New to site/CF

[fedeler]

Hi my name is Erica, I first want to say that after reading numerous forum posts it is amazing to hear such positive people, It is a great attribute to have. <img src="i/expressions/face-icon-small-happy.gif" border="0">

My fiance (30) was just diagnosed this year with CF and I am trying to get as much info as i can on it. Most of the websites seem to have more info on children with CF.

This website seems like an amazing support group for everyone.

One of my questions is; Is it common to cough up blood with CF?

My other question is does anyone know of any good websites/support groups in addition to this website?


Appreciate any feedback! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[fedeler]

Hi my name is Erica, I first want to say that after reading numerous forum posts it is amazing to hear such positive people, It is a great attribute to have. <img src="i/expressions/face-icon-small-happy.gif" border="0">

My fiance (30) was just diagnosed this year with CF and I am trying to get as much info as i can on it. Most of the websites seem to have more info on children with CF.

This website seems like an amazing support group for everyone.

One of my questions is; Is it common to cough up blood with CF?

My other question is does anyone know of any good websites/support groups in addition to this website?


Appreciate any feedback! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[fedeler]

Hi my name is Erica, I first want to say that after reading numerous forum posts it is amazing to hear such positive people, It is a great attribute to have. <img src="i/expressions/face-icon-small-happy.gif" border="0">

My fiance (30) was just diagnosed this year with CF and I am trying to get as much info as i can on it. Most of the websites seem to have more info on children with CF.

This website seems like an amazing support group for everyone.

One of my questions is; Is it common to cough up blood with CF?

My other question is does anyone know of any good websites/support groups in addition to this website?


Appreciate any feedback! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[amber682]

Welcome to the site! Although I don't have any experience with coughing up blood (I don't have CF, my son does), a lot of people on this site do. You should post in the adults section, thats where most people read/post and you should get more responses there. I suggest visiting CFF.org, its the Cystic Fibrosis Foundations website. It has tons of info and you can be sure its valid, plus a lot of info about new medicines/treatments to help people with CF. A few people on this site visit more than one forum so I'm sure they could tell you of some other good support groups. I hope your fiance is doing well!

 

[amber682]

Welcome to the site! Although I don't have any experience with coughing up blood (I don't have CF, my son does), a lot of people on this site do. You should post in the adults section, thats where most people read/post and you should get more responses there. I suggest visiting CFF.org, its the Cystic Fibrosis Foundations website. It has tons of info and you can be sure its valid, plus a lot of info about new medicines/treatments to help people with CF. A few people on this site visit more than one forum so I'm sure they could tell you of some other good support groups. I hope your fiance is doing well!

 

[amber682]

Welcome to the site! Although I don't have any experience with coughing up blood (I don't have CF, my son does), a lot of people on this site do. You should post in the adults section, thats where most people read/post and you should get more responses there. I suggest visiting CFF.org, its the Cystic Fibrosis Foundations website. It has tons of info and you can be sure its valid, plus a lot of info about new medicines/treatments to help people with CF. A few people on this site visit more than one forum so I'm sure they could tell you of some other good support groups. I hope your fiance is doing well!

 

[coltsfan715]

Welcome to the site!

As for your question - yes it is common for people with CF to cough up blood. Like Amber I am fortunate enough that I do not have to deal with this much at all right now, but many people on here deal with this on a regular basis.

It can range anywhere from sputum/mucus with specks or streaks oh blood to pure blood that seems to just gurgle up and out of your chest - by what I have read.

I have gotten blood streaked sputum at times when I am sick or if I have been coughing extremely hard.

I agree with Amber - if you were to post this on the adult forum you may get more replies as many people read the adult forum whereas the family forum I have noticed tends to lean more towards parents and children with CF.

Take Care and sorry I can't recommend another site - as this is the only one I frequent.

Have a good day!
Lindsey

 

[coltsfan715]

Welcome to the site!

As for your question - yes it is common for people with CF to cough up blood. Like Amber I am fortunate enough that I do not have to deal with this much at all right now, but many people on here deal with this on a regular basis.

It can range anywhere from sputum/mucus with specks or streaks oh blood to pure blood that seems to just gurgle up and out of your chest - by what I have read.

I have gotten blood streaked sputum at times when I am sick or if I have been coughing extremely hard.

I agree with Amber - if you were to post this on the adult forum you may get more replies as many people read the adult forum whereas the family forum I have noticed tends to lean more towards parents and children with CF.

Take Care and sorry I can't recommend another site - as this is the only one I frequent.

Have a good day!
Lindsey

 

[coltsfan715]

Welcome to the site!

As for your question - yes it is common for people with CF to cough up blood. Like Amber I am fortunate enough that I do not have to deal with this much at all right now, but many people on here deal with this on a regular basis.

It can range anywhere from sputum/mucus with specks or streaks oh blood to pure blood that seems to just gurgle up and out of your chest - by what I have read.

