NEw with questions!

[dmscheib]

Okay So im very dumb about cystic fibrosis and Everything my 2 year old daughter is going through!! We have an appointment with our GI specialist for the second time Tuesday! But while my mind is worrying and working overtime I looked up Constipation on WEBMD and CF came up also colon cancer, crohns disease and a couple of others!
Her symptoms are: Major constipation for almost 2 years, Not eating good, Smaller than most her age, she had to have her tonsils, adenoids removed and tubes in her ears a week after her second birthday b/c of all the problems, I have just noticed recently she has a cough not all the time but several times through the day that most of the time causes something to come up and the other night she got sick b/c of it.

So I have some questions!

What were your kids symptoms?
What age did you/child get diagnosed with it?
Do her symptoms sound like it could be it or am I looking way into it?
Can the symptoms just come out or would i know from birth?

I am scared of everything and I always expect the worst(bad habit) !!
Please help! I dont know if im looking way into it or there could be a possibility! Ive heard so many things with whats going on and what it could be! I thought the best place to ask would be here! THANKS!

 

[dmscheib]

Okay So im very dumb about cystic fibrosis and Everything my 2 year old daughter is going through!! We have an appointment with our GI specialist for the second time Tuesday! But while my mind is worrying and working overtime I looked up Constipation on WEBMD and CF came up also colon cancer, crohns disease and a couple of others!
Her symptoms are: Major constipation for almost 2 years, Not eating good, Smaller than most her age, she had to have her tonsils, adenoids removed and tubes in her ears a week after her second birthday b/c of all the problems, I have just noticed recently she has a cough not all the time but several times through the day that most of the time causes something to come up and the other night she got sick b/c of it.

So I have some questions!

What were your kids symptoms?
What age did you/child get diagnosed with it?
Do her symptoms sound like it could be it or am I looking way into it?
Can the symptoms just come out or would i know from birth?

I am scared of everything and I always expect the worst(bad habit) !!
Please help! I dont know if im looking way into it or there could be a possibility! Ive heard so many things with whats going on and what it could be! I thought the best place to ask would be here! THANKS!

 

[dmscheib]

Okay So im very dumb about cystic fibrosis and Everything my 2 year old daughter is going through!! We have an appointment with our GI specialist for the second time Tuesday! But while my mind is worrying and working overtime I looked up Constipation on WEBMD and CF came up also colon cancer, crohns disease and a couple of others!
Her symptoms are: Major constipation for almost 2 years, Not eating good, Smaller than most her age, she had to have her tonsils, adenoids removed and tubes in her ears a week after her second birthday b/c of all the problems, I have just noticed recently she has a cough not all the time but several times through the day that most of the time causes something to come up and the other night she got sick b/c of it.

So I have some questions!

What were your kids symptoms?
What age did you/child get diagnosed with it?
Do her symptoms sound like it could be it or am I looking way into it?
Can the symptoms just come out or would i know from birth?

I am scared of everything and I always expect the worst(bad habit) !!
Please help! I dont know if im looking way into it or there could be a possibility! Ive heard so many things with whats going on and what it could be! I thought the best place to ask would be here! THANKS!

 

[dmscheib]

Okay So im very dumb about cystic fibrosis and Everything my 2 year old daughter is going through!! We have an appointment with our GI specialist for the second time Tuesday! But while my mind is worrying and working overtime I looked up Constipation on WEBMD and CF came up also colon cancer, crohns disease and a couple of others!
Her symptoms are: Major constipation for almost 2 years, Not eating good, Smaller than most her age, she had to have her tonsils, adenoids removed and tubes in her ears a week after her second birthday b/c of all the problems, I have just noticed recently she has a cough not all the time but several times through the day that most of the time causes something to come up and the other night she got sick b/c of it.

So I have some questions!

What were your kids symptoms?
What age did you/child get diagnosed with it?
Do her symptoms sound like it could be it or am I looking way into it?
Can the symptoms just come out or would i know from birth?

I am scared of everything and I always expect the worst(bad habit) !!
Please help! I dont know if im looking way into it or there could be a possibility! Ive heard so many things with whats going on and what it could be! I thought the best place to ask would be here! THANKS!

