NEW RESEARCH

spacemom · Oct 2, 2007

Hi friends
Haven't been much around here lately, my son left the hospital 3 weeks ago after an exacerbation, and I've been trying to not obsess (can you tell I've been reading The Secret LOL)?...

Now to the point, This came up yesterday in a local newspaper - in Portugal - considered a reliable one - Don't know if you knew this already, I'm translating it for you:

Most frequent hereditary disease in Europe
Researchers study new treatment for CF
01.10.2007 - 13h41 AFP, PUBLICO.PT

Clinical trials of a treatment for the genetic disease known as cystic fibrosis (mucoviscidosis) is being carried out in Spain since last weeks. The purpose of the researchers is to improve the medical response to patients whose average lifespan is around 35 years.

The medication under trial uses the miglustat molecule to restore the CFTR protein, weakened by the disease and that by not fulfilling its functions allows a greater accumulation of mucus in the airways. In the majority of the cases, around 80 percent, the problem originates in the genetic mutation delta F508, the researcher Fédéric Becq explains.

The trial features 25 patients. "IT's a real hope and a very important stage", Becq said.

According to European specialists, mucoviscidosis is the most frequent serious genetic disease in Europe and it affects one person among 8,000 to 10,000.

The medication on trial is particularly aimed at the respiratory problems connected with the disease, caused by the obstruction of the airways and the accumulation of bacteria.

Here's the link should anyone want to check it out - (Portuguese and Spanish speakers)

<a target=_blank class=ftalternatingbarlinklarge href="http://ultimahora.publico.clix.pt/noticia.aspx?id=1306240&idCanal=13
">http://ultimahora.publico.clix...6240&idCanal=13
</a>

Here's hoping for the best outcome ......... YAY

PS: Found the same in French (more detailed, actually)

<a target=_blank class=ftalternatingbarlinklarge href="http://fr.news.yahoo.com/ap/20071001/thl-sante-mucoviscidose-aa61a25.html
">http://fr.news.yahoo.com/ap/20...iscidose-aa61a25.html
</a>

spacemom · Oct 2, 2007

Hi friends
Haven't been much around here lately, my son left the hospital 3 weeks ago after an exacerbation, and I've been trying to not obsess (can you tell I've been reading The Secret LOL)?...

Now to the point, This came up yesterday in a local newspaper - in Portugal - considered a reliable one - Don't know if you knew this already, I'm translating it for you:

Most frequent hereditary disease in Europe
Researchers study new treatment for CF
01.10.2007 - 13h41 AFP, PUBLICO.PT

Clinical trials of a treatment for the genetic disease known as cystic fibrosis (mucoviscidosis) is being carried out in Spain since last weeks. The purpose of the researchers is to improve the medical response to patients whose average lifespan is around 35 years.

The medication under trial uses the miglustat molecule to restore the CFTR protein, weakened by the disease and that by not fulfilling its functions allows a greater accumulation of mucus in the airways. In the majority of the cases, around 80 percent, the problem originates in the genetic mutation delta F508, the researcher Fédéric Becq explains.

The trial features 25 patients. "IT's a real hope and a very important stage", Becq said.

According to European specialists, mucoviscidosis is the most frequent serious genetic disease in Europe and it affects one person among 8,000 to 10,000.

The medication on trial is particularly aimed at the respiratory problems connected with the disease, caused by the obstruction of the airways and the accumulation of bacteria.

Here's the link should anyone want to check it out - (Portuguese and Spanish speakers)

<a target=_blank class=ftalternatingbarlinklarge href="http://ultimahora.publico.clix.pt/noticia.aspx?id=1306240&idCanal=13
">http://ultimahora.publico.clix...6240&idCanal=13
</a>

Here's hoping for the best outcome ......... YAY

PS: Found the same in French (more detailed, actually)

<a target=_blank class=ftalternatingbarlinklarge href="http://fr.news.yahoo.com/ap/20071001/thl-sante-mucoviscidose-aa61a25.html
">http://fr.news.yahoo.com/ap/20...iscidose-aa61a25.html
</a>

spacemom · Oct 2, 2007

Hi friends
Haven't been much around here lately, my son left the hospital 3 weeks ago after an exacerbation, and I've been trying to not obsess (can you tell I've been reading The Secret LOL)?...

