IF you tell a CFer they will never make it then chances are good they would never try. WHat happens if the life expectancy allows the time, but that CFer's drive for that goal was broken? That would be a shame. At least let them have a dream and if it becomes a reality with time, talent and luck fantastic. What does it hurt?
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- Thread starter sandygirl
- Start date
hey i'm only 16 and wasn't diagnosed until i was 14 and of course i wanted to be an astronaut, football player, or racecar driver, it's what little kids do, especially boys. i now know that the astronaut thing is definatley out (i stopped wanting to be one when i was like 10 because i learned that because there are no toilets in outer space they wear diapers lol) and the others are unrealistic, not impossible, but unrealistic, i would suggest that you keep encouraging your child regardless of what they want to be, when i was diagnosed i learned that the military was out of the picture (that is what i wanted to do at the time) and it upset me but i knew there wasn't anything i could do about it so i just sort of accepted it, i would think that others would do that as well, don't rain on their parade with, oh, you can't do that because of your cf, it doesn't do well with their self esteem, but as they get older, if they still want to be a firefighter, sumo wrestler lol, or astronaut, go ahead and tell them they can't do that, but suggest something like it to not completely ripped out from under them, this is starting to ramble so i'll shut up, hope it helps
hey i'm only 16 and wasn't diagnosed until i was 14 and of course i wanted to be an astronaut, football player, or racecar driver, it's what little kids do, especially boys. i now know that the astronaut thing is definatley out (i stopped wanting to be one when i was like 10 because i learned that because there are no toilets in outer space they wear diapers lol) and the others are unrealistic, not impossible, but unrealistic, i would suggest that you keep encouraging your child regardless of what they want to be, when i was diagnosed i learned that the military was out of the picture (that is what i wanted to do at the time) and it upset me but i knew there wasn't anything i could do about it so i just sort of accepted it, i would think that others would do that as well, don't rain on their parade with, oh, you can't do that because of your cf, it doesn't do well with their self esteem, but as they get older, if they still want to be a firefighter, sumo wrestler lol, or astronaut, go ahead and tell them they can't do that, but suggest something like it to not completely ripped out from under them, this is starting to ramble so i'll shut up, hope it helps
hey i'm only 16 and wasn't diagnosed until i was 14 and of course i wanted to be an astronaut, football player, or racecar driver, it's what little kids do, especially boys. i now know that the astronaut thing is definatley out (i stopped wanting to be one when i was like 10 because i learned that because there are no toilets in outer space they wear diapers lol) and the others are unrealistic, not impossible, but unrealistic, i would suggest that you keep encouraging your child regardless of what they want to be, when i was diagnosed i learned that the military was out of the picture (that is what i wanted to do at the time) and it upset me but i knew there wasn't anything i could do about it so i just sort of accepted it, i would think that others would do that as well, don't rain on their parade with, oh, you can't do that because of your cf, it doesn't do well with their self esteem, but as they get older, if they still want to be a firefighter, sumo wrestler lol, or astronaut, go ahead and tell them they can't do that, but suggest something like it to not completely ripped out from under them, this is starting to ramble so i'll shut up, hope it helps
Am I awful? I occasionally remark that my 4-yr-old would make a great actor-- because he's a drama queen as is and he's already skinny (good on camera)... He wants to drive trains; that's the current plan. What the hey? As long as they're healthy and keep up their treatments, the cure could grant their footballing dreams!
Am I awful? I occasionally remark that my 4-yr-old would make a great actor-- because he's a drama queen as is and he's already skinny (good on camera)... He wants to drive trains; that's the current plan. What the hey? As long as they're healthy and keep up their treatments, the cure could grant their footballing dreams!
Am I awful? I occasionally remark that my 4-yr-old would make a great actor-- because he's a drama queen as is and he's already skinny (good on camera)... He wants to drive trains; that's the current plan. What the hey? As long as they're healthy and keep up their treatments, the cure could grant their footballing dreams!
janddburke
New member
I'm the mom to Jess, 12, w CF and from the time she was diagnosed at 5 months we treated her like any other kid and let her do all the things other kids did until we felt she couldn't. this meant day care, girl scouts, summer camp (not sleepover) etc. okay, so camping with the scouts turned out to be a really bad idea most of the time she was just another kid.
unfortunately, now we are faced with the prospect of trying to impress upon her just how 'sick' she really is - or could be.
she was just in the hospital for the first time since she first first diagnosed. repeated infectetions etc. ended up with MRSA.
so we've all been a little spoiled. I know so many families have it alot worse. I don't want to scare her but I don't want her to be so naive either.
any thoughts? any help would be gratefully appreciated.
unfortunately, now we are faced with the prospect of trying to impress upon her just how 'sick' she really is - or could be.
she was just in the hospital for the first time since she first first diagnosed. repeated infectetions etc. ended up with MRSA.
so we've all been a little spoiled. I know so many families have it alot worse. I don't want to scare her but I don't want her to be so naive either.
any thoughts? any help would be gratefully appreciated.
janddburke
New member
I'm the mom to Jess, 12, w CF and from the time she was diagnosed at 5 months we treated her like any other kid and let her do all the things other kids did until we felt she couldn't. this meant day care, girl scouts, summer camp (not sleepover) etc. okay, so camping with the scouts turned out to be a really bad idea most of the time she was just another kid.
unfortunately, now we are faced with the prospect of trying to impress upon her just how 'sick' she really is - or could be.
she was just in the hospital for the first time since she first first diagnosed. repeated infectetions etc. ended up with MRSA.
so we've all been a little spoiled. I know so many families have it alot worse. I don't want to scare her but I don't want her to be so naive either.
any thoughts? any help would be gratefully appreciated.
unfortunately, now we are faced with the prospect of trying to impress upon her just how 'sick' she really is - or could be.
she was just in the hospital for the first time since she first first diagnosed. repeated infectetions etc. ended up with MRSA.
so we've all been a little spoiled. I know so many families have it alot worse. I don't want to scare her but I don't want her to be so naive either.
any thoughts? any help would be gratefully appreciated.
janddburke
New member
I'm the mom to Jess, 12, w CF and from the time she was diagnosed at 5 months we treated her like any other kid and let her do all the things other kids did until we felt she couldn't. this meant day care, girl scouts, summer camp (not sleepover) etc. okay, so camping with the scouts turned out to be a really bad idea most of the time she was just another kid.
unfortunately, now we are faced with the prospect of trying to impress upon her just how 'sick' she really is - or could be.
she was just in the hospital for the first time since she first first diagnosed. repeated infectetions etc. ended up with MRSA.
so we've all been a little spoiled. I know so many families have it alot worse. I don't want to scare her but I don't want her to be so naive either.
any thoughts? any help would be gratefully appreciated.
unfortunately, now we are faced with the prospect of trying to impress upon her just how 'sick' she really is - or could be.
she was just in the hospital for the first time since she first first diagnosed. repeated infectetions etc. ended up with MRSA.
so we've all been a little spoiled. I know so many families have it alot worse. I don't want to scare her but I don't want her to be so naive either.
any thoughts? any help would be gratefully appreciated.