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DonnaB

New member
Hi - I got my second sweat test results which were 23 and 26. So the first time was 40/36 and now a low one. I am not sure what to do! The genetic test you all talk about - is it just drawing blood? I may consider it if it not to invasive. I am still waiting for allergy testing at the end of this month. My son only seems to be sick from Sept. to March and than is fine, was able to get him off his flovent over last summer. Not sure how to pursue. You all have great ideas and encouragement and am glad I joined this group.
 

DonnaB

New member
Hi - I got my second sweat test results which were 23 and 26. So the first time was 40/36 and now a low one. I am not sure what to do! The genetic test you all talk about - is it just drawing blood? I may consider it if it not to invasive. I am still waiting for allergy testing at the end of this month. My son only seems to be sick from Sept. to March and than is fine, was able to get him off his flovent over last summer. Not sure how to pursue. You all have great ideas and encouragement and am glad I joined this group.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DonnaB</b></i>

Hi - I got my second sweat test results which were 23 and 26. So the first time was 40/36 and now a low one. I am not sure what to do! The genetic test you all talk about - is it just drawing blood? I may consider it if it not to invasive. I am still waiting for allergy testing at the end of this month. My son only seems to be sick from Sept. to March and than is fine, was able to get him off his flovent over last summer. Not sure how to pursue. You all have great ideas and encouragement and am glad I joined this group.</end quote></div>

The Genetic test is drawing of blood, but it should really not just go to any lab. The blood should go to Ambry since they test for the most mutations (tho what is tested for depends on what is ordered) and are most familiar with CF testing.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DonnaB</b></i>

Hi - I got my second sweat test results which were 23 and 26. So the first time was 40/36 and now a low one. I am not sure what to do! The genetic test you all talk about - is it just drawing blood? I may consider it if it not to invasive. I am still waiting for allergy testing at the end of this month. My son only seems to be sick from Sept. to March and than is fine, was able to get him off his flovent over last summer. Not sure how to pursue. You all have great ideas and encouragement and am glad I joined this group.</end quote></div>

The Genetic test is drawing of blood, but it should really not just go to any lab. The blood should go to Ambry since they test for the most mutations (tho what is tested for depends on what is ordered) and are most familiar with CF testing.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DonnaB</b></i>

Hi - I got my second sweat test results which were 23 and 26. So the first time was 40/36 and now a low one. I am not sure what to do! The genetic test you all talk about - is it just drawing blood? I may consider it if it not to invasive. I am still waiting for allergy testing at the end of this month. My son only seems to be sick from Sept. to March and than is fine, was able to get him off his flovent over last summer. Not sure how to pursue. You all have great ideas and encouragement and am glad I joined this group.</end quote></div>

The Genetic test is drawing of blood, but it should really not just go to any lab. The blood should go to Ambry since they test for the most mutations (tho what is tested for depends on what is ordered) and are most familiar with CF testing.
 

ktsmom

New member
I'll expand on Melissa's reply and clarify that any lab can DRAW the blood per your physician's request, then you should send it to Ambry with this form (hope the link works) Your physician would also request the level of testing.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ambrygenetics.com/reports/F1206-02-011-PTM-14%20_Test%20Requisition%20Form_.pdf">http://www.ambrygenetics.com/r...equisition%20Form_.pdf</a>
 

ktsmom

New member
I'll expand on Melissa's reply and clarify that any lab can DRAW the blood per your physician's request, then you should send it to Ambry with this form (hope the link works) Your physician would also request the level of testing.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ambrygenetics.com/reports/F1206-02-011-PTM-14%20_Test%20Requisition%20Form_.pdf">http://www.ambrygenetics.com/r...equisition%20Form_.pdf</a>
 

ktsmom

New member
I'll expand on Melissa's reply and clarify that any lab can DRAW the blood per your physician's request, then you should send it to Ambry with this form (hope the link works) Your physician would also request the level of testing.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ambrygenetics.com/reports/F1206-02-011-PTM-14%20_Test%20Requisition%20Form_.pdf">http://www.ambrygenetics.com/r...equisition%20Form_.pdf</a>
 
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