 

[dmscheib]

Okay So im very dumb about cystic fibrosis and Everything my 2 year old daughter is going through!! We have an appointment with our GI specialist for the second time Tuesday! But while my mind is worrying and working overtime I looked up Constipation on WEBMD and CF came up also colon cancer, crohns disease and a couple of others!
<br />Her symptoms are: Major constipation for almost 2 years, Not eating good, Smaller than most her age, she had to have her tonsils, adenoids removed and tubes in her ears a week after her second birthday b/c of all the problems, I have just noticed recently she has a cough not all the time but several times through the day that most of the time causes something to come up and the other night she got sick b/c of it.
<br />
<br />So I have some questions!
<br />
<br />What were your kids symptoms?
<br />What age did you/child get diagnosed with it?
<br />Do her symptoms sound like it could be it or am I looking way into it?
<br />Can the symptoms just come out or would i know from birth?
<br />
<br />I am scared of everything and I always expect the worst(bad habit) !!
<br />Please help! I dont know if im looking way into it or there could be a possibility! Ive heard so many things with whats going on and what it could be! I thought the best place to ask would be here! THANKS!

 

[Terry]

First, calm down and take a deep breath. In my opinion CF is a treatable (not curable YET, but treatable and livable) illness. Once you get over the shock, (if it turns out that way) you will see that as well. If you think your child may have it, go straight to DNA testing. The sooner she gets the proper treatments, the better she will do.

Marissa had problems gaining weight, she would eat very little, but somehow poop so much more. She had frequent "colds," runny or stuffy nose always, ear infections,sinus infections, and lots of "asthma" attacks. She wasn't diagnosed until she was almost 4 years old.

Today she looks like any other kid. She is shorter than other kids her age, but if you didn't know she had CF, you wouldn't be able to tell. She takes enzymes and has a G-Tube that she gets fed through at night, so she is growing now. Unless she is actually sick she can keep up with anyone her age.

Sometimes not knowing is more scary than the truth. Get the testing done so that if that is not the cause you can move on to finding out what is, and if it is the cause you can get her what she needs to get and stay healthy.


Good Luck!
Terry

 

[Terry]

First, calm down and take a deep breath. In my opinion CF is a treatable (not curable YET, but treatable and livable) illness. Once you get over the shock, (if it turns out that way) you will see that as well. If you think your child may have it, go straight to DNA testing. The sooner she gets the proper treatments, the better she will do.

Marissa had problems gaining weight, she would eat very little, but somehow poop so much more. She had frequent "colds," runny or stuffy nose always, ear infections,sinus infections, and lots of "asthma" attacks. She wasn't diagnosed until she was almost 4 years old.

Today she looks like any other kid. She is shorter than other kids her age, but if you didn't know she had CF, you wouldn't be able to tell. She takes enzymes and has a G-Tube that she gets fed through at night, so she is growing now. Unless she is actually sick she can keep up with anyone her age.

Sometimes not knowing is more scary than the truth. Get the testing done so that if that is not the cause you can move on to finding out what is, and if it is the cause you can get her what she needs to get and stay healthy.


Good Luck!
Terry

 

[Terry]

First, calm down and take a deep breath. In my opinion CF is a treatable (not curable YET, but treatable and livable) illness. Once you get over the shock, (if it turns out that way) you will see that as well. If you think your child may have it, go straight to DNA testing. The sooner she gets the proper treatments, the better she will do.

Marissa had problems gaining weight, she would eat very little, but somehow poop so much more. She had frequent "colds," runny or stuffy nose always, ear infections,sinus infections, and lots of "asthma" attacks. She wasn't diagnosed until she was almost 4 years old.

Today she looks like any other kid. She is shorter than other kids her age, but if you didn't know she had CF, you wouldn't be able to tell. She takes enzymes and has a G-Tube that she gets fed through at night, so she is growing now. Unless she is actually sick she can keep up with anyone her age.

Sometimes not knowing is more scary than the truth. Get the testing done so that if that is not the cause you can move on to finding out what is, and if it is the cause you can get her what she needs to get and stay healthy.


Good Luck!
Terry

 

[Terry]

First, calm down and take a deep breath. In my opinion CF is a treatable (not curable YET, but treatable and livable) illness. Once you get over the shock, (if it turns out that way) you will see that as well. If you think your child may have it, go straight to DNA testing. The sooner she gets the proper treatments, the better she will do.

