W
welshwitch
Guest
...and I also want to add that my parents "rolled the dice" and had another baby 4 years after me and were extremely excited that my brother didn't have CF! But I think if he did it would have all been OK, too.
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new mom
- Thread starter babybear
- Start date
T
tammykrumrey
Guest
Welcome to this site. It is draining when you first find out your baby has CF. It can be frightening at first because you don't know what they future holds.
I was absolutely in denial when my first child (Kayla) was dx with CF. (I was five months pregnant with my second one at the time). Kayla had been having a lot of problems with digestion, and the ped. kept basically coming up with 'legitimate' reasons for all of her issues. She was rushed by ambulance one night due to a rectal prolapse, which just took us by shock! At the hospital they went through family history, and cystic fibrosis came up. Well, my nephew (sisters son) has CF, so the doctors said that Kayla needed to be tested as well. I insisted that she did not have CF. That there was no way! I knew exactly what CF was and meant, and my daughter did not have it. The next day I took her to Childrens Hospital due to another rectal prolapse, and there they said the same thing, and she was sweat tested before leaving the hospital. I still said no way. I was sure that she had caught a 'bug' in the Virgin Islands where we took her with us on vacation just two months earlier. I grabbed a bag with a little cup in it from the hospital so I could send in a stool sample to prove that fact. And wow, I was shocked when the phone call came the next day with a positive sweat test result. Apparently no one from the hospital was surprised. They all knew what the result would be.
I was crushed. I will always remember every detail like it was yesterday. The calls made to husband, my parents, my sister...I was home alone with Kayla, and just devastated. And seeing that I was already pregnant, I knew that it could easily happen to me again, although my sister went on to have two healthy sons after her oldest with CF was born.
Hannah was tested at birth with the genetic test, and sweat tested at four weeks old. And the news of her having CF hit me just as hard as the one of her sister just four months earlier. It just hurt so bad.
But both are doing very well now. We too wanted many children, three to be exact. It took me about three years to decide that I wanted to take the chance again because I just loved my babies no matter what. Unfortunately, I was dx with cancer instead of getting a 'good bill of health' to try for another child, and had to have a radical hysterectomy. So, basically the decision was made for us.
Now look who's rambling<img src="i/expressions/face-icon-small-smile.gif" border="0">
Welcome to the site, and I look forward to hearing more about your beautiful daughter!
I was absolutely in denial when my first child (Kayla) was dx with CF. (I was five months pregnant with my second one at the time). Kayla had been having a lot of problems with digestion, and the ped. kept basically coming up with 'legitimate' reasons for all of her issues. She was rushed by ambulance one night due to a rectal prolapse, which just took us by shock! At the hospital they went through family history, and cystic fibrosis came up. Well, my nephew (sisters son) has CF, so the doctors said that Kayla needed to be tested as well. I insisted that she did not have CF. That there was no way! I knew exactly what CF was and meant, and my daughter did not have it. The next day I took her to Childrens Hospital due to another rectal prolapse, and there they said the same thing, and she was sweat tested before leaving the hospital. I still said no way. I was sure that she had caught a 'bug' in the Virgin Islands where we took her with us on vacation just two months earlier. I grabbed a bag with a little cup in it from the hospital so I could send in a stool sample to prove that fact. And wow, I was shocked when the phone call came the next day with a positive sweat test result. Apparently no one from the hospital was surprised. They all knew what the result would be.
I was crushed. I will always remember every detail like it was yesterday. The calls made to husband, my parents, my sister...I was home alone with Kayla, and just devastated. And seeing that I was already pregnant, I knew that it could easily happen to me again, although my sister went on to have two healthy sons after her oldest with CF was born.
Hannah was tested at birth with the genetic test, and sweat tested at four weeks old. And the news of her having CF hit me just as hard as the one of her sister just four months earlier. It just hurt so bad.
But both are doing very well now. We too wanted many children, three to be exact. It took me about three years to decide that I wanted to take the chance again because I just loved my babies no matter what. Unfortunately, I was dx with cancer instead of getting a 'good bill of health' to try for another child, and had to have a radical hysterectomy. So, basically the decision was made for us.
Now look who's rambling<img src="i/expressions/face-icon-small-smile.gif" border="0">
Welcome to the site, and I look forward to hearing more about your beautiful daughter!
T
tammykrumrey
Guest
Welcome to this site. It is draining when you first find out your baby has CF. It can be frightening at first because you don't know what they future holds.
I was absolutely in denial when my first child (Kayla) was dx with CF. (I was five months pregnant with my second one at the time). Kayla had been having a lot of problems with digestion, and the ped. kept basically coming up with 'legitimate' reasons for all of her issues. She was rushed by ambulance one night due to a rectal prolapse, which just took us by shock! At the hospital they went through family history, and cystic fibrosis came up. Well, my nephew (sisters son) has CF, so the doctors said that Kayla needed to be tested as well. I insisted that she did not have CF. That there was no way! I knew exactly what CF was and meant, and my daughter did not have it. The next day I took her to Childrens Hospital due to another rectal prolapse, and there they said the same thing, and she was sweat tested before leaving the hospital. I still said no way. I was sure that she had caught a 'bug' in the Virgin Islands where we took her with us on vacation just two months earlier. I grabbed a bag with a little cup in it from the hospital so I could send in a stool sample to prove that fact. And wow, I was shocked when the phone call came the next day with a positive sweat test result. Apparently no one from the hospital was surprised. They all knew what the result would be.
