New User: My Fiance has CF She is 28. Any similar scenarios?

T

Transplantmommy

New member
Hi Brandon,
<br />I was actually very sick and my PFT's were crap when I found out I was pregnant. I had already gone to Cleveland Clinic to be evaluated for a double lung and liver transplant. I was 24 at that time and being that I really was not healthy, I was told to terminate the pregnancy. I decided that I wanted to go ahead and carry the baby as far as I could..I didn't want to give up. My son was born 7 weeks early, but was healthy. He is now 4.5 years old!!
<br />
<br />If you or your fiance want to read the whole story, you can visit my blog... www.daysinthelifeofacfpatient.blogspot.com
<br />I hadn't written in my blog in over a year, and am just now starting to update everything. Feel free to read as much as you want.
<br />
<br />I am now 29, had the double lung and liver transplant in January 2007, and although I can't have anymore kids, I'm very happy with my decisions and where I'm at today.
 
S

Sweetness81

New member
CONGRATS!!!
Welcome to the cf community. I am a fellow cfer. No your not too old. We have pretty much the same chances as anyone else. Everything is based on individual cases of cf. In General we are just as capable to being parents. We may have some health maintenance we have to do, but so does other people. It only really matters on how you guys feel and what you think your body can handle.

Here anytime,
 
S

Sweetness81

New member
CONGRATS!!!
Welcome to the cf community. I am a fellow cfer. No your not too old. We have pretty much the same chances as anyone else. Everything is based on individual cases of cf. In General we are just as capable to being parents. We may have some health maintenance we have to do, but so does other people. It only really matters on how you guys feel and what you think your body can handle.

Here anytime,
 
S

Sweetness81

New member
CONGRATS!!!
<br />Welcome to the cf community. I am a fellow cfer. No your not too old. We have pretty much the same chances as anyone else. Everything is based on individual cases of cf. In General we are just as capable to being parents. We may have some health maintenance we have to do, but so does other people. It only really matters on how you guys feel and what you think your body can handle.
<br />
<br />Here anytime,
 
L

LouLou

New member
Generally the cut off is an FEV1 of 50% and pregnancy is not recommended. Although many doctors like to see an FEV1 above 70%. I was 61% before I got pregnant and now 4 years later I am 67%. I had to eat 5000 cal a day to gain 25 lbs during pregnancy. I delivered a healthy baby boy 7lb 10 oz at 40 weeks.

My health is my number one priority for me and my family. I stay home to take care of myself and my son (who is 3). I work very had to stay well. I always have but now there's no room for slipping or I get sick quickly. I am on social sec disability.
 
L

LouLou

New member
Generally the cut off is an FEV1 of 50% and pregnancy is not recommended. Although many doctors like to see an FEV1 above 70%. I was 61% before I got pregnant and now 4 years later I am 67%. I had to eat 5000 cal a day to gain 25 lbs during pregnancy. I delivered a healthy baby boy 7lb 10 oz at 40 weeks.

My health is my number one priority for me and my family. I stay home to take care of myself and my son (who is 3). I work very had to stay well. I always have but now there's no room for slipping or I get sick quickly. I am on social sec disability.
 
L

LouLou

New member
Generally the cut off is an FEV1 of 50% and pregnancy is not recommended. Although many doctors like to see an FEV1 above 70%. I was 61% before I got pregnant and now 4 years later I am 67%. I had to eat 5000 cal a day to gain 25 lbs during pregnancy. I delivered a healthy baby boy 7lb 10 oz at 40 weeks.
<br />
<br />My health is my number one priority for me and my family. I stay home to take care of myself and my son (who is 3). I work very had to stay well. I always have but now there's no room for slipping or I get sick quickly. I am on social sec disability.
 
B

bookworm

Guest
I'm at the other end of the spectrum. I have 2 kids who are 30 and 27. I'm still a working mom with cf. My daughter was born at home.

A few months back I read about someone who passed away at the age of 70, who had cf and had - I think - 4 kids. She was a single mom who supported all of her children as they grew up. What was rather extraordinary about her life is that one of her children was disabled and she fought very hard to help him become self-sufficient and own his own business. I believe, her advocacy efforts also led to a position as secretary of state.

I've also read about a woman who was a grandmother at 80 who had cf...

Your fiancee might be a bit young to be a grandmother :)
 
B

bookworm

Guest
I'm at the other end of the spectrum. I have 2 kids who are 30 and 27. I'm still a working mom with cf. My daughter was born at home.

A few months back I read about someone who passed away at the age of 70, who had cf and had - I think - 4 kids. She was a single mom who supported all of her children as they grew up. What was rather extraordinary about her life is that one of her children was disabled and she fought very hard to help him become self-sufficient and own his own business. I believe, her advocacy efforts also led to a position as secretary of state.

