New to CF forums

mnmthomson · Jan 30, 2009

Hey All! Well I am new to the forums and sort of a new mom. Our story is a little different. I remarried in 2006 to the most amazing man I have ever met. He is the most positive man as well. We have a total of 5 children. Has two and I came in with 3. The word "step" does not exist in our family. They are "OUR" kids. We were blessed because when we blended everyone got along so well and still do. Its been perfect. Yes perfect even though CF is in our family. Our youngest son was diagnosed when he was 2. He is my Hero. He is the happiest boy who has never complained about life being unfair and he has every right to complain. His life has been very unfortunate besides the CF. You see, 6 months after he was dx his mommy was dx with colon cancer. How hard could that be? He didnt get a chance to really know her and bond with her because she was away with treatments. We live in a smaller community in NM and there just isnt a lot around here to offer for cancer or CF. So she went to San Antonio and would come back here when she was up to it. And daddy was working to support them both. I cant imagine being torn in three directions. My son in one my spouse in the other and my job in another direction. Jacob has been fortunate to be pretty healthy especially when he was 3 and 4. Unfortunately his mommy passed away the week before he turned 5. So a few years later his daddy met me and here I am. It is hard at times because I am not as familiar with things as he is. He is the one who still handles all appts and hospital visits. As I said before he has been resonably healthy until this past August. He rarely ever coughed. He had been in the hospital 3 times his entire life. Then August he started coughing. We couldnt get rid of it. He went to his regular physician and they couldnt find anything. His CF doctor is 4 hours away so they are communicate by phone. They put him in the hospital here for a tune up for 2 weeks. Then about a month later he ended up sick again. This time he had to go to Albuquerque and they put a Picc line in and he got to come home and finish his tune up. He did great for a while but then a month later it started up again. So again he got a picc line put in and sent him home. He had a fungus growing in his lungs and he has had the left lung collaps twice. The second time they were not able to get it fully inflated. Only the bottom 1/4 of it works. He is doing pretty well right now. We have been told he will have to do a tune up a few times a year now. We had a scare yesterday. He was complaining of a "tennis ball" in his chest. They did xrays and said they looked better than the last time when he was sick. He isnt coughing at all either. WHich is a little scary. Most of his problems hasnt been respiratory at all. Its been more of his pancreas, bowels and tummy. He would always have stomach problems. They are always adjusting his enzymes. They also put him on Prilosec. He used to be on Zantac but it just didnt help.
So anyways I thought it would just be nice to meet new people who can relate. I have read a lot of the posts and it nice to be able to relate and have people who will know what I am talking about and what we have gone through.
I am also amazed to see the stories of teens and the adults. Its encouraging to know that my son will have a life ahead of him and that he can do anything he wants. By the way he wants to be President of the United States! Now that would be a change in HISTORY!!!!

mnmthomson · Jan 30, 2009

Hey All! Well I am new to the forums and sort of a new mom. Our story is a little different. I remarried in 2006 to the most amazing man I have ever met. He is the most positive man as well. We have a total of 5 children. Has two and I came in with 3. The word "step" does not exist in our family. They are "OUR" kids. We were blessed because when we blended everyone got along so well and still do. Its been perfect. Yes perfect even though CF is in our family. Our youngest son was diagnosed when he was 2. He is my Hero. He is the happiest boy who has never complained about life being unfair and he has every right to complain. His life has been very unfortunate besides the CF. You see, 6 months after he was dx his mommy was dx with colon cancer. How hard could that be? He didnt get a chance to really know her and bond with her because she was away with treatments. We live in a smaller community in NM and there just isnt a lot around here to offer for cancer or CF. So she went to San Antonio and would come back here when she was up to it. And daddy was working to support them both. I cant imagine being torn in three directions. My son in one my spouse in the other and my job in another direction. Jacob has been fortunate to be pretty healthy especially when he was 3 and 4. Unfortunately his mommy passed away the week before he turned 5. So a few years later his daddy met me and here I am. It is hard at times because I am not as familiar with things as he is. He is the one who still handles all appts and hospital visits. As I said before he has been resonably healthy until this past August. He rarely ever coughed. He had been in the hospital 3 times his entire life. Then August he started coughing. We couldnt get rid of it. He went to his regular physician and they couldnt find anything. His CF doctor is 4 hours away so they are communicate by phone. They put him in the hospital here for a tune up for 2 weeks. Then about a month later he ended up sick again. This time he had to go to Albuquerque and they put a Picc line in and he got to come home and finish his tune up. He did great for a while but then a month later it started up again. So again he got a picc line put in and sent him home. He had a fungus growing in his lungs and he has had the left lung collaps twice. The second time they were not able to get it fully inflated. Only the bottom 1/4 of it works. He is doing pretty well right now. We have been told he will have to do a tune up a few times a year now. We had a scare yesterday. He was complaining of a "tennis ball" in his chest. They did xrays and said they looked better than the last time when he was sick. He isnt coughing at all either. WHich is a little scary. Most of his problems hasnt been respiratory at all. Its been more of his pancreas, bowels and tummy. He would always have stomach problems. They are always adjusting his enzymes. They also put him on Prilosec. He used to be on Zantac but it just didnt help.
So anyways I thought it would just be nice to meet new people who can relate. I have read a lot of the posts and it nice to be able to relate and have people who will know what I am talking about and what we have gone through.
I am also amazed to see the stories of teens and the adults. Its encouraging to know that my son will have a life ahead of him and that he can do anything he wants. By the way he wants to be President of the United States! Now that would be a change in HISTORY!!!!

