<br>hi people ive just signed up i stay in scotland in the uk i have cf im pretty ok apart from i keep getting annoying nasal polyps growing back ive had them removed countless times but they keep coming back ive got them right now and my left nostril is totally blocked i cant sniff or blow it ive just been put on nasonex spray last week and singulair pill but not much difference as yet looking to see if anyone could give me advice with them as there really uncomfy and i cant sleep <img src="i/expressions/face-icon-small-sad.gif" border="0"> this is what im on been on to help them i was on flixonase nose drops stopped them for the nasonex ive had betamethasone to shrink them but dosnt last long after ive tried a neti pot and it didnt work and a sterimar nasal spray but i think that made them worse and ive tried steam inhalation im just looking for some relief if anyones got ideas or advice thanks
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Newbie with cf from scotland uk looking for help advice on Nasal Polyps
- Thread starter steveogt4
- Start date
<br>hi people ive just signed up i stay in scotland in the uk i have cf im pretty ok apart from i keep getting annoying nasal polyps growing back ive had them removed countless times but they keep coming back ive got them right now and my left nostril is totally blocked i cant sniff or blow it ive just been put on nasonex spray last week and singulair pill but not much difference as yet looking to see if anyonecould give me advice with them as there really uncomfy and i cant sleep <img src="i/expressions/face-icon-small-sad.gif" border="0"> this is what im on been onto help them i was on flixonase nose drops stopped them for the nasonex ive had betamethasone to shrink them but dosnt last long after ivetried a neti pot and itdidnt work and a sterimar nasal spray but i think that made them worse and ive tried steam inhalationim just looking for some relief if anyones got ideas or advice thanks
<p><br>hi people ive just signed up i stay in scotland in the uk i have cf im pretty ok apart from i keep getting annoying nasal polyps growing back ive had them removed countless times but they keep coming back ive got them right now and my left nostril is totally blocked i cant sniff or blow it ive just been put on nasonex spray last week and singulair pill but not much difference as yet looking to see if anyonecould give me advice with them as there really uncomfy and i cant sleep <img src="i/expressions/face-icon-small-sad.gif" border="0"> <p><p>this is what im on been onto help them i was on flixonase nose drops stopped them for the nasonex ive had betamethasone to shrink them but dosnt last long after ivetried a neti pot and itdidnt work and a sterimar nasal spray but i think that made them worse and ive tried steam inhalationim just looking for some relief if anyones got ideas or advice thanks
Hello, I had some what the same problem with nasal polyps some yrs back, 35-45 yrs. Have had two surg. going through nose, some what uncomfortable. Each time they would come back. The last time they went up between the gum and jaw bone, cleaned those polyps out. That was at least 20 yrs ago and have not had any problem since. If I remember correctly, the ent surgeon scraped it so it would not return. Good luck.
Hello, I had some what the same problem with nasal polyps some yrs back, 35-45 yrs. Have had two surg. going through nose, some what uncomfortable. Each time they would come back. The last time they went up between the gum and jaw bone, cleaned those polyps out. That was at least 20 yrs ago and have not had any problem since. If I remember correctly, the ent surgeon scraped it so it would not return. Good luck.
Hello, I had some what the same problem with nasal polyps some yrs back, 35-45 yrs. Have had two surg. going through nose, some what uncomfortable. Each time they would come back. The last time they went up between the gum and jaw bone, cleaned those polyps out. That was at least 20 yrs ago and have not had any problem since. If I remember correctly, the ent surgeon scraped it so it would not return. Good luck.
imported_Momto2
New member
Hi, I had roughly 7-8 nasal polyp surgeries between ages 5 and 20. I'd be fine for a couple of months, and then they'd return. They still seem to return, but I seem to be able to blow them out now with great effort and the help of snorting a lot of nasal saline washes (the polyps are weird pink-tan fleshy lined looking lumps, umm, very different than boogers). Sorry if I'm grossing anyone out. I didnt find that ANY preventative meds made any difference whatsoever.