Marissa had problems gaining weight, she would eat very little, but somehow poop so much more. She had frequent "colds," runny or stuffy nose always, ear infections,sinus infections, and lots of "asthma" attacks. She wasn't diagnosed until she was almost 4 years old.

Today she looks like any other kid. She is shorter than other kids her age, but if you didn't know she had CF, you wouldn't be able to tell. She takes enzymes and has a G-Tube that she gets fed through at night, so she is growing now. Unless she is actually sick she can keep up with anyone her age.

Sometimes not knowing is more scary than the truth. Get the testing done so that if that is not the cause you can move on to finding out what is, and if it is the cause you can get her what she needs to get and stay healthy.


Good Luck!
Terry

 

[Terry]

First, calm down and take a deep breath. In my opinion CF is a treatable (not curable YET, but treatable and livable) illness. Once you get over the shock, (if it turns out that way) you will see that as well. If you think your child may have it, go straight to DNA testing. The sooner she gets the proper treatments, the better she will do.
<br />
<br />Marissa had problems gaining weight, she would eat very little, but somehow poop so much more. She had frequent "colds," runny or stuffy nose always, ear infections,sinus infections, and lots of "asthma" attacks. She wasn't diagnosed until she was almost 4 years old.
<br />
<br />Today she looks like any other kid. She is shorter than other kids her age, but if you didn't know she had CF, you wouldn't be able to tell. She takes enzymes and has a G-Tube that she gets fed through at night, so she is growing now. Unless she is actually sick she can keep up with anyone her age.
<br />
<br />Sometimes not knowing is more scary than the truth. Get the testing done so that if that is not the cause you can move on to finding out what is, and if it is the cause you can get her what she needs to get and stay healthy.
<br />
<br />
<br />Good Luck!
<br />Terry

 

[JORDYSMOM]

You aren't dumb, you're just uninformed. <img src="i/expressions/face-icon-small-smile.gif" border="0">

My son had breathing problems from day one. He wouldn't take a pacifier, because he couldn't breathe with it in his mouth. His nose was always clogged! He had his first set of ear tubes at 9 mos, due to chronic ear infections. At that time, the doc told me his aednoids were already rotten, and would have to come out as soon as he was old enough to be under anesthesia long enough to remove them. We did another set of ear tubes and the aednoids at 2yrs, and then again at 3yrs. He was never under weight, but had a lot of spitting up/loose stools with mucus. He was dx with asthma at age 5, and we only got his CF dx when he was 15. His symptoms were certainly less obvious than most children born with CF.

Your daughter's symptoms could be CF, but just as easily could be something else. I don't think it would hurt to have her tested. What is your doctor saying about all of this? People who have severe allergies do have the ear-infections, aednoid and tonsil problems. The constipation concerns me, because some CFers have blockages, but it could also be caused by other things.

Symptoms can begin later in life. There are some members here with children who do not have any symptoms yet. CF is a progressive disease. There are people being dx as adults. If you have concerns, get the testing. You might want to contact an accredited CF center in your area, and just talk to someone there. Let us know what you find out.

Stacey

 

[JORDYSMOM]

You aren't dumb, you're just uninformed. <img src="i/expressions/face-icon-small-smile.gif" border="0">

My son had breathing problems from day one. He wouldn't take a pacifier, because he couldn't breathe with it in his mouth. His nose was always clogged! He had his first set of ear tubes at 9 mos, due to chronic ear infections. At that time, the doc told me his aednoids were already rotten, and would have to come out as soon as he was old enough to be under anesthesia long enough to remove them. We did another set of ear tubes and the aednoids at 2yrs, and then again at 3yrs. He was never under weight, but had a lot of spitting up/loose stools with mucus. He was dx with asthma at age 5, and we only got his CF dx when he was 15. His symptoms were certainly less obvious than most children born with CF.

Your daughter's symptoms could be CF, but just as easily could be something else. I don't think it would hurt to have her tested. What is your doctor saying about all of this? People who have severe allergies do have the ear-infections, aednoid and tonsil problems. The constipation concerns me, because some CFers have blockages, but it could also be caused by other things.

Symptoms can begin later in life. There are some members here with children who do not have any symptoms yet. CF is a progressive disease. There are people being dx as adults. If you have concerns, get the testing. You might want to contact an accredited CF center in your area, and just talk to someone there. Let us know what you find out.