I have gotten blood streaked sputum at times when I am sick or if I have been coughing extremely hard.

I agree with Amber - if you were to post this on the adult forum you may get more replies as many people read the adult forum whereas the family forum I have noticed tends to lean more towards parents and children with CF.

Take Care and sorry I can't recommend another site - as this is the only one I frequent.

Have a good day!
Lindsey

 

[welshgirl]

welcome fedeler, just for future reference if there is a particular question you may have go to the "search headline" on the home page . type in the question and all the old posts regarding that particular question will come up. see you around<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[welshgirl]

welcome fedeler, just for future reference if there is a particular question you may have go to the "search headline" on the home page . type in the question and all the old posts regarding that particular question will come up. see you around<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[welshgirl]

welcome fedeler, just for future reference if there is a particular question you may have go to the "search headline" on the home page . type in the question and all the old posts regarding that particular question will come up. see you around<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[LouLou]

Welcome Fedeler!
I cough up blood almost daily (in small amounts) and the general conscensus is I'm doing great. Of course it would be better if I didn't bleed but it's part of my cf. I'm well enough that my doctor didn't say I shouldn't get pregnant. After lots of planning, we are pregnant!

 

[LouLou]

Welcome Fedeler!
I cough up blood almost daily (in small amounts) and the general conscensus is I'm doing great. Of course it would be better if I didn't bleed but it's part of my cf. I'm well enough that my doctor didn't say I shouldn't get pregnant. After lots of planning, we are pregnant!

 

[LouLou]

Welcome Fedeler!
I cough up blood almost daily (in small amounts) and the general conscensus is I'm doing great. Of course it would be better if I didn't bleed but it's part of my cf. I'm well enough that my doctor didn't say I shouldn't get pregnant. After lots of planning, we are pregnant!

 

[Joanne]

Glad you found this site.... it is a great group here and the division of groups helps a great deal so you can read what interests you.

Coughing up blood is no fun, scarey and you think you will die... well that was me.
I had 3 or 4 major episodes (one on a plane over Denver). I had many smaller amounts and then streaks.

Not all CFers do it. I was always jealous when I would ask this of someone and they said "no.". Wish I was that lucky.

One of the reasons I chose to have a lung transplant was so I could rid of that risk, fear and those old CF lungs. It is wonderful not to have to think about coughing up blood.

I have a web site, many adult CF folks and family use it. Check it out.

<a target=_blank class=ftalternatingbarlinklarge href="http://groups.msn.com/TransplantSupportLungHeartLungHeart
">http://groups.msn.com/Transpla...ortLungHeartLungHeart
</a>
Joanne

 

[Joanne]

Glad you found this site.... it is a great group here and the division of groups helps a great deal so you can read what interests you.

Coughing up blood is no fun, scarey and you think you will die... well that was me.
I had 3 or 4 major episodes (one on a plane over Denver). I had many smaller amounts and then streaks.

Not all CFers do it. I was always jealous when I would ask this of someone and they said "no.". Wish I was that lucky.

One of the reasons I chose to have a lung transplant was so I could rid of that risk, fear and those old CF lungs. It is wonderful not to have to think about coughing up blood.

I have a web site, many adult CF folks and family use it. Check it out.

<a target=_blank class=ftalternatingbarlinklarge href="http://groups.msn.com/TransplantSupportLungHeartLungHeart
">http://groups.msn.com/Transpla...ortLungHeartLungHeart
</a>
Joanne

 

[Joanne]

Glad you found this site.... it is a great group here and the division of groups helps a great deal so you can read what interests you.

Coughing up blood is no fun, scarey and you think you will die... well that was me.
I had 3 or 4 major episodes (one on a plane over Denver). I had many smaller amounts and then streaks.

Not all CFers do it. I was always jealous when I would ask this of someone and they said "no.". Wish I was that lucky.

One of the reasons I chose to have a lung transplant was so I could rid of that risk, fear and those old CF lungs. It is wonderful not to have to think about coughing up blood.

I have a web site, many adult CF folks and family use it. Check it out.

<a target=_blank class=ftalternatingbarlinklarge href="http://groups.msn.com/TransplantSupportLungHeartLungHeart
">http://groups.msn.com/Transpla...ortLungHeartLungHeart
</a>
Joanne

 

[julie]

Hey Erica,

My husband Mark has CF. He was diagnosed as a toddler. This website is great. There are a few other partners/spouses on this site. My husband is 26 and I'm 23. We just had triplets that were concieved through IVF.

Hope you find some great information and wonderful friendships as I have here!!!

 

[julie]

Hey Erica,

My husband Mark has CF. He was diagnosed as a toddler. This website is great. There are a few other partners/spouses on this site. My husband is 26 and I'm 23. We just had triplets that were concieved through IVF.

Hope you find some great information and wonderful friendships as I have here!!!