imported_Momto2
New member
Hi, I had roughly 7-8 nasal polyp surgeries between ages 5 and 20. I'd be fine for a couple of months, and then they'd return. They still seem to return, but I seem to be able to blow them out now with great effort and the help of snorting a lot of nasal saline washes (the polyps are weird pink-tan fleshy lined looking lumps, umm, very different than boogers). Sorry if I'm grossing anyone out. I didnt find that ANY preventative meds made any difference whatsoever.
imported_Momto2
New member
Hi, I had roughly 7-8 nasal polyp surgeries between ages 5 and 20. I'd be fine for a couple of months, and then they'd return. They still seem to return, but I seem to be able to blow them out now with great effort and the help of snorting a lot of nasal saline washes (the polyps are weird pink-tan fleshy lined looking lumps, umm, very different than boogers). Sorry if I'm grossing anyone out. I didnt find that ANY preventative meds made any difference whatsoever.
azdesertrat
New member
Thanks for the description, seriously. I was asked recently if I'd had any problem with nasal polyps and had to reply, 'I don't know. I wouldn't recognize one if it bit me on the foot'. Thankfully, I've never had the problem.
azdesertrat
New member
Thanks for the description, seriously. I was asked recently if I'd had any problem with nasal polyps and had to reply, 'I don't know. I wouldn't recognize one if it bit me on the foot'. Thankfully, I've never had the problem.
azdesertrat
New member
Thanks for the description, seriously. I was asked recently if I'd had any problem with nasal polyps and had to reply, 'I don't know. I wouldn't recognize one if it bit me on the foot'. Thankfully, I've never had the problem.
livinglovinggrace
New member
I am sorry you are dealing with this painful problem. Do you take hypertonic saline? I have noticed a huge difference to my sinuses since starting this (as well as my lungs). I was having surgery every two years, but i have gone five years without one<img src="i/expressions/face-icon-small-smile.gif" border="0">. I do do fairly long treatments with the HTS but it has certainly had huge benefits (i use 6%).
I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
livinglovinggrace
New member
I am sorry you are dealing with this painful problem. Do you take hypertonic saline? I have noticed a huge difference to my sinuses since starting this (as well as my lungs). I was having surgery every two years, but i have gone five years without one<img src="i/expressions/face-icon-small-smile.gif" border="0">. I do do fairly long treatments with the HTS but it has certainly had huge benefits (i use 6%).
I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
livinglovinggrace
New member
I am sorry you are dealing with this painful problem. Do you take hypertonic saline? I have noticed a huge difference to my sinuses since starting this (as well as my lungs). I was having surgery every two years, but i have gone five years without one<img src="i/expressions/face-icon-small-smile.gif" border="0">. I do do fairly long treatments with the HTS but it has certainly had huge benefits (i use 6%).
<br />
<br />I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
<br />
<br />I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
livinglovinggrace
New member
I am sorry you are dealing with this painful problem. Do you take hypertonic saline? I have noticed a huge difference to my sinuses since starting this (as well as my lungs). I was having surgery every two years, but i have gone five years without one<img src="i/expressions/face-icon-small-smile.gif" border="0">. I do do fairly long treatments with the HTS but it has certainly had huge benefits (i use 6%).
I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
livinglovinggrace
New member
I am sorry you are dealing with this painful problem. Do you take hypertonic saline? I have noticed a huge difference to my sinuses since starting this (as well as my lungs). I was having surgery every two years, but i have gone five years without one<img src="i/expressions/face-icon-small-smile.gif" border="0">. I do do fairly long treatments with the HTS but it has certainly had huge benefits (i use 6%).
I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
livinglovinggrace
New member
I am sorry you are dealing with this painful problem. Do you take hypertonic saline? I have noticed a huge difference to my sinuses since starting this (as well as my lungs). I was having surgery every two years, but i have gone five years without one<img src="i/expressions/face-icon-small-smile.gif" border="0">. I do do fairly long treatments with the HTS but it has certainly had huge benefits (i use 6%).
