My 6 week old son has been tested for cf, and his results fell into the inconclusive range. All the doctors and everything I read says that symptoms could be frequent, greasy, bulky, mucousy stool. I am going crazy checking his stool at every diaper change trying to figure out if this bowel movements fit these descriptions. To me, these descriptions could also be close to what regular newborn bm's should look like, which is creamy, curdy, and/or pasty. Is there anyone who can try to come up w/ another description for me? My son is eating both breast milk and formula.
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- Thread starter ram
- Start date
My 6 week old son has been tested for cf, and his results fell into the inconclusive range. All the doctors and everything I read says that symptoms could be frequent, greasy, bulky, mucousy stool. I am going crazy checking his stool at every diaper change trying to figure out if this bowel movements fit these descriptions. To me, these descriptions could also be close to what regular newborn bm's should look like, which is creamy, curdy, and/or pasty. Is there anyone who can try to come up w/ another description for me? My son is eating both breast milk and formula.
My 6 week old son has been tested for cf, and his results fell into the inconclusive range. All the doctors and everything I read says that symptoms could be frequent, greasy, bulky, mucousy stool. I am going crazy checking his stool at every diaper change trying to figure out if this bowel movements fit these descriptions. To me, these descriptions could also be close to what regular newborn bm's should look like, which is creamy, curdy, and/or pasty. Is there anyone who can try to come up w/ another description for me? My son is eating both breast milk and formula.
My 6 week old son has been tested for cf, and his results fell into the inconclusive range. All the doctors and everything I read says that symptoms could be frequent, greasy, bulky, mucousy stool. I am going crazy checking his stool at every diaper change trying to figure out if this bowel movements fit these descriptions. To me, these descriptions could also be close to what regular newborn bm's should look like, which is creamy, curdy, and/or pasty. Is there anyone who can try to come up w/ another description for me? My son is eating both breast milk and formula.
My 6 week old son has been tested for cf, and his results fell into the inconclusive range. All the doctors and everything I read says that symptoms could be frequent, greasy, bulky, mucousy stool. I am going crazy checking his stool at every diaper change trying to figure out if this bowel movements fit these descriptions. To me, these descriptions could also be close to what regular newborn bm's should look like, which is creamy, curdy, and/or pasty. Is there anyone who can try to come up w/ another description for me? My son is eating both breast milk and formula.
M
Mommafirst
Guest
I sooo understand the mania of checking every poop searching for answers after an inconclusive sweat test. I was there. My daughter was pancreatic sufficient at the time, so there were no answers in her poop, as it turned out.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
M
Mommafirst
Guest
I sooo understand the mania of checking every poop searching for answers after an inconclusive sweat test. I was there. My daughter was pancreatic sufficient at the time, so there were no answers in her poop, as it turned out.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
M
Mommafirst
Guest
I sooo understand the mania of checking every poop searching for answers after an inconclusive sweat test. I was there. My daughter was pancreatic sufficient at the time, so there were no answers in her poop, as it turned out.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
M
Mommafirst
Guest
I sooo understand the mania of checking every poop searching for answers after an inconclusive sweat test. I was there. My daughter was pancreatic sufficient at the time, so there were no answers in her poop, as it turned out.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
M
Mommafirst
Guest
I sooo understand the mania of checking every poop searching for answers after an inconclusive sweat test. I was there. My daughter was pancreatic sufficient at the time, so there were no answers in her poop, as it turned out.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
What was your son's borderline sweat number? Are they doing genetic bloodwork now? I know it seems impossible, but if you can, try not to worry about the poop and get him the full Ambry genetic testing, borderline sweats can be an indicator of some of the more rare CF mutations that might not be caught on the basic panels. If you rule it out based on genetics, it will be more worthwhile information that ruling it out based on his poops.
