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- Thread starter ClashPunk82
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ClashPunk82
New member
i dont know much about cepacia. maybe you could inform me on it, i would like to know more. i dont have it but i want to know more about it. and thx for welcoming me!! <img src="i/expressions/heart.gif" border="0">
ClashPunk82
New member
i dont know much about cepacia. maybe you could inform me on it, i would like to know more. i dont have it but i want to know more about it. and thx for welcoming me!! <img src="i/expressions/heart.gif" border="0">
rachelsmom
New member
I know this is a little off the subject but I am a mother. My daughter is 8 and has CF. I have been on this sight for about one month and I cannot tell you how much it has helped me to just listen to other people and respond where appropriate. I hope soooooo much that my daughter will have the attitude about her disease that the majority of you have. You live with so much and have so much unknown and I am so much in awe of all of you. My daughter has a great attitude as well and this helps me deal much better. She doesnt know the severity of her disease yet but she never really complains about the treatments, IV's or meds she takes.
I am glad to know that she will have a place to come "chat" when she is old enough. Keep your positive attitudes and I know you will go far. You are all very special people and not just because of the CF but because of how you handle you situation. You should all pat yourselves on the back for helping so many people.
My deepest and sincerest thanks!!!!!
Teri
I am glad to know that she will have a place to come "chat" when she is old enough. Keep your positive attitudes and I know you will go far. You are all very special people and not just because of the CF but because of how you handle you situation. You should all pat yourselves on the back for helping so many people.
My deepest and sincerest thanks!!!!!
Teri
rachelsmom
New member
I know this is a little off the subject but I am a mother. My daughter is 8 and has CF. I have been on this sight for about one month and I cannot tell you how much it has helped me to just listen to other people and respond where appropriate. I hope soooooo much that my daughter will have the attitude about her disease that the majority of you have. You live with so much and have so much unknown and I am so much in awe of all of you. My daughter has a great attitude as well and this helps me deal much better. She doesnt know the severity of her disease yet but she never really complains about the treatments, IV's or meds she takes.
I am glad to know that she will have a place to come "chat" when she is old enough. Keep your positive attitudes and I know you will go far. You are all very special people and not just because of the CF but because of how you handle you situation. You should all pat yourselves on the back for helping so many people.
My deepest and sincerest thanks!!!!!
Teri
I am glad to know that she will have a place to come "chat" when she is old enough. Keep your positive attitudes and I know you will go far. You are all very special people and not just because of the CF but because of how you handle you situation. You should all pat yourselves on the back for helping so many people.
My deepest and sincerest thanks!!!!!
Teri
<blockquote>Quote<br><hr><i>Originally posted by: <b>ClashPunk82</b></i><br>i dont know much about cepacia. maybe you could inform me on it, i would like to know more. i dont have it but i want to know more about it. and thx for welcoming me!! <img src="i/expressions/heart.gif" border="0"><hr></blockquote>
B.cepacia is something i wish i was told about so i could have protected myself from geting it. It is an antibiotic resistant bacterial infection you can get in your lungs. It is a problem for people with cf because our lungs are breeding grounds for infections like this and it can be difficult to treat, since it is resistant to most or all antibiotics. The best way to avoid getting it are to wash your hands often, especially when you are at your cf clinic, or in the hospital ( which is how i got it). B.cepacia is one of the main reasons that cf patients are not supposed to be together . Which is a shame because we all have so much in common, it would seem like instant friendship almost. I remember when i was younger they would put kids with cf in wards ( in the hospital) which would sometimes have 4 - 6 patients in a room..........Looking back at it, that was just asking for trouble<img src="i/expressions/face-icon-small-confused.gif" border="0"> for obvious reasons they dont do that anymore. Hope this helped a bit <img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes /. b.cepacia
B.cepacia is something i wish i was told about so i could have protected myself from geting it. It is an antibiotic resistant bacterial infection you can get in your lungs. It is a problem for people with cf because our lungs are breeding grounds for infections like this and it can be difficult to treat, since it is resistant to most or all antibiotics. The best way to avoid getting it are to wash your hands often, especially when you are at your cf clinic, or in the hospital ( which is how i got it). B.cepacia is one of the main reasons that cf patients are not supposed to be together . Which is a shame because we all have so much in common, it would seem like instant friendship almost. I remember when i was younger they would put kids with cf in wards ( in the hospital) which would sometimes have 4 - 6 patients in a room..........Looking back at it, that was just asking for trouble<img src="i/expressions/face-icon-small-confused.gif" border="0"> for obvious reasons they dont do that anymore. Hope this helped a bit <img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes /. b.cepacia
<blockquote>Quote<br><hr><i>Originally posted by: <b>ClashPunk82</b></i><br>i dont know much about cepacia. maybe you could inform me on it, i would like to know more. i dont have it but i want to know more about it. and thx for welcoming me!! <img src="i/expressions/heart.gif" border="0"><hr></blockquote>
