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new to this forum---many questions
- Thread starter Kenziesmom
- Start date
I'm glad you found us. I hope that you can find some comfort here. You are absolutely not alone. Anxiety completely stinks, and I understand it all too well. It's so very unsettling to know that your child has a disease/illness that you can do nothing about. Of course you can be compliant with treatments, and all of that, but you can't make it go away. At the end of the day it's still there. It really helps me to know that other parents feel what I feel.
My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
I look forward to getting to know you better.
Stacey
My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
I look forward to getting to know you better.
Stacey
I'm glad you found us. I hope that you can find some comfort here. You are absolutely not alone. Anxiety completely stinks, and I understand it all too well. It's so very unsettling to know that your child has a disease/illness that you can do nothing about. Of course you can be compliant with treatments, and all of that, but you can't make it go away. At the end of the day it's still there. It really helps me to know that other parents feel what I feel.
My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
I look forward to getting to know you better.
Stacey
My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
I look forward to getting to know you better.
Stacey
I'm glad you found us. I hope that you can find some comfort here. You are absolutely not alone. Anxiety completely stinks, and I understand it all too well. It's so very unsettling to know that your child has a disease/illness that you can do nothing about. Of course you can be compliant with treatments, and all of that, but you can't make it go away. At the end of the day it's still there. It really helps me to know that other parents feel what I feel.
My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
I look forward to getting to know you better.
Stacey
My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
I look forward to getting to know you better.
Stacey
I'm glad you found us. I hope that you can find some comfort here. You are absolutely not alone. Anxiety completely stinks, and I understand it all too well. It's so very unsettling to know that your child has a disease/illness that you can do nothing about. Of course you can be compliant with treatments, and all of that, but you can't make it go away. At the end of the day it's still there. It really helps me to know that other parents feel what I feel.
My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
I look forward to getting to know you better.
Stacey
My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
I look forward to getting to know you better.
Stacey
I'm glad you found us. I hope that you can find some comfort here. You are absolutely not alone. Anxiety completely stinks, and I understand it all too well. It's so very unsettling to know that your child has a disease/illness that you can do nothing about. Of course you can be compliant with treatments, and all of that, but you can't make it go away. At the end of the day it's still there. It really helps me to know that other parents feel what I feel.
<br />
<br />My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
<br />
<br />I look forward to getting to know you better.
<br />
<br />Stacey
<br />
<br />My son keeps CF from a lot of people too. Sometimes I think he feels that if he ignores it, it will go away. The teen years are so hard, even without CF in the picture. Just support your daughter, and educate her. Help her understand that she can be in control of some things, and how important preventative care is.
<br />
<br />I look forward to getting to know you better.
<br />
<br />Stacey
Kenziesmom
New member
Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3 weeks so I think that has put me a little on edge. We have been able to do nothing except sit in our house with our air purifiers on full blast. We are getting away this weekend to Portland where I heard it is not smokey so I hope that will help us get rid of the cabin fever and the constant fear I have had lately. Thank you again for all your responses....
Kenziesmom
New member
Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3 weeks so I think that has put me a little on edge. We have been able to do nothing except sit in our house with our air purifiers on full blast. We are getting away this weekend to Portland where I heard it is not smokey so I hope that will help us get rid of the cabin fever and the constant fear I have had lately. Thank you again for all your responses....
Kenziesmom
New member
Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3 weeks so I think that has put me a little on edge. We have been able to do nothing except sit in our house with our air purifiers on full blast. We are getting away this weekend to Portland where I heard it is not smokey so I hope that will help us get rid of the cabin fever and the constant fear I have had lately. Thank you again for all your responses....
Kenziesmom
New member
Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3 weeks so I think that has put me a little on edge. We have been able to do nothing except sit in our house with our air purifiers on full blast. We are getting away this weekend to Portland where I heard it is not smokey so I hope that will help us get rid of the cabin fever and the constant fear I have had lately. Thank you again for all your responses....
Kenziesmom
New member
Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3 weeks so I think that has put me a little on edge. We have been able to do nothing except sit in our house with our air purifiers on full blast. We are getting away this weekend to Portland where I heard it is not smokey so I hope that will help us get rid of the cabin fever and the constant fear I have had lately. Thank you again for all your responses....
JennyCoulon
New member
Welcome to the site, you will get a lot of support on here from all of us so you hopefully wont feel so alone. My oldest is 8 years old and he does his treatments, takes his meds, and just lives life. He does have a g button that his friends know about (basically b/c they are on his soccer team and has gotten a direct hit a couple of times). They dont ask him a lot of questions.
I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">
I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">
JennyCoulon
New member
Welcome to the site, you will get a lot of support on here from all of us so you hopefully wont feel so alone. My oldest is 8 years old and he does his treatments, takes his meds, and just lives life. He does have a g button that his friends know about (basically b/c they are on his soccer team and has gotten a direct hit a couple of times). They dont ask him a lot of questions.
I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">
I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">
JennyCoulon
New member
Welcome to the site, you will get a lot of support on here from all of us so you hopefully wont feel so alone. My oldest is 8 years old and he does his treatments, takes his meds, and just lives life. He does have a g button that his friends know about (basically b/c they are on his soccer team and has gotten a direct hit a couple of times). They dont ask him a lot of questions.
I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">
I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">
JennyCoulon
New member
Welcome to the site, you will get a lot of support on here from all of us so you hopefully wont feel so alone. My oldest is 8 years old and he does his treatments, takes his meds, and just lives life. He does have a g button that his friends know about (basically b/c they are on his soccer team and has gotten a direct hit a couple of times). They dont ask him a lot of questions.
I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">
I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">
JennyCoulon
New member
Welcome to the site, you will get a lot of support on here from all of us so you hopefully wont feel so alone. My oldest is 8 years old and he does his treatments, takes his meds, and just lives life. He does have a g button that his friends know about (basically b/c they are on his soccer team and has gotten a direct hit a couple of times). They dont ask him a lot of questions.
<br />
<br />I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br />
<br />I would hope that as he gets older he will feel that he can tell his closest friends about him having CF and answer any questions that they have. If he does decide that he wants to keep it to himself as he gets older then I guess that would be okay. I know that at this point he doesn't feel different b/c taking enzymes, doing treatments, etc. is all that he as ever know. In the future I hope that he will be open so he can have his friends support him. Hope this helps. <img src="i/expressions/face-icon-small-happy.gif" border="0">