Stacey

 

[JORDYSMOM]

You aren't dumb, you're just uninformed. <img src="i/expressions/face-icon-small-smile.gif" border="0">

My son had breathing problems from day one. He wouldn't take a pacifier, because he couldn't breathe with it in his mouth. His nose was always clogged! He had his first set of ear tubes at 9 mos, due to chronic ear infections. At that time, the doc told me his aednoids were already rotten, and would have to come out as soon as he was old enough to be under anesthesia long enough to remove them. We did another set of ear tubes and the aednoids at 2yrs, and then again at 3yrs. He was never under weight, but had a lot of spitting up/loose stools with mucus. He was dx with asthma at age 5, and we only got his CF dx when he was 15. His symptoms were certainly less obvious than most children born with CF.

Your daughter's symptoms could be CF, but just as easily could be something else. I don't think it would hurt to have her tested. What is your doctor saying about all of this? People who have severe allergies do have the ear-infections, aednoid and tonsil problems. The constipation concerns me, because some CFers have blockages, but it could also be caused by other things.

Symptoms can begin later in life. There are some members here with children who do not have any symptoms yet. CF is a progressive disease. There are people being dx as adults. If you have concerns, get the testing. You might want to contact an accredited CF center in your area, and just talk to someone there. Let us know what you find out.

Stacey

 

[JORDYSMOM]

You aren't dumb, you're just uninformed. <img src="i/expressions/face-icon-small-smile.gif" border="0">

My son had breathing problems from day one. He wouldn't take a pacifier, because he couldn't breathe with it in his mouth. His nose was always clogged! He had his first set of ear tubes at 9 mos, due to chronic ear infections. At that time, the doc told me his aednoids were already rotten, and would have to come out as soon as he was old enough to be under anesthesia long enough to remove them. We did another set of ear tubes and the aednoids at 2yrs, and then again at 3yrs. He was never under weight, but had a lot of spitting up/loose stools with mucus. He was dx with asthma at age 5, and we only got his CF dx when he was 15. His symptoms were certainly less obvious than most children born with CF.

Your daughter's symptoms could be CF, but just as easily could be something else. I don't think it would hurt to have her tested. What is your doctor saying about all of this? People who have severe allergies do have the ear-infections, aednoid and tonsil problems. The constipation concerns me, because some CFers have blockages, but it could also be caused by other things.

Symptoms can begin later in life. There are some members here with children who do not have any symptoms yet. CF is a progressive disease. There are people being dx as adults. If you have concerns, get the testing. You might want to contact an accredited CF center in your area, and just talk to someone there. Let us know what you find out.

Stacey

 

[JORDYSMOM]

You aren't dumb, you're just uninformed. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />My son had breathing problems from day one. He wouldn't take a pacifier, because he couldn't breathe with it in his mouth. His nose was always clogged! He had his first set of ear tubes at 9 mos, due to chronic ear infections. At that time, the doc told me his aednoids were already rotten, and would have to come out as soon as he was old enough to be under anesthesia long enough to remove them. We did another set of ear tubes and the aednoids at 2yrs, and then again at 3yrs. He was never under weight, but had a lot of spitting up/loose stools with mucus. He was dx with asthma at age 5, and we only got his CF dx when he was 15. His symptoms were certainly less obvious than most children born with CF.
<br />
<br />Your daughter's symptoms could be CF, but just as easily could be something else. I don't think it would hurt to have her tested. What is your doctor saying about all of this? People who have severe allergies do have the ear-infections, aednoid and tonsil problems. The constipation concerns me, because some CFers have blockages, but it could also be caused by other things.
<br />
<br />Symptoms can begin later in life. There are some members here with children who do not have any symptoms yet. CF is a progressive disease. There are people being dx as adults. If you have concerns, get the testing. You might want to contact an accredited CF center in your area, and just talk to someone there. Let us know what you find out.
<br />
<br />Stacey

 

[Cherylwithone]

some states started testing kids at birth in recent years. My daughter was born in New Hampshire and at the time they did'nt test. She spent almost all the time constipated. She is very small for her age and they have her listed as failure to thrive. They can fix the constipation. My daughter has an ace. They can also treat it with diet and meds depending. The GI doctor will do test on her stools and xrays, blood work etc. Sometimes the WEB sites can scare you. Just use it as a starting point. Have a list of questions to ask. ALso, check your family history both sides. It can be CF or a number of any other things. Have her tested. They will also ask things like "How many diapers did or do you change in regards to bowel movements?" Does she drink milk, formula or brest milk. All of this factors in.
I did'nt know on my daughter at birth. It seemed I caould explain everything away. When I did find out I felt like the wind got knocked out of me. She was relieved. They had a name for what was wrong with her. Even if it meant she had CF. She new at least it can be treated. It's better then not knowing.