I was crushed. I will always remember every detail like it was yesterday. The calls made to husband, my parents, my sister...I was home alone with Kayla, and just devastated. And seeing that I was already pregnant, I knew that it could easily happen to me again, although my sister went on to have two healthy sons after her oldest with CF was born.
Hannah was tested at birth with the genetic test, and sweat tested at four weeks old. And the news of her having CF hit me just as hard as the one of her sister just four months earlier. It just hurt so bad.
But both are doing very well now. We too wanted many children, three to be exact. It took me about three years to decide that I wanted to take the chance again because I just loved my babies no matter what. Unfortunately, I was dx with cancer instead of getting a 'good bill of health' to try for another child, and had to have a radical hysterectomy. So, basically the decision was made for us.
Now look who's rambling<img src="i/expressions/face-icon-small-smile.gif" border="0">
Welcome to the site, and I look forward to hearing more about your beautiful daughter!
I was absolutely in denial when my first child (Kayla) was dx with CF. (I was five months pregnant with my second one at the time). Kayla had been having a lot of problems with digestion, and the ped. kept basically coming up with 'legitimate' reasons for all of her issues. She was rushed by ambulance one night due to a rectal prolapse, which just took us by shock! At the hospital they went through family history, and cystic fibrosis came up. Well, my nephew (sisters son) has CF, so the doctors said that Kayla needed to be tested as well. I insisted that she did not have CF. That there was no way! I knew exactly what CF was and meant, and my daughter did not have it. The next day I took her to Childrens Hospital due to another rectal prolapse, and there they said the same thing, and she was sweat tested before leaving the hospital. I still said no way. I was sure that she had caught a 'bug' in the Virgin Islands where we took her with us on vacation just two months earlier. I grabbed a bag with a little cup in it from the hospital so I could send in a stool sample to prove that fact. And wow, I was shocked when the phone call came the next day with a positive sweat test result. Apparently no one from the hospital was surprised. They all knew what the result would be.
I was crushed. I will always remember every detail like it was yesterday. The calls made to husband, my parents, my sister...I was home alone with Kayla, and just devastated. And seeing that I was already pregnant, I knew that it could easily happen to me again, although my sister went on to have two healthy sons after her oldest with CF was born.
Hannah was tested at birth with the genetic test, and sweat tested at four weeks old. And the news of her having CF hit me just as hard as the one of her sister just four months earlier. It just hurt so bad.
But both are doing very well now. We too wanted many children, three to be exact. It took me about three years to decide that I wanted to take the chance again because I just loved my babies no matter what. Unfortunately, I was dx with cancer instead of getting a 'good bill of health' to try for another child, and had to have a radical hysterectomy. So, basically the decision was made for us.
Now look who's rambling<img src="i/expressions/face-icon-small-smile.gif" border="0">
Welcome to the site, and I look forward to hearing more about your beautiful daughter!
T
tammykrumrey
Guest
Welcome to this site. It is draining when you first find out your baby has CF. It can be frightening at first because you don't know what they future holds.
I was absolutely in denial when my first child (Kayla) was dx with CF. (I was five months pregnant with my second one at the time). Kayla had been having a lot of problems with digestion, and the ped. kept basically coming up with 'legitimate' reasons for all of her issues. She was rushed by ambulance one night due to a rectal prolapse, which just took us by shock! At the hospital they went through family history, and cystic fibrosis came up. Well, my nephew (sisters son) has CF, so the doctors said that Kayla needed to be tested as well. I insisted that she did not have CF. That there was no way! I knew exactly what CF was and meant, and my daughter did not have it. The next day I took her to Childrens Hospital due to another rectal prolapse, and there they said the same thing, and she was sweat tested before leaving the hospital. I still said no way. I was sure that she had caught a 'bug' in the Virgin Islands where we took her with us on vacation just two months earlier. I grabbed a bag with a little cup in it from the hospital so I could send in a stool sample to prove that fact. And wow, I was shocked when the phone call came the next day with a positive sweat test result. Apparently no one from the hospital was surprised. They all knew what the result would be.
I was crushed. I will always remember every detail like it was yesterday. The calls made to husband, my parents, my sister...I was home alone with Kayla, and just devastated. And seeing that I was already pregnant, I knew that it could easily happen to me again, although my sister went on to have two healthy sons after her oldest with CF was born.
Hannah was tested at birth with the genetic test, and sweat tested at four weeks old. And the news of her having CF hit me just as hard as the one of her sister just four months earlier. It just hurt so bad.