B.cepacia is something i wish i was told about so i could have protected myself from geting it. It is an antibiotic resistant bacterial infection you can get in your lungs. It is a problem for people with cf because our lungs are breeding grounds for infections like this and it can be difficult to treat, since it is resistant to most or all antibiotics. The best way to avoid getting it are to wash your hands often, especially when you are at your cf clinic, or in the hospital ( which is how i got it). B.cepacia is one of the main reasons that cf patients are not supposed to be together . Which is a shame because we all have so much in common, it would seem like instant friendship almost. I remember when i was younger they would put kids with cf in wards ( in the hospital) which would sometimes have 4 - 6 patients in a room..........Looking back at it, that was just asking for trouble<img src="i/expressions/face-icon-small-confused.gif" border="0"> for obvious reasons they dont do that anymore. Hope this helped a bit <img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes /. b.cepacia
B.cepacia is something i wish i was told about so i could have protected myself from geting it. It is an antibiotic resistant bacterial infection you can get in your lungs. It is a problem for people with cf because our lungs are breeding grounds for infections like this and it can be difficult to treat, since it is resistant to most or all antibiotics. The best way to avoid getting it are to wash your hands often, especially when you are at your cf clinic, or in the hospital ( which is how i got it). B.cepacia is one of the main reasons that cf patients are not supposed to be together . Which is a shame because we all have so much in common, it would seem like instant friendship almost. I remember when i was younger they would put kids with cf in wards ( in the hospital) which would sometimes have 4 - 6 patients in a room..........Looking back at it, that was just asking for trouble<img src="i/expressions/face-icon-small-confused.gif" border="0"> for obvious reasons they dont do that anymore. Hope this helped a bit <img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes /. b.cepacia
ClashPunk82
New member
I know, when I was younger we used to have CF partys in the activities room at the hospital. All the CF kids would come and play with eachother and we used to room together and I had a few CF friends I had come over my house. Nowadays you cant touch anything or anyone! It was so different back then, it was definitely a bad idea but I do miss it cuz now we are so isolated. When Im in the hospital im always on precautions and I cant leave my room which stinks. It makes ya go nuts. And thanks for tellin me about Cepacia. Im sorry you have that to add to everything else your already dealing with!! It never ends with us CF people <img src="i/expressions/face-icon-small-smile.gif" border="0"> And Im glad I know how to try and avoid it by washin your hands a lot which I do anyway my mom is a nurse so my whole familys hands are torn apart from washin so much! You seem like a very nice person and if you ever wanna drop me an e-mail im at clashpunk10282@hotmail.com.
Nicole 22 CF
Nicole 22 CF
ClashPunk82
New member
I know, when I was younger we used to have CF partys in the activities room at the hospital. All the CF kids would come and play with eachother and we used to room together and I had a few CF friends I had come over my house. Nowadays you cant touch anything or anyone! It was so different back then, it was definitely a bad idea but I do miss it cuz now we are so isolated. When Im in the hospital im always on precautions and I cant leave my room which stinks. It makes ya go nuts. And thanks for tellin me about Cepacia. Im sorry you have that to add to everything else your already dealing with!! It never ends with us CF people <img src="i/expressions/face-icon-small-smile.gif" border="0"> And Im glad I know how to try and avoid it by washin your hands a lot which I do anyway my mom is a nurse so my whole familys hands are torn apart from washin so much! You seem like a very nice person and if you ever wanna drop me an e-mail im at clashpunk10282@hotmail.com.
Nicole 22 CF
Nicole 22 CF
hey nicole, we sorta already met on another thread, but i'm jamie from pa. I'm a college student in boston and was just diagnosed. i'm also new to this site and thought i'd introduce myself to you and everyone else as well!
jamie
<blockquote>Quote<br><hr>two roads diverged in a wood and I-
I took the one less traveled by and that has made all the difference
Robert Frost<hr></blockquote><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/rose.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0">
jamie
<blockquote>Quote<br><hr>two roads diverged in a wood and I-
I took the one less traveled by and that has made all the difference
Robert Frost<hr></blockquote><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/rose.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0">
hey nicole, we sorta already met on another thread, but i'm jamie from pa. I'm a college student in boston and was just diagnosed. i'm also new to this site and thought i'd introduce myself to you and everyone else as well!
jamie
<blockquote>Quote<br><hr>two roads diverged in a wood and I-
I took the one less traveled by and that has made all the difference
Robert Frost<hr></blockquote><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/rose.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0">
jamie
<blockquote>Quote<br><hr>two roads diverged in a wood and I-
I took the one less traveled by and that has made all the difference
Robert Frost<hr></blockquote><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/rose.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0">
supermanfan
New member
Hi Nicole
Hey Denise, my name is Denise also. I am 35, and a post transplant patient by 7 years <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/wine.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
Hey Denise, my name is Denise also. I am 35, and a post transplant patient by 7 years <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/wine.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
supermanfan
New member
Hi Nicole
Hey Denise, my name is Denise also. I am 35, and a post transplant patient by 7 years <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/wine.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
Hey Denise, my name is Denise also. I am 35, and a post transplant patient by 7 years <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/wine.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">