 

[Cherylwithone]

some states started testing kids at birth in recent years. My daughter was born in New Hampshire and at the time they did'nt test. She spent almost all the time constipated. She is very small for her age and they have her listed as failure to thrive. They can fix the constipation. My daughter has an ace. They can also treat it with diet and meds depending. The GI doctor will do test on her stools and xrays, blood work etc. Sometimes the WEB sites can scare you. Just use it as a starting point. Have a list of questions to ask. ALso, check your family history both sides. It can be CF or a number of any other things. Have her tested. They will also ask things like "How many diapers did or do you change in regards to bowel movements?" Does she drink milk, formula or brest milk. All of this factors in.
I did'nt know on my daughter at birth. It seemed I caould explain everything away. When I did find out I felt like the wind got knocked out of me. She was relieved. They had a name for what was wrong with her. Even if it meant she had CF. She new at least it can be treated. It's better then not knowing.

 

[Cherylwithone]

some states started testing kids at birth in recent years. My daughter was born in New Hampshire and at the time they did'nt test. She spent almost all the time constipated. She is very small for her age and they have her listed as failure to thrive. They can fix the constipation. My daughter has an ace. They can also treat it with diet and meds depending. The GI doctor will do test on her stools and xrays, blood work etc. Sometimes the WEB sites can scare you. Just use it as a starting point. Have a list of questions to ask. ALso, check your family history both sides. It can be CF or a number of any other things. Have her tested. They will also ask things like "How many diapers did or do you change in regards to bowel movements?" Does she drink milk, formula or brest milk. All of this factors in.
I did'nt know on my daughter at birth. It seemed I caould explain everything away. When I did find out I felt like the wind got knocked out of me. She was relieved. They had a name for what was wrong with her. Even if it meant she had CF. She new at least it can be treated. It's better then not knowing.

 

[Cherylwithone]

some states started testing kids at birth in recent years. My daughter was born in New Hampshire and at the time they did'nt test. She spent almost all the time constipated. She is very small for her age and they have her listed as failure to thrive. They can fix the constipation. My daughter has an ace. They can also treat it with diet and meds depending. The GI doctor will do test on her stools and xrays, blood work etc. Sometimes the WEB sites can scare you. Just use it as a starting point. Have a list of questions to ask. ALso, check your family history both sides. It can be CF or a number of any other things. Have her tested. They will also ask things like "How many diapers did or do you change in regards to bowel movements?" Does she drink milk, formula or brest milk. All of this factors in.
I did'nt know on my daughter at birth. It seemed I caould explain everything away. When I did find out I felt like the wind got knocked out of me. She was relieved. They had a name for what was wrong with her. Even if it meant she had CF. She new at least it can be treated. It's better then not knowing.

 

[Cherylwithone]

some states started testing kids at birth in recent years. My daughter was born in New Hampshire and at the time they did'nt test. She spent almost all the time constipated. She is very small for her age and they have her listed as failure to thrive. They can fix the constipation. My daughter has an ace. They can also treat it with diet and meds depending. The GI doctor will do test on her stools and xrays, blood work etc. Sometimes the WEB sites can scare you. Just use it as a starting point. Have a list of questions to ask. ALso, check your family history both sides. It can be CF or a number of any other things. Have her tested. They will also ask things like "How many diapers did or do you change in regards to bowel movements?" Does she drink milk, formula or brest milk. All of this factors in.
<br />I did'nt know on my daughter at birth. It seemed I caould explain everything away. When I did find out I felt like the wind got knocked out of me. She was relieved. They had a name for what was wrong with her. Even if it meant she had CF. She new at least it can be treated. It's better then not knowing.