My daughter turned 18 just after Christmas. We found out she had CF when she was 4 weeks old. Her first hospital admit was when she turned 6...she had Christmas and her birthday in hospital. At first it's a bit overwhelming, but it gets "easier". Routines will fall into place quickly. Always remember to enjoy your son. Don't treat him as "the sick child". No one wants to grow up like that, with that label over their head. He will achieve great things if you let him be a normal child. We've travelled with our daughter (we're in Australia) and she's been to New Zealand, on cruises, to America and to Nepal - where she was the only person on the school trip who didn't get sick! There will be tears, trials and tribulations, but over the years I've learnt that while we're dealing with CF other friends have had other stuff to deal with with their young babies. Sure, their stuff mostly goes away after a while, unlike CF, but as I often say....it's all relevant! Embrace your baby boy, teach him how to follow routines, show him the world that is waiting for him, and who knows where it might lead him. Wishing you all the best.....and trust me, it does get easier ?
she dances in a muscial school , performs and is trying out to get to the ntaional balet school.. This may not be your childs dream - but yiou'll have others. The medicine is gpoing so fast that I see huge changes in the last 7 years wince we heard of cf...and I see my child being strong and healthy...newborn porblems - we had none..and wish yoy the same