What were the symptoms that prompted his sweat test? Or did he trip the newborn scree? Sorry for all the questions, but other than being born with meconium illeus, my daughter exhibited no signs at all for almost her first year of life. And even now, she just has difficulty gaining weight.
grandmaof4
New member
My grandaughter is 3 weeks old from day one we were saying something was wrong all she does is sleep and when she does nurse she would spit it up everytime. Dad said when he would kiss her hands they had a salty taste to them. The Dr. just called my daughter today and told her she has Cystic Fibrosis. So if you think something is worng don't give up keep at the Dr. tell them you want to be tested again.
grandmaof4
New member
My grandaughter is 3 weeks old from day one we were saying something was wrong all she does is sleep and when she does nurse she would spit it up everytime. Dad said when he would kiss her hands they had a salty taste to them. The Dr. just called my daughter today and told her she has Cystic Fibrosis. So if you think something is worng don't give up keep at the Dr. tell them you want to be tested again.
grandmaof4
New member
My grandaughter is 3 weeks old from day one we were saying something was wrong all she does is sleep and when she does nurse she would spit it up everytime. Dad said when he would kiss her hands they had a salty taste to them. The Dr. just called my daughter today and told her she has Cystic Fibrosis. So if you think something is worng don't give up keep at the Dr. tell them you want to be tested again.
grandmaof4
New member
My grandaughter is 3 weeks old from day one we were saying something was wrong all she does is sleep and when she does nurse she would spit it up everytime. Dad said when he would kiss her hands they had a salty taste to them. The Dr. just called my daughter today and told her she has Cystic Fibrosis. So if you think something is worng don't give up keep at the Dr. tell them you want to be tested again.
grandmaof4
New member
My grandaughter is 3 weeks old from day one we were saying something was wrong all she does is sleep and when she does nurse she would spit it up everytime. Dad said when he would kiss her hands they had a salty taste to them. The Dr. just called my daughter today and told her she has Cystic Fibrosis. So if you think something is worng don't give up keep at the Dr. tell them you want to be tested again.
I never knew what to look for -- ds's stools on formula were always frequent and sorry if TMI, but they were fluffy and yellowish. Not really well formed. Wasn't until he switched to whole milk that he actually had a normal looking stool. In more recent years, I sometimes notice a little bit of oil floating in the toilet -- a few weekends ago when he was snacking on cheetos and didn't get enough enzymes, there was oil, like you'd see on top of a casserole.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.
I never knew what to look for -- ds's stools on formula were always frequent and sorry if TMI, but they were fluffy and yellowish. Not really well formed. Wasn't until he switched to whole milk that he actually had a normal looking stool. In more recent years, I sometimes notice a little bit of oil floating in the toilet -- a few weekends ago when he was snacking on cheetos and didn't get enough enzymes, there was oil, like you'd see on top of a casserole.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.
I never knew what to look for -- ds's stools on formula were always frequent and sorry if TMI, but they were fluffy and yellowish. Not really well formed. Wasn't until he switched to whole milk that he actually had a normal looking stool. In more recent years, I sometimes notice a little bit of oil floating in the toilet -- a few weekends ago when he was snacking on cheetos and didn't get enough enzymes, there was oil, like you'd see on top of a casserole.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.
I never knew what to look for -- ds's stools on formula were always frequent and sorry if TMI, but they were fluffy and yellowish. Not really well formed. Wasn't until he switched to whole milk that he actually had a normal looking stool. In more recent years, I sometimes notice a little bit of oil floating in the toilet -- a few weekends ago when he was snacking on cheetos and didn't get enough enzymes, there was oil, like you'd see on top of a casserole.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.
I never knew what to look for -- ds's stools on formula were always frequent and sorry if TMI, but they were fluffy and yellowish. Not really well formed. Wasn't until he switched to whole milk that he actually had a normal looking stool. In more recent years, I sometimes notice a little bit of oil floating in the toilet -- a few weekends ago when he was snacking on cheetos and didn't get enough enzymes, there was oil, like you'd see on top of a casserole.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.
A friend of mine's granddaughter who has the same genetic mutation as DS actually had more constipation issues instead of loose stools.