New Members: We welcome you here!

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Ronmarun

New member
Just joined

Hi, my name is sharon, and I have a son who is 35 with cfrd I'm glad they have a forum that deals with cfer now I will learn more just as james does about his cf, and trust me he has taught me alot sense so long ago things have change when he was little, and I have alot of question that he can't answer but by reading what you all have posted gives me hope, and peace in my heart. So I hope that you good folks can put up with me, for I want to know all I can about cf, well all the new stuff that is, James has brought me up to speed to a part, but there are other things about cf that he can't answer for me. I'm glad to have new friends and I hope you will be a friend indeed.

sharon- mom of James with cfrd we live in Arkansas
 
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kayleesgrandma

New member
Just joined

My goodness--TWO NEW MEMBERS!!!! HA HA--Ronmarum--you piggybacked on the thread!!! <b>So welcome to both of you! </b> This forum has been life-changing for me, and is in my blood now. I have made lifetime friends here, and I can truly say that this site is my <img src="i/expressions/heart.gif" border="0">. I thank God for Jeanne, who started this site. I look forward to getting to know you both!

Andrea, could you add what you wrote to the <b>"who are you"</b> thread at the top of the forum page? It sure helps to go back and review who our new members are!

Sharon, you need to do that too--it's a neat way to keep on top of who you all are. Is James a member? Maybe you should intoduce him to us!!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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Jem

New member
Just joined

Welcome Andrea!

You have come to the right place to learn more about cf, to receive support, and hope for maintaining and improving your health. My FEV 1 had continually been going downhill until I found this website. Now each tome I go for my cf checkup my FEV 1 has been slowly increasing all due to the knowledge I have gained here and incorporated into my daily routine.
This website will open up a whole new chapter in your life especially as there are so many wonderful people who are part of this cf community that generously share their experiences and themselves openly and honestly. Looking forward to reading your posts...see you around the forum.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
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Jem

New member
Just joined

<b>Welcome to you too Sharon</b>. I am happy you found this forum. There are a lot of good moms here (dad's too and grandparents!) that you can get some awesome advice and support from. Looking forward to reading your thoughts and comments and any questions you might have.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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Alyssa

New member
Just joined

Welcome!

You will find many "oldies" here and also on the cystic-L list as well -- I just did a roll call of "older adults" and found there are many in their 30's through 60's with the oldest, Hal Soloff at age 76 !

I agree with Jem that it can improve your PFT's by being here - learning about more things, or becoming more proactive and asking more questions of your doctors and learning from other people's experiences of what might work better for you.
 
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Diane

New member
Just joined

Welcome Andrea and Sharon <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> Enjoy the site and take in as much as you can. There is so much to learn from this site. I've been here almost 5 years and i still learn something new all the time.
 
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JORDYSMOM

New member
Just joined

Welcome Sharon and Andrea. It's great to meet new people. I know you will both find a lot of info and support here.

Stacey
 
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beleache

New member
Just joined

Welcome Andrea & Sharon... I'm Joni 55 y/o f w c/f .. i have 4 sons , ages 32,29,17 & 14 and 1 22 mo old grandson.. I have been married for 18 yrs. Looking forward to knowing you both...<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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AnD

New member
Just joined

Welcome to both of you! From another "Andrea" (I go by Andee, though <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) in my 30's <img src="i/expressions/face-icon-small-smile.gif" border="0"> !
 
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Rokiss12

New member
Just joined

Hey Andrea! It's nice to meet you and have a fresh 'face' around here <img src="i/expressions/face-icon-small-smile.gif" border="0">

Can I just say, Your screen name made me laugh out loud. It's so cute! haha.

Start a blog on here if you havent already, they can be very fun <img src="i/expressions/face-icon-small-smile.gif" border="0">

Goodluck and talk to you later!

Kate
 
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lightNlife

New member
Just joined

Hi Andrea,
Thanks for taking the time to let us know about you and what your life is like with CF. I'm so glad you found this site and are excited about participating here. It really is a great place. I've found it to be one of the best sites available for offering support as I deal with CF.

Congratulations on 14 years of marriage. My husband and I just celebrated our 4th in July. I believe that God hand-picked us for each other. He has been more than wonderful in terms of being a supporter and a teammate in this battle against CF.

You can learn more about me and my interests by visiting my blog here or the other ones. Here are their links:

<a target=_blank class=ftalternatingbarlinklarge href="http://educatedguesser.blogspot.com">Pools of Grace (Biblical meditations)</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com">Breathing Deeply: My Life with CF</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.com">Blogging About CF (articles and info)</a>
 
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dyza

New member
Just joined

Greetings to you, hope to maybe 'chat ' with you sometime on the chat server.

Craig
 
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meldavi

New member
Greetings from Germany

Hello everybody,
my name is Melanie and I´m 25. And I live in Germany. I thought it would be a good idea to join a forum from another country because I wonder if everything is "the same" (therapy, medication,...) than in Germany. And maybe be can give each other tips or advice.

Here are some facts about me: I´m married for 2 years now and I have a little Jack Russel dog.
Doctors found out that I have CF when I was about 9 or 10 years old. I never had any problems (lungfunction 100%) and so I did less therapy and "ignored" CF ... until I was 21. Then I got so ill, that I was in a coma for 4 weeks and most of the docs didn´t think I would survive. I had sepsis, lungbleeding, pneumonia and I got a tracheotomy. But of course I DID survive. I´m not in such a good health than I used to be but I´m feeling good and I´m happy, and of course now I do a lot more therapy.

That´s all for now. Have a nice weekend!
 
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JazzysMom

New member
Greetings from Germany

Welcome! I also neglected my health for many years thinking that it was ok because I didnt feel the immediate affects.

Now I dont have that luxury!

We have a at least one German member so far. Many from all over the world.

I hope you find loads of information that is helpful to you!

Hugs...
 
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Kelli

New member
Greetings from Germany

Welcome and so nice to meet you. I hope you find this site helpful.
I have a Jack Russell too. Her name is Zippy (husband named her before we met). And I have a Chihuahua.
I'm 29 with CF. My lung function shows moderate disease. I've been married for 4 years and have 5 step-kids. Call me crazy!

Have a great day, Melanie!

Kelli
29 f CF
 
R

Rokiss12

New member
Just joined

Hey Andrea! It's nice to meet you and have a fresh 'face' around here <img src="i/expressions/face-icon-small-smile.gif" border="0">

Can I just say, Your screen name made me laugh out loud. It's so cute! haha.

Start a blog on here if you havent already, they can be very fun <img src="i/expressions/face-icon-small-smile.gif" border="0">

Goodluck and talk to you later!

Kate
 
L

lightNlife

New member
Just joined

Hi Andrea,
Thanks for taking the time to let us know about you and what your life is like with CF. I'm so glad you found this site and are excited about participating here. It really is a great place. I've found it to be one of the best sites available for offering support as I deal with CF.

Congratulations on 14 years of marriage. My husband and I just celebrated our 4th in July. I believe that God hand-picked us for each other. He has been more than wonderful in terms of being a supporter and a teammate in this battle against CF.

You can learn more about me and my interests by visiting my blog here or the other ones. Here are their links:

<a target=_blank class=ftalternatingbarlinklarge href="http://educatedguesser.blogspot.com">Pools of Grace (Biblical meditations)</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com">Breathing Deeply: My Life with CF</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.com">Blogging About CF (articles and info)</a>
 
D

dyza

New member
Just joined

Greetings to you, hope to maybe 'chat ' with you sometime on the chat server.

Craig
 
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