Now to the point, This came up yesterday in a local newspaper - in Portugal - considered a reliable one - Don't know if you knew this already, I'm translating it for you:

Most frequent hereditary disease in Europe
Researchers study new treatment for CF
01.10.2007 - 13h41 AFP, PUBLICO.PT

Clinical trials of a treatment for the genetic disease known as cystic fibrosis (mucoviscidosis) is being carried out in Spain since last weeks. The purpose of the researchers is to improve the medical response to patients whose average lifespan is around 35 years.

The medication under trial uses the miglustat molecule to restore the CFTR protein, weakened by the disease and that by not fulfilling its functions allows a greater accumulation of mucus in the airways. In the majority of the cases, around 80 percent, the problem originates in the genetic mutation delta F508, the researcher Fédéric Becq explains.

The trial features 25 patients. "IT's a real hope and a very important stage", Becq said.

According to European specialists, mucoviscidosis is the most frequent serious genetic disease in Europe and it affects one person among 8,000 to 10,000.

The medication on trial is particularly aimed at the respiratory problems connected with the disease, caused by the obstruction of the airways and the accumulation of bacteria.

Here's the link should anyone want to check it out - (Portuguese and Spanish speakers)

<a target=_blank class=ftalternatingbarlinklarge href="http://ultimahora.publico.clix.pt/noticia.aspx?id=1306240&idCanal=13
">http://ultimahora.publico.clix...6240&idCanal=13
</a>

Here's hoping for the best outcome ......... YAY

PS: Found the same in French (more detailed, actually)

<a target=_blank class=ftalternatingbarlinklarge href="http://fr.news.yahoo.com/ap/20071001/thl-sante-mucoviscidose-aa61a25.html
">http://fr.news.yahoo.com/ap/20...iscidose-aa61a25.html
</a>

spacemom · Oct 2, 2007

Hi friends
Haven't been much around here lately, my son left the hospital 3 weeks ago after an exacerbation, and I've been trying to not obsess (can you tell I've been reading The Secret LOL)?...

Now to the point, This came up yesterday in a local newspaper - in Portugal - considered a reliable one - Don't know if you knew this already, I'm translating it for you:

Most frequent hereditary disease in Europe
Researchers study new treatment for CF
01.10.2007 - 13h41 AFP, PUBLICO.PT

Clinical trials of a treatment for the genetic disease known as cystic fibrosis (mucoviscidosis) is being carried out in Spain since last weeks. The purpose of the researchers is to improve the medical response to patients whose average lifespan is around 35 years.

The medication under trial uses the miglustat molecule to restore the CFTR protein, weakened by the disease and that by not fulfilling its functions allows a greater accumulation of mucus in the airways. In the majority of the cases, around 80 percent, the problem originates in the genetic mutation delta F508, the researcher Fédéric Becq explains.

The trial features 25 patients. "IT's a real hope and a very important stage", Becq said.

According to European specialists, mucoviscidosis is the most frequent serious genetic disease in Europe and it affects one person among 8,000 to 10,000.

The medication on trial is particularly aimed at the respiratory problems connected with the disease, caused by the obstruction of the airways and the accumulation of bacteria.

Here's the link should anyone want to check it out - (Portuguese and Spanish speakers)

<a target=_blank class=ftalternatingbarlinklarge href="http://ultimahora.publico.clix.pt/noticia.aspx?id=1306240&idCanal=13
">http://ultimahora.publico.clix...6240&idCanal=13
</a>

Here's hoping for the best outcome ......... YAY

PS: Found the same in French (more detailed, actually)

<a target=_blank class=ftalternatingbarlinklarge href="http://fr.news.yahoo.com/ap/20071001/thl-sante-mucoviscidose-aa61a25.html
">http://fr.news.yahoo.com/ap/20...iscidose-aa61a25.html
</a>

spacemom · Oct 2, 2007

Hi friends
Haven't been much around here lately, my son left the hospital 3 weeks ago after an exacerbation, and I've been trying to not obsess (can you tell I've been reading The Secret LOL)?...

Now to the point, This came up yesterday in a local newspaper - in Portugal - considered a reliable one - Don't know if you knew this already, I'm translating it for you:

Most frequent hereditary disease in Europe
Researchers study new treatment for CF
01.10.2007 - 13h41 AFP, PUBLICO.PT

Clinical trials of a treatment for the genetic disease known as cystic fibrosis (mucoviscidosis) is being carried out in Spain since last weeks. The purpose of the researchers is to improve the medical response to patients whose average lifespan is around 35 years.

The medication under trial uses the miglustat molecule to restore the CFTR protein, weakened by the disease and that by not fulfilling its functions allows a greater accumulation of mucus in the airways. In the majority of the cases, around 80 percent, the problem originates in the genetic mutation delta F508, the researcher Fédéric Becq explains.