But both are doing very well now. We too wanted many children, three to be exact. It took me about three years to decide that I wanted to take the chance again because I just loved my babies no matter what. Unfortunately, I was dx with cancer instead of getting a 'good bill of health' to try for another child, and had to have a radical hysterectomy. So, basically the decision was made for us.
Now look who's rambling<img src="i/expressions/face-icon-small-smile.gif" border="0">
Welcome to the site, and I look forward to hearing more about your beautiful daughter!
I was absolutely in denial when my first child (Kayla) was dx with CF. (I was five months pregnant with my second one at the time). Kayla had been having a lot of problems with digestion, and the ped. kept basically coming up with 'legitimate' reasons for all of her issues. She was rushed by ambulance one night due to a rectal prolapse, which just took us by shock! At the hospital they went through family history, and cystic fibrosis came up. Well, my nephew (sisters son) has CF, so the doctors said that Kayla needed to be tested as well. I insisted that she did not have CF. That there was no way! I knew exactly what CF was and meant, and my daughter did not have it. The next day I took her to Childrens Hospital due to another rectal prolapse, and there they said the same thing, and she was sweat tested before leaving the hospital. I still said no way. I was sure that she had caught a 'bug' in the Virgin Islands where we took her with us on vacation just two months earlier. I grabbed a bag with a little cup in it from the hospital so I could send in a stool sample to prove that fact. And wow, I was shocked when the phone call came the next day with a positive sweat test result. Apparently no one from the hospital was surprised. They all knew what the result would be.
I was crushed. I will always remember every detail like it was yesterday. The calls made to husband, my parents, my sister...I was home alone with Kayla, and just devastated. And seeing that I was already pregnant, I knew that it could easily happen to me again, although my sister went on to have two healthy sons after her oldest with CF was born.
Hannah was tested at birth with the genetic test, and sweat tested at four weeks old. And the news of her having CF hit me just as hard as the one of her sister just four months earlier. It just hurt so bad.
But both are doing very well now. We too wanted many children, three to be exact. It took me about three years to decide that I wanted to take the chance again because I just loved my babies no matter what. Unfortunately, I was dx with cancer instead of getting a 'good bill of health' to try for another child, and had to have a radical hysterectomy. So, basically the decision was made for us.
Now look who's rambling<img src="i/expressions/face-icon-small-smile.gif" border="0">
Welcome to the site, and I look forward to hearing more about your beautiful daughter!
My son with CF is almost 4 and despite plenty of medicines in his routine and a couple hospital stays for IV meds, he is almost always the healthier and more robust of all his playmates; He is a bit on the small side, but is by far the alpha boy in his preschool class and is not slowed down at all. As for worrying about his future due to CF, it is something that always lingers in the back of my head and tends to well up when he's got a cold or a CF bug or whenever I hear a news report about anything bad happening to a tot...BUT here's the thing about worrying about CF: yesterday I got a frantic call at work from my spouse who was home with the boy: he had gone up to his bedroom alone and minutes later started screaming..my wife found him up there struggling like Sampson to hold up his dresser which he had toppled by opening all the drawers at once. The frightening truth is that he could easily have been crushed by his dresser if the bottom drawer had slid back in and we've been spending our time worried that CF will knock him down so never thought to strap the dresser to the wall when he started wanting to dress himself.
My son with CF is almost 4 and despite plenty of medicines in his routine and a couple hospital stays for IV meds, he is almost always the healthier and more robust of all his playmates; He is a bit on the small side, but is by far the alpha boy in his preschool class and is not slowed down at all. As for worrying about his future due to CF, it is something that always lingers in the back of my head and tends to well up when he's got a cold or a CF bug or whenever I hear a news report about anything bad happening to a tot...BUT here's the thing about worrying about CF: yesterday I got a frantic call at work from my spouse who was home with the boy: he had gone up to his bedroom alone and minutes later started screaming..my wife found him up there struggling like Sampson to hold up his dresser which he had toppled by opening all the drawers at once. The frightening truth is that he could easily have been crushed by his dresser if the bottom drawer had slid back in and we've been spending our time worried that CF will knock him down so never thought to strap the dresser to the wall when he started wanting to dress himself.
My son with CF is almost 4 and despite plenty of medicines in his routine and a couple hospital stays for IV meds, he is almost always the healthier and more robust of all his playmates; He is a bit on the small side, but is by far the alpha boy in his preschool class and is not slowed down at all. As for worrying about his future due to CF, it is something that always lingers in the back of my head and tends to well up when he's got a cold or a CF bug or whenever I hear a news report about anything bad happening to a tot...BUT here's the thing about worrying about CF: yesterday I got a frantic call at work from my spouse who was home with the boy: he had gone up to his bedroom alone and minutes later started screaming..my wife found him up there struggling like Sampson to hold up his dresser which he had toppled by opening all the drawers at once. The frightening truth is that he could easily have been crushed by his dresser if the bottom drawer had slid back in and we've been spending our time worried that CF will knock him down so never thought to strap the dresser to the wall when he started wanting to dress himself.