New memeber !! (well, sort of)

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littlemisssilly

Guest
Hello all!!!<br>
<br>
Well I have finally logged on as a new member. I have been
regularly visiting this site for well over a year now but I never
plucked up the courage to join. I feel like I know most of you
already, I just have to now let all of you get to know me!!<br>
<br>
This site really helped me at a time in my life when I struggled to
adjust / cope with the whole CF thing... ie getting older, lower
pfts (although I'm still sitting on an FEV1 of 75% ... just... but
yay for me!) and the whole will I find a partner thing, what does
the future hold etc etc<br>
<br>
I remember when I found this site a long time ago and I started
reading everyone's funny stories about embarrassing bowel moments
(which most of us CFers have) and I thought to myself 'finally
there are others out there who can relate!'..... So, hello
all !!<br>
<br>
PS the marijuana thread with all it's recipes made me laugh, it's
great that people feel safe enough to be able to assert their
opinions without fear of being judged by others (well, most of the
time anyway!) Let's try and keep it that way. <br>
<br>
  
 
T

tiregrl19

New member
Well hello... and welcome. I just joined today too!!!! I noticed
you said about the getting older and learning to adjust with your
CF. I have gone through quit a bit eye opening experiences the past
couple months, so much that I went to see a therapist to get my
head right. To make a LONG story short, I went into the hospital in
November for a couple days to no avail, then in December over
Christmas and New Years I was there for two LONG weeks. The
clincher is that at the beginning of my second stay the lab screwed
up and for a whole week I thought that there was no antibiotic to
help me and my PFT's were sitting at 39. Scary!!! To make things
even more complicated I started dating my current boyfriend 3
months prior and waited to tell him about the CF thing until it
became an issue( not wise might I add, but you know how things are)
Anyway up until this point in my life I had fled from every
boyfriend when I started to get attached but there is something
about this one that I can't flee from!!! In other words I know he
is the one and I am petrified that one of these days he will
realize that the whole CF/ episodic arthritis is to much for him to
handle and he'll leave me. (By the way on top of CF I have
arthritis that comes in episodes, its a side affect of CF) I am not
sure what to do with myself and everyone who is not a CFer can't
seem to help me. The only other CF patients I know are 10 years
old--- no help!!! I just wonder how you got through it?
 
J

JazzysMom

New member
Welcome to both you newbies. I do love this forum because you can ask anything & in general not get too much else but feedback. We all face the same result when its all said & done. Our journey there might be a bit different in severity, goals in life etc, but ultimately we have CF in common!
 
L

littlemisssilly

Guest
Hi Stephanie,<br>
<br>
How I got through the adjusting thing?... well, to be honest, I
don't think I'm finished, I think I'll always be adjusting to or
processing the whole CF thing because as we all get older our
health status changes and often deteriorates etc. I know myself
that I had very mild CF as a child, even in high school I would
just take a week of Cipro every six months or so and that was that,
I only had to do IVs twice. Since my 20s the antibiotics are more
frequent, if not constant, energy levels are much lower etc and I
thought that this all meant 'the beginning of the end' thing. But
on paper I'm in good shape for a person with CF, it just takes a
whole lot more effort to keep me well and I soon realised that's ok
and I started to adjust my lifestyle accordingly ie exercise daily,
reduce hours at work, not have too many late nights and I started
to feel better physically and emotionally because I guess I felt a
sense of control back in my life.<br>
<br>
Also, visiting this forum really humbled me because I soon realised
that there are so many other people with CF that really struggle
with their illness and aren't so lucky as me.So, it's always a
fine line with me between feeling like my health
is deteriorating and feeling guilty for thinking this way
because I really have been blessed with my health when compared to
others. ... Hope this all makes sense!<br>
<br>
As for the boyfriend / partner thing. I was lucky enough to have a
wonderful man in my life for a long time but the relationship ended
and CF had nothing to do with it. When someone really loves you, it
doesn't matter (I know it's a cliche but it's true!). I have some
really wonderful friends who embrace my CF and laugh at it with me
(especially when I cough and splatter everywhere!) and that's how
it's meant to be, i would never pursue a friendship with someone
who was put off purely because I have CF because clearly they don't
have the qualities that I look for in a friendship. Why should
I set a lower standard for partners / boyfriends? A true
companion should join along side of me through life and
all it's journeys not judge or be critical. What I'm probably
trying to say is true people may be harder to find but they are out
there! Don't lower your standards just because you have CF!<br>
<br>
Look, I think I've gotten a bit deep and carried away!... hope this
makes sense... and I have no idea if I answered any of your
questions. Sorry if I've rambled too much! 
 
L

littlemisssilly

Guest
Melissa and Karen,<br>
Thank you for your lovely posts.
 
T

tiregrl19

New member
Thanks so much for your posts. It helped a ton. To know there are
people out there to help is always great!!!  
 
J

julie

New member
Welcome all the Newbies (or new "members"). Now we don't have to refer to you as anonymous so and so, I LOVE IT!!!!

Glad you guys got user names, I think it makes it a little easier to keep track of who is who <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

Brad

New member
Hey Now , Whats all this....

I don't remember all this when I signed up,,,,,,,come on now ......

Just Kidding .<img src="i/expressions/face-icon-small-happy.gif" border="0">


WelCome To The BOTH of You Ladies......... <img src="i/expressions/rose.gif" border="0">
 
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