<br />
<br />I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
<br />
<br />I also see you are taking singulair. If allergies are playing a part in the problem it may be worth being allergy tested to see what in particular causes you grief? In the mean time maybe a non-drying antihistamine such as fexofenadine daily could help long term?
<P>Hi there! Zoe has had 4 sinus surgeries...and in between the last 2, which were only 2 weeks apart, she grew 2 huge polyps!! So, her ENT has switched her from Nasonex spray, to using a compunded Mometasone (the med that is in Nasonex) from a specialty pharmacy (ASL-out of Ca.) in her sinus rinses. She uses a sinus rinse first, then the second bottle of sinus rinse has this added med in it. Hopefully we will see a drastic change in her sinus issues with this new routine.</P>
<P>She also grows Staph constantly, so we are going to start using this product below. If you read the results of this product.....I was amazed at all the bacterias that it kills! PA being one of them!</P>
<P>It is also available in a throat spray! I think this is something all cf'ers should give a try!</P>
<P> </P>
<P><A href="<A HREF="http://www.seagateproducts.com/olive-leaf-nasal-spray.html">http://www.seagateproducts.com/olive-leaf-nasal-spray.html</A>" vglnk_1310661103163="1"><A HREF="http://www.seagateproducts.com/olive-leaf-nasal-spray.html">http://www.seagateproducts.com/olive-leaf-nasal-spray.html</A></A></A></P>
<P> </P>
<P>Good Luck!</P>
<P>She also grows Staph constantly, so we are going to start using this product below. If you read the results of this product.....I was amazed at all the bacterias that it kills! PA being one of them!</P>
<P>It is also available in a throat spray! I think this is something all cf'ers should give a try!</P>
<P> </P>
<P><A href="<A HREF="http://www.seagateproducts.com/olive-leaf-nasal-spray.html">http://www.seagateproducts.com/olive-leaf-nasal-spray.html</A>" vglnk_1310661103163="1"><A HREF="http://www.seagateproducts.com/olive-leaf-nasal-spray.html">http://www.seagateproducts.com/olive-leaf-nasal-spray.html</A></A></A></P>
<P> </P>
<P>Good Luck!</P>
<P>Hi there! Zoe has had 4 sinus surgeries...and in between the last 2, which were only 2 weeks apart, she grew 2 huge polyps!! So, her ENT has switched her from Nasonex spray, to using a compunded Mometasone (the med that is in Nasonex) from a specialty pharmacy (ASL-out of Ca.)in her sinus rinses. She uses a sinus rinse first, then the second bottle of sinus rinse has this added med in it. Hopefully we will see a drastic change in her sinus issues with this new routine.</P>
<P>She also grows Staph constantly, so we are going to start using this product below. If you read the results of this product.....I was amazed at all the bacterias that it kills! PA being one of them!</P>
<P>It is also available in a throat spray! I think this is something all cf'ers should give a try!</P>
<P></P>
<P><A href="<A HREF="http://www.seagateproducts.com/olive-leaf-nasal-spray.html">http://www.seagateproducts.com/olive-leaf-nasal-spray.html</A>" vglnk_1310661103163="1"><A HREF="http://www.seagateproducts.com/olive-leaf-nasal-spray.html">http://www.seagateproducts.com/olive-leaf-nasal-spray.html</A></A></A></P>
<P></P>
<P>Good Luck!</P>
<P>She also grows Staph constantly, so we are going to start using this product below. If you read the results of this product.....I was amazed at all the bacterias that it kills! PA being one of them!</P>
<P>It is also available in a throat spray! I think this is something all cf'ers should give a try!</P>
<P></P>
<P><A href="<A HREF="http://www.seagateproducts.com/olive-leaf-nasal-spray.html">http://www.seagateproducts.com/olive-leaf-nasal-spray.html</A>" vglnk_1310661103163="1"><A HREF="http://www.seagateproducts.com/olive-leaf-nasal-spray.html">http://www.seagateproducts.com/olive-leaf-nasal-spray.html</A></A></A></P>
<P></P>
<P>Good Luck!</P>