I've also read about a woman who was a grandmother at 80 who had cf...

Your fiancee might be a bit young to be a grandmother :)
 
B

bookworm

Guest
I'm at the other end of the spectrum. I have 2 kids who are 30 and 27. I'm still a working mom with cf. My daughter was born at home.
<br />
<br />A few months back I read about someone who passed away at the age of 70, who had cf and had - I think - 4 kids. She was a single mom who supported all of her children as they grew up. What was rather extraordinary about her life is that one of her children was disabled and she fought very hard to help him become self-sufficient and own his own business. I believe, her advocacy efforts also led to a position as secretary of state.
<br />
<br />I've also read about a woman who was a grandmother at 80 who had cf...
<br />
<br />Your fiancee might be a bit young to be a grandmother :)
 
W

welshwitch

Guest
Book worm, how old are you? (Just curious <img src="i/expressions/face-icon-small-smile.gif" border="0"> )
 
W

welshwitch

Guest
Book worm, how old are you? (Just curious <img src="i/expressions/face-icon-small-smile.gif" border="0"> )
 
W

welshwitch

Guest
Book worm, how old are you? (Just curious <img src="i/expressions/face-icon-small-smile.gif" border="0"> )
 
J

Jeana

New member
I am 34 and had my youngest boy a year and a half ago. We adopted my older son Chris after 10 years of my husband and I being together and not getting pregnant. Then when Chris was 3, we decided to try in vitro fertilization. When I went in for the appointment though, I was already pregnant with my little miracle Alex. My FEV1 was at 80% and my weight was good, but I had a really difficult pregnancy. However, within a couple of months after having the baby my FEV1 had bounced back up to my baseline.

I agree with others that everyone with CF has a different progression in health, so it's important to make the choice based on your fiance's health. Also I advise you to get carrier testing done. Another great place to post is on the pregnancy thread. Lots of luck! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

Jeana

New member
I am 34 and had my youngest boy a year and a half ago. We adopted my older son Chris after 10 years of my husband and I being together and not getting pregnant. Then when Chris was 3, we decided to try in vitro fertilization. When I went in for the appointment though, I was already pregnant with my little miracle Alex. My FEV1 was at 80% and my weight was good, but I had a really difficult pregnancy. However, within a couple of months after having the baby my FEV1 had bounced back up to my baseline.

I agree with others that everyone with CF has a different progression in health, so it's important to make the choice based on your fiance's health. Also I advise you to get carrier testing done. Another great place to post is on the pregnancy thread. Lots of luck! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

Jeana

New member
I am 34 and had my youngest boy a year and a half ago. We adopted my older son Chris after 10 years of my husband and I being together and not getting pregnant. Then when Chris was 3, we decided to try in vitro fertilization. When I went in for the appointment though, I was already pregnant with my little miracle Alex. My FEV1 was at 80% and my weight was good, but I had a really difficult pregnancy. However, within a couple of months after having the baby my FEV1 had bounced back up to my baseline.
<br />
<br />I agree with others that everyone with CF has a different progression in health, so it's important to make the choice based on your fiance's health. Also I advise you to get carrier testing done. Another great place to post is on the pregnancy thread. Lots of luck! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

Jet

Member
I'm a 48 year old cf dad of two girls, 11 and 14. My health has always been pretty good. I'm able to work full time. From the beginning we've been very open with them about the disease. We've addressed all the issues with them that were appropriate for their age at the time. For me they've been a real motivator to take good care of myself. I think the experience has had benefits for them too. They get to see first hand that life's curve balls don't have to stop you.

Like most people have said on here, its a big decision but I've never regretted ours.
 
J

Jet

Member
I'm a 48 year old cf dad of two girls, 11 and 14. My health has always been pretty good. I'm able to work full time. From the beginning we've been very open with them about the disease. We've addressed all the issues with them that were appropriate for their age at the time. For me they've been a real motivator to take good care of myself. I think the experience has had benefits for them too. They get to see first hand that life's curve balls don't have to stop you.

Like most people have said on here, its a big decision but I've never regretted ours.
 
J

Jet

Member
I'm a 48 year old cf dad of two girls, 11 and 14. My health has always been pretty good. I'm able to work full time. From the beginning we've been very open with them about the disease. We've addressed all the issues with them that were appropriate for their age at the time. For me they've been a real motivator to take good care of myself. I think the experience has had benefits for them too. They get to see first hand that life's curve balls don't have to stop you.
<br />
<br />Like most people have said on here, its a big decision but I've never regretted ours.
 
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