mnmthomson · Jan 30, 2009

Hey All! Well I am new to the forums and sort of a new mom. Our story is a little different. I remarried in 2006 to the most amazing man I have ever met. He is the most positive man as well. We have a total of 5 children. Has two and I came in with 3. The word "step" does not exist in our family. They are "OUR" kids. We were blessed because when we blended everyone got along so well and still do. Its been perfect. Yes perfect even though CF is in our family. Our youngest son was diagnosed when he was 2. He is my Hero. He is the happiest boy who has never complained about life being unfair and he has every right to complain. His life has been very unfortunate besides the CF. You see, 6 months after he was dx his mommy was dx with colon cancer. How hard could that be? He didnt get a chance to really know her and bond with her because she was away with treatments. We live in a smaller community in NM and there just isnt a lot around here to offer for cancer or CF. So she went to San Antonio and would come back here when she was up to it. And daddy was working to support them both. I cant imagine being torn in three directions. My son in one my spouse in the other and my job in another direction. Jacob has been fortunate to be pretty healthy especially when he was 3 and 4. Unfortunately his mommy passed away the week before he turned 5. So a few years later his daddy met me and here I am. It is hard at times because I am not as familiar with things as he is. He is the one who still handles all appts and hospital visits. As I said before he has been resonably healthy until this past August. He rarely ever coughed. He had been in the hospital 3 times his entire life. Then August he started coughing. We couldnt get rid of it. He went to his regular physician and they couldnt find anything. His CF doctor is 4 hours away so they are communicate by phone. They put him in the hospital here for a tune up for 2 weeks. Then about a month later he ended up sick again. This time he had to go to Albuquerque and they put a Picc line in and he got to come home and finish his tune up. He did great for a while but then a month later it started up again. So again he got a picc line put in and sent him home. He had a fungus growing in his lungs and he has had the left lung collaps twice. The second time they were not able to get it fully inflated. Only the bottom 1/4 of it works. He is doing pretty well right now. We have been told he will have to do a tune up a few times a year now. We had a scare yesterday. He was complaining of a "tennis ball" in his chest. They did xrays and said they looked better than the last time when he was sick. He isnt coughing at all either. WHich is a little scary. Most of his problems hasnt been respiratory at all. Its been more of his pancreas, bowels and tummy. He would always have stomach problems. They are always adjusting his enzymes. They also put him on Prilosec. He used to be on Zantac but it just didnt help.
So anyways I thought it would just be nice to meet new people who can relate. I have read a lot of the posts and it nice to be able to relate and have people who will know what I am talking about and what we have gone through.
I am also amazed to see the stories of teens and the adults. Its encouraging to know that my son will have a life ahead of him and that he can do anything he wants. By the way he wants to be President of the United States! Now that would be a change in HISTORY!!!!