The trial features 25 patients. "IT's a real hope and a very important stage", Becq said.

According to European specialists, mucoviscidosis is the most frequent serious genetic disease in Europe and it affects one person among 8,000 to 10,000.

The medication on trial is particularly aimed at the respiratory problems connected with the disease, caused by the obstruction of the airways and the accumulation of bacteria.

Here's the link should anyone want to check it out - (Portuguese and Spanish speakers)

<a target=_blank class=ftalternatingbarlinklarge href="http://ultimahora.publico.clix.pt/noticia.aspx?id=1306240&idCanal=13
">http://ultimahora.publico.clix...6240&idCanal=13
</a>

Here's hoping for the best outcome ......... YAY

PS: Found the same in French (more detailed, actually)

<a target=_blank class=ftalternatingbarlinklarge href="http://fr.news.yahoo.com/ap/20071001/thl-sante-mucoviscidose-aa61a25.html
">http://fr.news.yahoo.com/ap/20...iscidose-aa61a25.html
</a>

spacemom · Oct 3, 2007

That's weird, 42 views to my post and not one single little comment???

You mean there's no point in following up news on new therapies, are you so disbelieving in a cure or a very effective treatment?

I think I won't be bothered again to post stuff like this.

spacemom · Oct 3, 2007

That's weird, 42 views to my post and not one single little comment???

You mean there's no point in following up news on new therapies, are you so disbelieving in a cure or a very effective treatment?

I think I won't be bothered again to post stuff like this.

spacemom · Oct 3, 2007

That's weird, 42 views to my post and not one single little comment???

You mean there's no point in following up news on new therapies, are you so disbelieving in a cure or a very effective treatment?

I think I won't be bothered again to post stuff like this.

spacemom · Oct 3, 2007

That's weird, 42 views to my post and not one single little comment???

You mean there's no point in following up news on new therapies, are you so disbelieving in a cure or a very effective treatment?

I think I won't be bothered again to post stuff like this.

spacemom · Oct 3, 2007

That's weird, 42 views to my post and not one single little comment???

You mean there's no point in following up news on new therapies, are you so disbelieving in a cure or a very effective treatment?

I think I won't be bothered again to post stuff like this.

BigBee · Oct 3, 2007

Thank you for posting! I too am ALWAYS interested in research. Research is why we spend our time and energies fundraising.

Research has led us to some remarkable therapies in the past 20 years.

Regarding the views to your posts.. most people who are on the forum at any one time are "lurkers" - and they can't comment on forums unless they have a username.

Don't worry about who posts a reply- keep getting the info out to people.

Again, thanks for taking the time to keep us apprised.

BigBee · Oct 3, 2007

Thank you for posting! I too am ALWAYS interested in research. Research is why we spend our time and energies fundraising.

Research has led us to some remarkable therapies in the past 20 years.

Regarding the views to your posts.. most people who are on the forum at any one time are "lurkers" - and they can't comment on forums unless they have a username.

Don't worry about who posts a reply- keep getting the info out to people.

Again, thanks for taking the time to keep us apprised.

BigBee · Oct 3, 2007

Thank you for posting! I too am ALWAYS interested in research. Research is why we spend our time and energies fundraising.

Research has led us to some remarkable therapies in the past 20 years.

Regarding the views to your posts.. most people who are on the forum at any one time are "lurkers" - and they can't comment on forums unless they have a username.

Don't worry about who posts a reply- keep getting the info out to people.

Again, thanks for taking the time to keep us apprised.

BigBee · Oct 3, 2007

Thank you for posting! I too am ALWAYS interested in research. Research is why we spend our time and energies fundraising.

Research has led us to some remarkable therapies in the past 20 years.

Regarding the views to your posts.. most people who are on the forum at any one time are "lurkers" - and they can't comment on forums unless they have a username.

Don't worry about who posts a reply- keep getting the info out to people.

Again, thanks for taking the time to keep us apprised.

BigBee · Oct 3, 2007

Thank you for posting! I too am ALWAYS interested in research. Research is why we spend our time and energies fundraising.

Research has led us to some remarkable therapies in the past 20 years.

Regarding the views to your posts.. most people who are on the forum at any one time are "lurkers" - and they can't comment on forums unless they have a username.

Don't worry about who posts a reply- keep getting the info out to people.

Again, thanks for taking the time to keep us apprised.

JD · Oct 3, 2007