TamathaLynn
New member
Hi my name is Tamatha and I'm the mother of 7 month old Logan. He was diagnosed with Cf at 9 weeks of age. I'm a new mom and already scared f that and doing something wrong and on top of that hae a child with Cf. Now te fear of messing up is even greater! Logan cried almost nonstop after he was born and had extremely bad diarrhea.I was told by doctors that he was a colicy baby.The fact that he is my first they automaticaly assumed that I was an idiot nd didn't know what I was talking about when I told them about all his problems/symptoms. We went threw 3 pediatricians before I found one who actually attempted to help. He started changing his formulas. By the time Logan was 9 weeks old he had been on 7 different formulas, cried almost nonstop, had chroni diarrhea, and had only gained a pound sice he had been born. Finally his doctor sen him to the university hospital here where they admitted him for ailure to thrive. The next day they did the sweat test and it was positive. He was started on enzymes and has been doing ok. He has had alot of GI problems. And at one point he had a cold so his pediatrician didi a chest xray and it showed a mucous plug in the right lung. He has not had any breathing problems but has been doin a neb since his diagnosis for preventative. Well I'm very new to this and still learning and feel extremely dumb about everything. His CF doctor acted as though it wasn't a big deal and said he would cough it up. Well that was 2 months ago. How do you know if its gone? She hasn't even done another xray,when I asked she said that he would cough it up. Iknow you already told me that! So I'm extremely scared that my stupidity in this disease is goin to cost my son. Can anyone help me on this of the mucous plug. His pediatrician said tht usually they have "tune ups". His Cf doctor never mentioned that to me. What's the deal? what is a "tune up"? Will someone please help answer my questions because his doctors aren't doing it.