mnmthomson · Jan 30, 2009

Hey All! Well I am new to the forums and sort of a new mom. Our story is a little different. I remarried in 2006 to the most amazing man I have ever met. He is the most positive man as well. We have a total of 5 children. Has two and I came in with 3. The word "step" does not exist in our family. They are "OUR" kids. We were blessed because when we blended everyone got along so well and still do. Its been perfect. Yes perfect even though CF is in our family. Our youngest son was diagnosed when he was 2. He is my Hero. He is the happiest boy who has never complained about life being unfair and he has every right to complain. His life has been very unfortunate besides the CF. You see, 6 months after he was dx his mommy was dx with colon cancer. How hard could that be? He didnt get a chance to really know her and bond with her because she was away with treatments. We live in a smaller community in NM and there just isnt a lot around here to offer for cancer or CF. So she went to San Antonio and would come back here when she was up to it. And daddy was working to support them both. I cant imagine being torn in three directions. My son in one my spouse in the other and my job in another direction. Jacob has been fortunate to be pretty healthy especially when he was 3 and 4. Unfortunately his mommy passed away the week before he turned 5. So a few years later his daddy met me and here I am. It is hard at times because I am not as familiar with things as he is. He is the one who still handles all appts and hospital visits. As I said before he has been resonably healthy until this past August. He rarely ever coughed. He had been in the hospital 3 times his entire life. Then August he started coughing. We couldnt get rid of it. He went to his regular physician and they couldnt find anything. His CF doctor is 4 hours away so they are communicate by phone. They put him in the hospital here for a tune up for 2 weeks. Then about a month later he ended up sick again. This time he had to go to Albuquerque and they put a Picc line in and he got to come home and finish his tune up. He did great for a while but then a month later it started up again. So again he got a picc line put in and sent him home. He had a fungus growing in his lungs and he has had the left lung collaps twice. The second time they were not able to get it fully inflated. Only the bottom 1/4 of it works. He is doing pretty well right now. We have been told he will have to do a tune up a few times a year now. We had a scare yesterday. He was complaining of a "tennis ball" in his chest. They did xrays and said they looked better than the last time when he was sick. He isnt coughing at all either. WHich is a little scary. Most of his problems hasnt been respiratory at all. Its been more of his pancreas, bowels and tummy. He would always have stomach problems. They are always adjusting his enzymes. They also put him on Prilosec. He used to be on Zantac but it just didnt help.
So anyways I thought it would just be nice to meet new people who can relate. I have read a lot of the posts and it nice to be able to relate and have people who will know what I am talking about and what we have gone through.
I am also amazed to see the stories of teens and the adults. Its encouraging to know that my son will have a life ahead of him and that he can do anything he wants. By the way he wants to be President of the United States! Now that would be a change in HISTORY!!!!

mnmthomson · Jan 30, 2009

Hey All! Well I am new to the forums and sort of a new mom. Our story is a little different. I remarried in 2006 to the most amazing man I have ever met. He is the most positive man as well. We have a total of 5 children. Has two and I came in with 3. The word "step" does not exist in our family. They are "OUR" kids. We were blessed because when we blended everyone got along so well and still do. Its been perfect. Yes perfect even though CF is in our family. Our youngest son was diagnosed when he was 2. He is my Hero. He is the happiest boy who has never complained about life being unfair and he has every right to complain. His life has been very unfortunate besides the CF. You see, 6 months after he was dx his mommy was dx with colon cancer. How hard could that be? He didnt get a chance to really know her and bond with her because she was away with treatments. We live in a smaller community in NM and there just isnt a lot around here to offer for cancer or CF. So she went to San Antonio and would come back here when she was up to it. And daddy was working to support them both. I cant imagine being torn in three directions. My son in one my spouse in the other and my job in another direction. Jacob has been fortunate to be pretty healthy especially when he was 3 and 4. Unfortunately his mommy passed away the week before he turned 5. So a few years later his daddy met me and here I am. It is hard at times because I am not as familiar with things as he is. He is the one who still handles all appts and hospital visits. As I said before he has been resonably healthy until this past August. He rarely ever coughed. He had been in the hospital 3 times his entire life. Then August he started coughing. We couldnt get rid of it. He went to his regular physician and they couldnt find anything. His CF doctor is 4 hours away so they are communicate by phone. They put him in the hospital here for a tune up for 2 weeks. Then about a month later he ended up sick again. This time he had to go to Albuquerque and they put a Picc line in and he got to come home and finish his tune up. He did great for a while but then a month later it started up again. So again he got a picc line put in and sent him home. He had a fungus growing in his lungs and he has had the left lung collaps twice. The second time they were not able to get it fully inflated. Only the bottom 1/4 of it works. He is doing pretty well right now. We have been told he will have to do a tune up a few times a year now. We had a scare yesterday. He was complaining of a "tennis ball" in his chest. They did xrays and said they looked better than the last time when he was sick. He isnt coughing at all either. WHich is a little scary. Most of his problems hasnt been respiratory at all. Its been more of his pancreas, bowels and tummy. He would always have stomach problems. They are always adjusting his enzymes. They also put him on Prilosec. He used to be on Zantac but it just didnt help.
 So anyways I thought it would just be nice to meet new people who can relate. I have read a lot of the posts and it nice to be able to relate and have people who will know what I am talking about and what we have gone through.
 I am also amazed to see the stories of teens and the adults. Its encouraging to know that my son will have a life ahead of him and that he can do anything he wants. By the way he wants to be President of the United States! Now that would be a change in HISTORY!!!!

Mommafirst · Jan 30, 2009