadget - I guess it all depends on waht you need at the moment.
<br>and
<br> see
<br>http://en.wikipedia.org/wiki/Inhaler
<br>nebulizer is your Pari <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>Some medicine can be given by inhaler's - but usually you'll propobly be using nebulizers not only for saline but also other medicines.
<br>
<br>see
<br>http://www.thevest.com/
<br>some think it's great - some think of it as a gadget - I guess it all depends on waht you need at the moment.
<br>and
<br> see
<br>http://en.wikipedia.org/wiki/Inhaler
<br>nebulizer is your Pari <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>Some medicine can be given by inhaler's - but usually you'll propobly be using nebulizers not only for saline but also other medicines.
<br>